September 2013 Update from TDI

Who is in charge of ending ALS?

By: Dr. Steve Perrin


Dear ALS Community Member,
You are in charge.  This fight is yours and you are leading it through your support of ALS TDI.  For the last 9 years, we have brought together scientists and executives from academia, pharma, biotech, government and venture to speak directly with you about the effort to discover and develop effective treatments for ALS patients today.  This event, the Leadership Summit, will take place October 3 in Boston.  I strongly encourage you to be there with us as we report on not just progress but have a frank and open discussion about how we are going to go faster. 

Joining me to present progress and thoughts to you that day include: Robert Beall (CFF), Steve Finkbeiner (UCSF), Aaron Gitler (Stanford), Mike Gold (UCB), Amelie Gubitz (NINDS),Philip Reilly (Third Rock Ventures), and Willem van Weperen(to-bbb). And to be clear, unlike other ALS organizations, there is never a cost to attend this event nor is it invitation only.  If you have a stake in seeing ALS beat, you are welcome.  
It is also my honor to announce this year’s Leadership AwardRecipients.  I hope that you will join me in recognizing their individual contributions to advancing potential treatments for ALS during an award presentation at next month’s Leadership Summit: Fran Delany Challenge & Respect AwardAndy Rubenstein,  Mary Lou Krauseneck Courage & Love Award:Jenny Dwyer,  Steve Milne Adventurous Spirit AwardRoger Petrone Jr. and Rick Cochran,  Stephen Heywood Patients Today AwardKevin Swan.

Finally, I want to take a moment to recognize the work done by hundreds of families like yours this year to raise funds to advance drug development at the ALS Therapy Development Institute. You can find more information about some additional fundraising events, including Ales for ALS™ and the White Coat Affair gala below.  


Steve Perrin, Ph.D.
ALS Therapy Development Institute 
Leadership Summit
Research Center
The 9th annual Leadership Summit will be held on Thursday, October 3rd at the Westin Copley Place Hotel. Click here to see the presenters and panelists recently added!

The 2013 Leadership Award recipients have been announced!Click here to see who we're honoring this year!
On Stands Now!
The fall newsletter is hitting mailboxes now! Check out the latest reserch updates from programs ongoing at ALS TDI.Click here to read more!
White Coat Affair
ALS Community
The 3rd annual A White Coat Affair gala will be held on Friday, October 4th at the Fairmont Copley Plaza in Boston. Join us for an evening of drinks, dinner, and dancing, with all proceeds going directly to fund research at ALS TDI. Click here to buy your tickets today!

Topic Search
Check out the changes made to the Topics Search, a great place for information on specific treatment areas, such as drugs in preclinical research and clinical trials, stem cell treatments, and more!
ALS Today
In The Spotlight
Breaking the ultrasound barrier in ALS. Can we reduce the need for painful EMGs in ALS? Experts sound off on neuromuscular ultrasound.

Follow us @ALSToday on Twitter to find out about the latest research advances in ALS. 
Webinar: Neuroimmunology
Join us on September 9th @ 10am ET for a discussion about neuroimmunology treatment strategies with guest Prof. Michal Schwartz of the Weizmann institute of Science, Israel. Click here to register!