September 2011 Newsletter

By: Robert A. Goldstein

Dear ALS Community Member,
I am writing today to personally invite you to join us for an important event in the history of ALS TDI and the battle to end ALS (Lou Gehrig's disease).  This year's Leadership Summit is November 4th. It will feature important viewpoints from stakeholders representing the critical players in the drug development process.  It will be a provocative day, full of insightful, and perhaps controversial, viewpoints.  It is crucial that we have you there to join us in this very important discussion.
As always, you will also get access to the world's top ALS researchers, who will present on a variety of topics in the morning; including the latest research going on in the lab as well as reflections on the current clinical trials enrolling patients today.  I am especially excited about this year's event because of the diverse group of speakers that have committed to attend and take questions directly from you. A full list of the speakers in below.
In addition, it is my great honor to announce this year's Leadership Award winners in this email.  Each of these people represent the ALS community in individually inspiring ways.  We are grateful for their leadership and I hope that you will join me in recognizing them.
As always, this event is FREE to all that attend.  Thank you for your support of ALS TDI all year long and I hope that you will be able to join us for this year's Summit. 
Steven Perrin, Ph.D.
CEO & Chief Scientific Officer
ALS Therapy Development Institute
REGISTER NOW: 7th Annual Leadership Summit

November 4, 2011 @9AM

This free event will feature presentations from the lab, the clinic and from the industry.  More importantly, ALS TDI is giving you a chance to be heard and to participate in the effort to end ALS like never before.
LS Logo
Christopher P. Austin (NIH) 
Stanley Appel (Methodist)
Myles Axton (Nature Genetics) 
Robert Blum (Cytokinetics) 
Merit Cudkowicz (MGH/NEALS) 
James Greenwood (BIO) 
John Lincecum (ALS TDI) 
Steve Perrin (ALS TDI) 
Jeffrey Rothstein (JHU) 
George Scangos (Biogen Idec) 
Henri Termeer (formerly of Genzyme)
Fernando G. Vieira (ALS TDI)
This event is FREE and open to the public. 

2011 Leadership Award Recipients Announced
000571665Each year, ALS TDI has recognized members of the ALS community for their leadership.  Each of these four awards is unique and you can read the full description of them online here.  Thank you to everyone that took the time to nominate someone either via Facebook or directly via an email or phone call.  This year's recipients are:  

Thomas Ohlson (FL)
Fran Delaney Challenge & Respect Award
Sharon Isles (LA)
Stephen Milne Adventurous Spirit Award 
Megan Mishork (WA)
Mary Lou Krauseneck Courage & Love Award
Frank Provost (VT)
Stephen Heywood Patients Today Award

A White Coat Affair Gala

Fairmont Copley Plaza, Boston, MA
November 3, 2011 @ 6PM 

Please join us for an evening of cocktails, dinner, live music, dancing & more all to benefit the research taking place at the ALS Therapy Development Institute.  During the event, US Congressman Michael Capuano will be awarded the first ever "ALS TDI Iron Horse" while chairman of the board Augie Nieto will be recognized by the Board for having raised more than $30 million for the Institute since 2007. 
Special thanks to our current sponsors:
Platinum Sponsor
Biogen Idec

Gold Sponsors
The Heywood Family
Insource Services, Inc.

Silver Sponsors
Blue Cross Blue Shield of Massachusetts
Capitol Partners

Copper Sponsors
Alexander, Aaronson and Finning
BBK Worldwide
Boston Private Bank & Trust
North Point Trust Company
Nutter McLennen & Fish
The Sepucha Family
The Wiley Family

Click here to purchase a ticket or sponsorship (RSVP by October 17)

Upcoming Events Supporting ALS TDI:
calendar-image 3ALS TDI wants to recognize your efforts to support cutting-edge research toward a cure for ALS.  Please make sure that you contact us with the latest information on your event. We are here to help you promote it.
Email the events team at or call 617-441-7205 to make sure your event in support of ALS TDI is listed on our online event calendar, the ALS Community Pages, and in our monthly email blasts.  Be sure yours gets listed!
------------------------- October ------------------------
October 7 - Olson ALS Foundation 10th Annual Dinner & Auction, Fort Wayne, Indiana More info here
October 8 - ALS 5K Run/Walk for Hope, Damiansville, Illinois More info here
October 11 - Fran Delaney Foundation Golf Event, Nashua, New Hampshire More info here
October 13 - ALS Research 101, Weston, Florida More info here
October 14 - The Doc Classic, Ft. Worth, Texas More info here
October 15/16, 22/23, 29/30 - Moody Street Circus, Newton, Massachusetts - More info here
October 15 - Winning 4 Winston, Hopkins, Minnesota More info here
October 15 - Friends for Faye 24 Hour Race, South Bend, Indianapolis More info here
October 15 - Tradition of Hope Gala for Augie's Quest, Beverly Hills, California More info here
October 20-23 - USTA Stuart Bridges Phoenix Senior Open, Phoenix, Arizona More info here
October 22 - Corey's Crusade Fundraising Dinner, Berkeley, California More info here
October 22 - Denova Sands Memorial Golf Tournament, Stoneville, North Carolina More info here
October 23 - Marty Shanton Classic for ALS, Clifton, Virginia More info here
October 24 - Second Annual Red Bull Open, Haymarket, Virginia More info here
October 26-27 - HMS Host Invitational, Orlando, Florida More info here
October 27 - Support Group Meeting, Cambridge, Massachusetts More info here

fourstarcharityALS TDI is America's Top Rated ALS Organization
The mission of the ALS Therapy Development Institute (ALS TDI) is to develop effective therapeutics that slow or stop amyotrophic lateral sclerosis (ALS, Lou Gehrig’s disease), as soon as possible. ALS TDI is the world’s first 501c3 nonprofit biotech. Donations may be tax-deductible.
Click Here to Donate to ALS Research