These resources are intended to direct patients and supporters to overall informational resource and support services.

• ALSSO: A local service organization in Spokane, Washington that provides support and assistance to PALS and their families through volunteerism.
• International ALS Links: International Alliance of ALS/MND Associations offers chat rooms, links, the international symposium web page and latest news.
• ALS Association (ALSA): The ALS Association is a national not-for-profit health agency providing patient and community services, public education, patient advocacy and research. The Association's affiliate network includes chapters in communities throughout the nation.
• ALS Hope: San Diego based non-profit raising awareness. Donating to research.
• Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd: Offers patient and family services, an events calendar and research. The website is affiliated with Northwestern University Medical School.
• March of Faces: Non profit organization founded by people with ALS and their loved ones out of Florida. Over 2500 PALS participating in the March of faces Banner Project.
• Ride for Life: Non profit out of New York started in 1998 brings community awareness and support research. Offering hope and inspiration.
• Project A.L.S.: Started by Hollywood producer Jenifer Estess, this ALS nonprofit hosts several high-profile fundraisers per year to benefit ALS research. Information on the fundraisers and research it supports.
• ALS Hope Foundation: Supports the ALS Treatment Initiative, a collaboration between top ALS doctors and researchers around the U.S. The site includes information on ALSTI, biographies of patients, fundraising event information and more.
• University of Miami ALS Clinic and Research Center: Offers support groups for patients and caregivers, drugs, latest news, doctors, research and ALS centers.
• ALS Society of Canada: Offers up-to-date information about ALS, and serves patients and caregivers..
• MDA: National site with information on physicians, clinics, services, blogs, forum, chats group. Offers support groups and newsletters.
• ALS Society of Ontario: Provides services of PALS, assist people with managing the effects of the disease and raises funds for research.
• Doctor's Guide to ALS
• The BUILD website offers chat and bulletin board interaction for people with MND/ALS in the UK, as well as their caregivers and healthcare professionals.
• Jackson Labs: What are the genetic and environmental causes of ALS? How can we predict the onset of this disease? And how can we prevent, treat or even cure it? Researchers at The Jackson Laboratory are investigating these questions every day. Located in Bar Harbor, Maine.

These resources are intended to assist ALS patients in finding clinical care appropriate for them.

• MDA - National site with information on physicians, clinics, services, blogs, forum, chats group. Offering support groups and newsletters.
• American Medical Association - Provides basic professional information on many licensed physicians in the US. AMA also provides links to condition and illness-related Web resources, medical indexes, government health sites and more.
• Neurology Channel: - Gives an overview of ALS, symptoms, diagnosis, types and causes, and treatments.
  Please visit here to find a neurologist.
• A.L.S.C.A.R.E.: The ALS C.A.R.E. Project is a voluntary, physician-directed program to improve outcomes for patients diagnosed with Amyotrophic Lateral Sclerosis. Enrollment completed 6/30/2007. An ALS-FRS Scale online form.
• International assistance for medical help Information and support online health service.

These resources are intended to help patients find appropriate assistance, such as homecare.

• Centerwatch
• ALS Association
• Good site describing how to evaluate a clinical trial

These resources are intended to help patients find appropriate assistance, such as homecare.

• MDA: National site with information on physicians, clinics, services, blogs, forum, chat group. Offering support groups and newsletters.
• Homecare Online: Committed to representing the interests of the home care and hospice community.
• Visiting Nurses Associations of America: Visiting nurse information on both skilled medical care and non-skilled care. Please call (800) 426-2547.
• Veterans Administration Home Health

These resources are intended to help patients find information related to insurance and financial assistance.

• Supplemental Security Income: For information on Supplemental Security Income, contact your local Social Security office for more information, or call (800) 772-1213
• Medicare: For information on Medicare, please call your local Social Security office or write to Health Care Financing Administration, Inquiries Staff, Room GF-3, East Lowrise Building, Baltimore, MD 21207.
• Medicaid: For information on Medicaid, please call your local state welfare office or write to Health Care Financing Administration, Inquiries Staff, Room GF-3, East Lowrise Building, Baltimore, MD 21207.
• National Organization for Rare Diseases: Rilutek assistance program.
• For assistance with insurance companies to access funding for treatments and care, please contact Frankline Group: 1-800-745-8835

These search engines and reference sites can assist patients and supporters in finding studies conducted on ALS and when searching for any other information, resources, organizations, etc. related to ALS.

• Search Engines: For the most comprehensive list of search engines, go to www.allsearchengines.com
• One stop shop research tip site
• National Library of Medicine
• Evaluate Online Medical Information
• How to read a medical journal article...
• A shortcut to get to the Medline index of medical literature from all over the world from 1966 forward
• PubMed: Another way to access Medline
• WebMD: Web based community for those with serious health problems.
• Alsod Database: Alsod.org, the online database for ALS/SOD1 genetic mutations, is designed to provide both the scientific community and wider public with up-to-date information on SOD1 associated ALS. They are supported by ALSA and the MND Association and will be developing a regular update on ALS genetics on their News page. Please visit for more information

These resources are intended to assist patients and supporters when researching nutraceuticals (vitamins) as treatment options.

• http://www.dietary-supplements.info.nih.gov/
• http://www.vitaminplanet.com
• http://www.supplementwatch.com/supatoz/
• http://www.smart-drugs.net/
• http://www.consumerlab.com/ (This is a fee based site that tests various vitamin manufacturers for quality control)

These resources are intended to assist patients and supporters when researching pharmaceutical treatment options.

• Clinical Pharmacology 2000: For drug information application.
• Medline Plus: Provides health topics, dictionaries, drug information and directories.
• Alternative Medicine Channel: Provides information about alternative medicine.

• ALS Digest: A patient forum via email that will connect you to others in the ALS community. Please email bro@MET.FSU.EDU and ask to subscribe.
• ALS Chat Rooms: An opportunity to chat with other patients, doctors, researchers and public awareness advocates. Please visit for more information on the chat room discussions available, and how to register for the chats.
• Living with ALS e-group: An avenue for persons living with ALS and their caregivers to communicate with the ALS community, to share information, ideas, support and fellowship. Visit http://groups.yahoo.com and type "Living with ALS" on the group search. Submit your information for membership. You will receive a confirmation email, and then begin receiving the postings according to the specifications you request.
• Accordant Health Services, Inc.: A patient service group that offers live forums, chat rooms, health news, a library, clinical trials, ask the expert, message boards, resource center and health and wellness. You must register to use this site. Registration and membership is free.
• ALS Links.com: Offers links to PALS' websites.

• This site offers advice to patients regarding solving problems with doctors.
• This site offers help regarding travel information for patients.
• This site gives suggestions on how to keep track of financial records.

Below are a sampling of books that may be helpful as patients and supporters strive to make informed treatment decisions and live each day as fully as possible.

• Augie's Quest
• Learning to Fall
• Caregiving - the spiritual journey of love, loss and renewal
• ALS, a guide for patients and families 2nd edition
• Journeys with ALS
• Making Informed Medical Decisions: Where to Look and How to Use What You Find