Friday, November 8, 2019
Renaissance Boston Waterfront Hotel
The Leadership Summit returns in 2019 with a focus on progress in the discovery and development of effective treatments for ALS. Based on feedback from prior events, the Summit will provide attendees with a more in-depth look at the science happening at the ALS Therapy Development Institute (ALS TDI) today. This will include updates on preclinical drug screening occurring in models of ALS, the identification of potential biomarkers of disease progression, the development of potential new clinical trial endpoints and the advancement of promising treatments into and through trials in people with ALS.
Leadership Summit

Join Us for the Weekend

ALS TDI has a line-up of other events on Leadership Weekend.
Thursday, November 7, 2019
Open House at the Lab
ALS Therapy Development Institute
300 Technology Square
Suite 400
Cambridge, MA 02139
Visit the lab, meet our researchers, and enjoy light refreshments. Email summit@als.net to schedule a lab tour and/or attend the Open House.
Friday, November 8, 2019
ALS TDI Leadership Summit
Renaissance Boston Waterfront Hotel
606 Congress Street
Boston, MA 02210
Learn about progress in the discovery and development of effective treatments for ALS. The Summit will provide an in-depth look at the science happening at ALS TDI today.
Saturday, November 9, 2019
White Coat Affair
Renaissance Boston Waterfront Hotel
606 Congress Street
Boston, MA 02210
The ALS Therapy Development Institute's White Coat Affair is an annual gala held in Boston, MA to celebrate our incredible ALS community and progress of ALS research.
Saturday, November 9, 2019
WCA After Party
Renaissance Boston Waterfront Hotel
606 Congress Street
Boston, MA 02210
Party with the ALS community late into the night! With an open bar, midnight feast and serious beats, the WCA After Party is the place to be! Register for the WCA After Party as a non-gala attendee or join the fun free of charge as a White Coat Affair ticket holder.
Leadership Awards
Leadership Awards
Named for the people who have inspired our work, supported our mission, and fueled our spirit, the Leadership Awards honor those who lead us in the battle against ALS. Awards are presented at the Leadership Summit.
While these awards are given by ALS TDI, they are given truly on behalf of the ALS community. All those to be recognized are nominated by the community itself. Each recipient exemplifies in their own way the many different ways in which members of the ALS community show leadership. For more information about each of the four awards, and past recipients, see below.
The ALS Therapy Development Institute is calling upon all in the ALS community to nominate individuals for this year's Leadership Awards.
Nominations can be emailed to summit@als.net, posted on our Facebook page or done through any member of the ALS TDI staff. Please include their name, current city and state, the award you are nominating them for, and roughly 100 words about why they are being nominated for that award. All nominations must be made by October 2, 2019 at 11:59pm ET. A committee of internal staff and scientists review all nominations, culminating in final selections.
Fran Delaney Challenge & Respect Award
This award is presented to a member of the ALS community who has shown true leadership by engaging the community to advocate for, and accelerate, research. Through involvement in fundraising and awareness events, this person demonstrates unique ability to organize and inspire others to help end ALS. They challenge those around them to join the fight against ALS, and actively spread awareness of the ALS Therapy Development Institute’s work and mission.
2018 - Jeff Swick & PHAALS Foundation. 2017 - Rick Marks. 2016 - Gosnell Family. 2015 - Beth Hebron. 2014 - Deb Quinn. 2013 - Andy Rubenstein. 2012 - Dr. Theresa Stephan Hains. 2011 - Thomas Ohlson. 2010 - Tim LaFollette. 2009 - Michael Goldsmith. 2008 - Emily Stoddard. 2007 - Dave Virden, Jr. 2006 - General Tom Mikolajcik. 2005 - Faye Magneson.
Mary Lou Krauseneck Courage & Love Award
This award is presented to a member of the ALS community who demonstrates unwavering courage and optimism. The recipient of this award selflessly leads by example to uplift and inspire those around them. They believe in the power of positivity and remain committed to finding treatments for ALS. This individual consistently serves as a model of strength, courage, and love in the ALS community.
2018 - Chris Curtin. 2017 - Collin & Emily Hadley. 2016 - Rusty Perry. 2015 - Bobby Forster. 2014 - Steve & Hope Dezember. 2013 - Jenny Gore Dwyer. 2012 - Reverence Bill Hassel. 2011 - Megan Mishork (posthumously). 2010 - Carla Zilbersmith. 2009 - Michele Dupree. 2008 - Carmen Hoyo, Pam Callahan. 2007 - Darryl Goss, Robin Dorogusker. 2006 - Shannon McLaughlin. 2005 - Amy Whipple.
Stephen Milne Adventurous Spirit Award
This award is presented to a member of the ALS community who strives to find new and innovative ways to fundraise, advocate, and raise awareness for ALS research. The recipient of this award constantly explores bold new approaches to engage others in the fight to end ALS. They are driven by a commitment to excellence in ALS advocacy as they inspire their community to support the mission of the ALS Therapy Development Institute.
2018 - Patty Haberstroh. 2017 - Michael “Boomer” Wallace. 2016 - Smith & Hanses Families. 2015 - Sarah Coglianese, Maureen Ramirez and Team Godfather. 2014 - Stephen Finger. 2013 - Rich Cochran & Roger Petrone. 2012 - Eric Engdahl. 2011 - Sharon Isles. 2010 - Eric Valor. 2009 - CarolAnn Garrett. 2008 - Mickey Butts. 2007 - Jeff Repetto. 2006 - Dick Sanderson, Brian Stanfield. 2005 - Steve Lewis.
Stephen Heywood Patients Today Award
This award is presented to a person with ALS who has been an exemplary community advocate for ALS research and awareness. They are knowledgeable of current research, willing to inform the community about research trends and advancements, and eager to serve as an educator for those unfamiliar with ALS. They challenge ALS researchers to remain firmly planted within the ALS community and focus on people with ALS today, in the hope of accelerating treatments and cures as quickly as possible. This person is a role model for people with ALS, encouraging them to find the strength and determination to fight this disease through research each and every day.
2018 - Cory Burell. 2017 - Osiel & Bella Mendoza. 2016 - Andrea Lytle Peet. 2015 - Matt Bellina, Jay Smith. 2013 - Kevin Swan. 2012 - Peter Frates, Rob Tison (posthumously). 2011 - Frank Provost. 2010 - Steve Saling. 2009 - Corey Reich. 2008 - Ken Patterson. 2007 - Scott Stafne. 2006 - Jon Blais. 2005 - Joe Shambo, Matt Dowd.

Thank You to Our Sponsors
AAFCPAs
Biogen
Cytokinetics
Edinburg Rotary
Google
Insource Services, Inc
Joseph Gann Jewelers
Mitsubishi Tanabe Pharma America
Nelson Mullins
NHBL-39
Pink Whales
Sandra Green
Superior Rail & Iron Works
The Heywood Family
×
Combined Federal Campaign
Work for the Federal Government? Support ALS
research by joining the Combined Federal Campaign.