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Hubben News Service




The Hubben News Service contains hundreds of the most recent scientific abstracts and relevant news articles related to ALS research gathered by dedicated volunteers. Explore the ways below:

  • Archive All the latest articles in one convenient list.
  • Publications The latest scientific abstracts compiled by Danny Dandignac
  • World Research Relevant news articles related to ALS research compiled by Jeff Lester
  • Alzforum News Latest Research News from the Alzheimer Research Forum.
  • Subscribe Will Hubben's ALS Research Digest delivers the latest ALS research and scientific news and abstracts to thousands of PALS, CALS, researchers, and clinicians. Subscribe now!

About Will Hubben
Will Hubben

Will Hubben had upper limb onset of sporadic ALS in November 1997. First diagnosed in July 1998 at age 44, he had a moderately slow progression, and during the course of his disease continued to live his life fully and was committed to getting relevant information out to the ALS community. Will sadly passed away in May 2004. The list will continue in his honor, carried on by patients, Danny Dandignac and Jeff Lester, also committed to his same cause. For more about Will, please visit his site.


Danny Dandignac Danny Dandignac will be responsible for ALS Research Publications. Danny was diagnosed with ALS in December 2000 at Baylor College of Medicine in Houston at the ALS center that is headed by Dr. Stanley Appel. Today, he does not have much muscle weakness, but has some muscle spasticity. Danny first found out about Will and the Digest in early 2001 and has been a subscriber ever since.

Danny was a paramedic for more than 23 years and lives with his wife Kelly and two boys in Texas. He is blessed with a terrific support network that consists of his nuclear and extended family which totals nearly 40 people. You can contact Danny by email.


Jeff Lester

Jeff Lester will be responsible for ALS News Worldwide. Jeff has followed Will for several years now. As a long-term ALS survivor, he too shares Will's commitment to LIVING with ALS. He is 37 and was diagnosed more than ten years ago. He has now been on a vent for more than five years. Since his diagnosis, Jeff was married to his wife Lisa and they have had two daughters.

Jeff and his wife are determined to live as normal a life as possible, despite ALS. Jeff has been involved with the fight against ALS on several fronts. He will also soon be a regular contributor for the new newsletters for Extra Hands for ALS. You can contact Jeff by email.

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