#whatwouldyougive

AUGUST 1-8, 2017 Give up an ability to understand what life with ALS might be like.

 

A message from founder
Sarah Coglianese


Who is Sarah Coglianese?

 

#whatwouldyougive is a national campaign to build awareness of ALS (amyotrophic lateral sclerosis or Lou Gehrig's Disease) and raise funds for research at the ALS Therapy Development Institute (ALS TDI). It challenges people to give up an ability (e.g. voices, arms, hands, legs), to understand what life with ALS might be like.
Since its launch in 2015,
1,600 individuals
have raised $400k
to help bring us closer to a
treatment and cure for ALS.
 
THIS YEAR'S GOAL IS
$250,000
TO FUND THE ADVANCEMENT
OF PROMISING TREATMENTS
FOR ALS, LIKE AT-1501.

Take part as an individual or as a group/organization. Take a photo holding a #wwyg sign to share on social media, or take things up a notch with a more physical challenge!

#whatwouldyougive

Who is Sarah Coglianese?

Sarah Coglianese is 38 and has been living with ALS for the past 5 years. She used to be a runner and now she's in a wheelchair. That hasn't stopped her though, or even slowed her down in her fight to find a treatment for ALS. Through her #whatwouldyougive campaign and her Speed 4 Sarah blog, she has built national awareness of this disease and has raised hundreds of thousands of dollars for ALS research. Sarah lives in San Francisco with her husband Rob and feisty 7-year-old daughter Scarlett.

Why ALS TDI? What’s AT-1501?

ALS is a death sentence. That’s just not ok. But as the world's foremost drug discovery center focused solely on ALS, the ALS Therapy Development Institute has the greatest potential for a treatment and cure. It is working aggressively on advancing potential treatments including AT-1501, a novel antibody that acts in a highly targeted way to tamp down the immune system, and protects nerves from the progression of ALS. Significant funding is needed to take AT-1501 out of the lab freezer and into people like Sarah, who need and deserve to keep living. With 87% of every dollar donated going directly to ALS research at ALS TDI, your participation in #wwyg plays a significant role in removing the death sentence from ALS.

GIVE UP YOUR ARMS/HANDS

  • Have someone wash your face and brush your teeth
  • Have someone feed you meals
  • Have someone dress you
  • Have someone take notes for you in a meeting

 

GIVE UP YOUR VOICE

  • Type on your phone to communicate
  • Write on paper to communicate

GIVE UP YOUR LEGS

  • Use a wheelchair all day
  • Have someone lift you from a chair to the
    toilet every time you have to use it
  • Have someone lift you in and out of bed
  • Have someone open office doors for you