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ALS News & Stories

Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.

ALS News & Stories

Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.

ALS Research News

Friday, March 29, 2024
Learning from the Treatments that Fail: Why ALS TDI Publishes Negative Results
We don’t just publish our positive results. It can be equally important to inform the ALS research community about treatments that fail in our testing.
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Thursday, March 7, 2024
One Year of the ALS Research Collaborative (ARC)
One year since its debut, the ARC team at ALS TDI has marked several accomplishments and milestones, including collecting large amounts of data, launching ambitious research projects, and fostering new collaborations.
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Thursday, March 7, 2024
ALS Therapy Development Institute, Answer ALS, and Microsoft Announce Groundbreaking Data Sharing Collaboration
ALS Therapy Development Institute, Answer ALS, and Microsoft Announce Groundbreaking Data Sharing Collaboration
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From trial readouts to news from our lab, you can find all of the latest ALS research news here.

ALS TDI Community Blog

Monday, April 8, 2024
Sano Genetics Joins ALS TDI Town Hall to Discuss Genetic Testing for ALS
On Wednesday, April 3, 2024, researcher-turned-advocate Dr. Paul Wicks of Sano Genetics joined ALS TDI for a virtual town hall to discuss the "Light the Way" genetic testing program.
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Friday, April 5, 2024
Director John Rosman on Portraying ALS in his Film, "New Life"
Portraying a disease as complicated and devastating as ALS on film is no easy feat. But New Life’s writer and director John Rosman says that he took great care to make sure the film's depiction of ALS was accurate and respectful.
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Thursday, April 4, 2024
Jamie Heywood Looks Back on the Early Days of ALS TDI, 25 Years Later
As the founder and first leader of ALS TDI, Jamie Heywood oversaw its early growth from the basement of his parents’ Newton, MA home to one of the most trusted and respected institutions in ALS research.
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Blog posts and commentary pieces from ALS TDI and community members with topics ranging from funding ALS research to how ALS impacts the lives of community members.

ALS TDI Press Releases

Thursday, March 7, 2024
ALS Therapy Development Institute, Answer ALS, and Microsoft Announce Groundbreaking Data Sharing Collaboration
ALS Therapy Development Institute, Answer ALS, and Microsoft Announce Groundbreaking Data Sharing Collaboration
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Monday, July 31, 2023
The ALS Therapy Development Institute and Unite Genomics Partner to Integrate Electronic Health Records into the ALS Research Collaborative
Read the announcement below and attend the Town Hall event on August 9, 2023 to learn more about this collaboration.
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Wednesday, September 28, 2022
ALS Therapy Development Institute Announces Superior Rail & Iron Works, Inc. as First Title Sponsor of White Coat Affair Gala
Superior Rail & Iron Works, Inc. will be the first Title Sponsor of the White Coat Affair gala, being held on October 15, 2022, at the Boston Sheraton to raise funds for ALS research.
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A complete list of press releases from the ALS Therapy Development Institute.
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