Sick morbid person.. U have no motives other then to start trouble.
Don't volunteer anything to this person folks. He's been kicked off several forums for what he's doing here. Which is insulting PALS and gleaming on their plights as suffering human beings.

On the first page you wrote:

"THREAD PURPOSE:
I started this thread to elicit remarks exploring how the life expectancy specification might be modified where bulbar onset occurs shortly or moderately following limb onset and offered a couple of plausible possibilities as 'food for thought' . . . I am not asking about whether its a good idea to give prognosis information regarding life expectancy in the first place . . . such is already what the medical practice does . . . but how the two onset types interrelate when they co-occur."

Now, magically, this thread is about pacers. I have no idea why you kept this "real" reason hidden. Either it is a lie - you simply wish to get you jollies trying to get personal conversations with PALS - in which case you are a low life scum, or that you chose to hide the real reason for this thread(pacers(???)) beneath a smokescreen of bulbar vs. UMN, fat calories, and the like - - in which case you also happen to be low life scum.

SO you are either making this crap up as you go or you choose to not tell us the real reason you start threads.

It doesn't matter which one you are because you end up the same regardless.

There is no legitimate reason for you to to grace this forum. May I suggest you bother the patients of another ailment? You might find a more receptive audience.

This crazy psychopath already pissed members of alsforums.com. Check the topic "shawnamarie weatherford". He (or she or it) insults people there.
What a horrible disqusting creature, Loner Who has nothing better to do than offend everyone here. And we give him all the attention he wants.
Do not talk to him, ignore his stupid remarks.
Masha1

sceptic, Do you have any thoughts to offer regarding how the expectancy formula might be modified to accommodate situations where both onset types co-occur? If this question does not interest you, it is certainly possible to ignore the thread.

I realize ". . . disparaging remarks, personal attacks . . ." have been added to this thread although they are prohibited by the rules. The only thing I am interested in regards to this thread are any thoughts related to the question asked.

I added the issue regarding calories because it is philosophically similar . . . both questions seek to resolve more precisely an already known finding in ALS research. I intended to raise it in a different thread but thought it might help clarify the issues here.

I ask you to respond constructively rather than caustically . . . do you have any thoughts to offer that might help us to understand these issues better?

re. above note

Bump.

DeeBee,
"Do you have a practical plan for your discoveries?"
Maybe you need to be more precise with this question, my intellectual property rights, if any, are assigned to another . . . very common 'business' practice . . . a 'practical plan' is 'not my job.' Regarding the question I opened this thread with, . . . I am writing a computer program to produce an estimated value of the pacer in an individual's treatment. I think the expectancy formula should be modified in the case of co-occurance of onsets . . . . You make an interesting point regarding the MNDA (though I know very little about the MNDA) yet, I feel ALS patients ought to have an opportunity to offer their thoughts on this question . . . so far only one seems to have done so, millstones, though not giving a suggestion presented their personal experience, which corroberating my perception the decades old expectancy rule can be misleading.

Lolo: RL Shafferr, no, Masha is not right.

Muon

You don't have to know anything about the MNDA to email them a technical question. Their answer will incorporate the experiences of many MND patients so you should get a 'complete' response.

DeeBee, Sorry that my reply is so long in the making . . . I have yet to figure out if I should do as you are requesting . . . this is because there is a difference between ALS and MND . . . MND is a class of disease (or one might say a classless set of diseases) whereas ALS is supposed to be one disease in particular (i.e. Lou Gehrig's). While Lou Gehrig probably only had one disease . . . ALS could easily be a syndrome common to more than one disease, which would make it a class of diseases, as MND is, but even then the two are not absolutely the same . . . another problem is the issue of international rather than domestic . . . I am not sure if I am authorized to use non-domestic resources in support of my efforts. I would have to do a formal inquiry. But, I am also 'suffering from' trying to resolve the question of 'why is this such a big deal that it has spawned significant consternation?' . . . is it simply a misunderstanding (perceived to be an attempt to figure out how to predict death rather than weighing the extent the pacer contributes value to ALS patients' life). Much more tension is created when I actually hadn't expected any. I thought people might be introspective and offer their opinion based on their own and other's experiences. I remain without conclusion regarding the matter.