We Love Data
Every person living with ALS is needed to find effective treatments for ALS. That is why our researchers created the Precision Medicine Program (PMP), a partnership with people living with ALS, and the most comprehensive translational research study in ALS.
If you or someone you know is enrolled in a clinical trial, trying an experimental treatment for ALS, or simply interested in tracking symptom progression, we recommend enrolling in our PMP. Participants are given access to their data through a secure online portal, while our scientists take a dive deep into their medical histories, family histories, genetics, biomarkers, and cell biology to better understand the processes that drive and influence ALS. To learn more, click here.