Named for the people who have inspired our work, supported our mission, and fueled our spirit, the Leadership Awards honor
those who lead us in the battle against ALS. Awards are presented at the Leadership Summit. Submit a nomination via email
to email@example.com or
on our Facebook page. The deadline to submit nominations for this year's Leadership Awards is September 30, 2016.
Fran Delaney Challenge & Respect Award
This award is presented to a member of the ALS community who has shown true leadership within their community. The recipient
of this award continually questions the science and research surrounding ALS and helps drive new initiatives to battle this
disease. They challenge their community to take up the fight against ALS and help share the mission of ALS Therapy Development
Institute. Through their involvement in fundraising and awareness events, this person demonstrates strong leadership in their community.
2014 - Deb Quinn
2013 - Andy Rubenstein
2012 - Dr. Theresa Stephan Hains
2011 - Thomas Ohlson
2010 - Tim LaFollette
2009 - Michael Goldsmith
2008 - Emily Stoddard
2007 - Dave Virden, Jr.
2006 - General Tom Mikolajcik
2005 - Faye Magneson
Mary Lou Krauseneck Courage & Love Award
This award is presented to a member of the ALS community who has created a foundation of hope by maintaining a passion for live despite
all obstacles. The recipient of this award inspires their community to fight alongside them in the battle against ALS. They understand
the importance of keeping a positive attitude and remains committed to finding a cure. This person is a model of strength, courage, and
love in their community.
2014 - Steve & Hope Dezember
2013 - Jenny Gore Dwyer
2012 - Reverence Bill Hassel
2011 - Megan Mishork (posthumously)
2010 - Carla Zilbersmith
2009 - Michele Dupree
2008 - Carmen Hoyo, Pam Callahan
2007 - Darryl Goss, Robin Dorogusker
2006 - Shannon McLaughlin
2005 - Amy Whipple
Stephen Milne Adventurous Spirit Award
This award is presented to a member of the ALS community who strives to creatively combat ALS within their own community by searching for
innovative ways to fundraise. The recipient of this award consistently and bravely explores new ground in fighting the disease and raising
awareness. A commitment to excellence and ALS advocacy drives this person as they inspire their community to support the mission of ALS
Therapy Development Institute.
Sarah Coglianese, Maureen Ramirez and Team Godfather
2014 - Stephen Finger
2013 - Rich Cochran & Roger Petrone
2012 - Eric Engdahl
2011 - Sharon Isles
2010 - Eric Valor
2009 - CarolAnn Garrett
2008 - Mickey Butts
2007 - Jeff Repetto
2006 - Dick Sanderson, Brian Stanfield
2005 - Steve Lewis
Stephen Heywood Patients Today Award
This award is presented to a member of the ALS community who has proven to be a strong advocate for research and awareness. They consistently
stay abreast of current research trends both in the US and abroad. This person challenges their community to collectively fight this disease
while serving as an educator for those unfamiliar with ALS. They challenge ALS research institutions to focus on patients today in the hopes
of accelerating a treatment and cure. They serve as a role model for patients today to find strength and determination to fight this disease
each and every day.
Matt Bellina, Jay Smith
2014 - Anthony Carbajal, Pat Quinn
2013 - Kevin Swan
2012 - Peter Frates, Rob Tison (posthumously)
2011 - Frank Provost
2010 - Steve Saling
2009 - Corey Reich
2008 - Ken Patterson
2007 - Scott Stafne
2006 - Jon Blais
2005 - Joe Shambo, Matt Dowd
Friday, October 28, 2016
300 Technology Square
Cambridge, MA 02139
The lunch and cocktail reception occur at 100 Technology Square, which is next door to 300 Technology Square.
All buildings and rooms are wheelchair accessible. If you require assistance, please don’t hesitate to ask a
member of the team!
A comment on parking: There is on-street, metered parking, as well as a parking garage located
on Technology Square Drive. Parking will be validated. The garage does fill up quickly, even on a Friday, so
we encourage an early arrival.
To arrange a lab tour, please complete this form
and note that you will be coming in for the summit. We will do our best to accommodate everyone as best as
possible. Here is a link to request a tour of the Institute’s labs:
Schedule a Tour
There is a limited number of hotel rooms secured at the Sheraton Boston Hotel
(39 Dalton Street, Boston, MA 02199).
This block is being held in conjunction with our White Coat Affair gala, which will occur there on October 29, 2016.
To access this room block, you must call the hotel and provide them with the code "WCA Attendees" to access the
discounted rate. Attendees should plan to make their own transportation arrangements to and from the hotel.