ALS Month

#INTHREEWORDS

 

At any given moment in the United States, there are 30,000 people living with ALS and an estimated 450,000 people worldwide. When they are given their diagnosis, they are told that there are no treatments, no cure and no hope for a life past two to five years from the time of their diagnosis.

Two to five years.

During those years, a person living with ALS can expect to lose the ability to move up to all voluntary muscles in their body, while their mind, senses and soul remain completely intact. They are told to "put their affairs in order," while they gradually become locked inside their own body. We would not wish this fate on even our worst enemies as it is cruel, barbaric and brutal.

There is still hope.

This month, we want to talk about the unbelievable realities of this disease and how it makes those impacted feel. And "those impacted" can mean anyone and everyone in the ALS community. We are sharing photos and videos on Facebook of people answering the question "How does ALS make you feel?" using just three words. Share your own picture or video using the hashtags #InThreeWords and #EndALS and encourage your friends and family to get involved too.

#SpreadTheWord

Let's #SpreadTheWord about ALS and raise enough funds for our most promising treatment AT-1501, so that one day soon our friends, neighbors, and loved ones will be spared the horror that is ALS.

 

 

Never Give Up!

 

Every Penny Counts

 

 

How to Participate

 

 

Learn More

  • What is ALS?: Learn about the disease, the diagnostic process and why prognoses vary broadly.
  • ALS Research: See how our unique and comprehensive approach leverages industry experience and a nonprofit mission – focused 100% on ALS research.
  • ALS Unfiltered: Join us for an expert-led presentation and candid conversation on ALS, current drug research, clinical trials, ALS resources and more taking place in a number of cities across the US during 2017.
  • Subscribe: Sign up to receive one email a month on ALS research and information about the community