Beth Hebron was diagnosed with ALS on October 1, 2013. Beth grew up as a competitive gymnast and avid snowboarder. She graduated from George Washington University in 2010 with a BA in English and minor in political science. Following graduation she continued to live in Washington, DC, working as a paralegal. Following her diagnosis, Beth made the decision to leave her job and move under her parents care in New Jersey.
On March 15, 2015, Beth enrolled in the Precision Medicine Program. That April she and her family launched Bet on Beth, raising over $80,000 for the Precision Medicine Program. Beth and her father, Bob, are well known advocates for ALS research as well as clinical trial reform. In addition to their work with ALS.net, they are actively involved with the Hope NOW for ALS movement and have taken a leadership role in working with the FDA to consider alternate endpoints in clinical trials.