Friday, November 16, 2018
Named for the people who have inspired our work, supported our mission, and fueled our spirit, the Leadership Awards honor those who lead
us in the battle against ALS. Awards are presented at the Leadership Summit.
While these awards are given by ALS TDI, they are given truly on behalf of the ALS community. All those to be recognized are nominated by
the community itself. Each recipient exemplifies in their own way the many different ways in which members of the ALS community show
leadership. For more information about each of the four awards, and past recipients, see below.
The ALS Therapy Development Institute is calling upon all in the ALS community to nominate individuals for this year's Leadership Awards!!!
Nominations can be emailed to firstname.lastname@example.org,
posted on our Facebook page or done through any member of the ALS TDI staff. Please include their name, current city and state, the award you are nominating
them for, and roughly 100 words about why they are being nominated for that award. All nominations must be made by October 6, 2018 at 5:30pm ET. A committee
of internal staff and scientists review all nominations, culminating in final selections.
Fran Delaney Challenge & Respect Award
This award is presented to a member of the ALS community who has shown true leadership within their community. The recipient
of this award continually questions the science and research surrounding ALS and helps drive new initiatives to battle this
disease. They challenge their community to take up the fight against ALS and help share the mission of ALS Therapy Development
Institute. Through their involvement in fundraising and awareness events, this person demonstrates strong leadership in their community.
2018 - Jeff Swick & PHAALS Foundation
2017 - Rick Marks
2016 - Gosnell Family
2015 - Beth Hebron
2014 - Deb Quinn
2013 - Andy Rubenstein
2012 - Dr. Theresa Stephan Hains
2011 - Thomas Ohlson
2010 - Tim LaFollette
2009 - Michael Goldsmith
2008 - Emily Stoddard
2007 - Dave Virden, Jr.
2006 - General Tom Mikolajcik
2005 - Faye Magneson
Mary Lou Krauseneck Courage & Love Award
This award is presented to a member of the ALS community who has created a foundation of hope by maintaining a passion for live despite
all obstacles. The recipient of this award inspires their community to fight alongside them in the battle against ALS. They understand
the importance of keeping a positive attitude and remains committed to finding a cure. This person is a model of strength, courage, and
love in their community.
2018 - Chris Curtin
2017 - Collin & Emily Hadley
2016 - Rusty Perry
2015 - Bobby Forster
2014 - Steve & Hope Dezember
2013 - Jenny Gore Dwyer
2012 - Reverence Bill Hassel
2011 - Megan Mishork (posthumously)
2010 - Carla Zilbersmith
2009 - Michele Dupree
2008 - Carmen Hoyo, Pam Callahan
2007 - Darryl Goss, Robin Dorogusker
2006 - Shannon McLaughlin
2005 - Amy Whipple
Stephen Milne Adventurous Spirit Award
This award is presented to a member of the ALS community who strives to creatively combat ALS within their own community by searching for
innovative ways to fundraise. The recipient of this award consistently and bravely explores new ground in fighting the disease and raising
awareness. A commitment to excellence and ALS advocacy drives this person as they inspire their community to support the mission of ALS
Therapy Development Institute.
2018 - Patty Haberstroh
2017 - Michael "Boomer" Wallace
2016 - Smith & Hanses Families
2015 - Sarah Coglianese, Maureen Ramirez and Team Godfather
2014 - Stephen Finger
2013 - Rich Cochran & Roger Petrone
2012 - Eric Engdahl
2011 - Sharon Isles
2010 - Eric Valor
2009 - CarolAnn Garrett
2008 - Mickey Butts
2007 - Jeff Repetto
2006 - Dick Sanderson, Brian Stanfield
2005 - Steve Lewis
Stephen Heywood Patients Today Award
This award is presented to a member of the ALS community who has proven to be a strong advocate for research and awareness. They consistently
stay abreast of current research trends both in the US and abroad. This person challenges their community to collectively fight this disease
while serving as an educator for those unfamiliar with ALS. They challenge ALS research institutions to focus on patients today in the hopes
of accelerating a treatment and cure. They serve as a role model for patients today to find strength and determination to fight this disease
each and every day.
2018 - Cory Burell
2017 - Osiel & Bella Mendoza
2016 - Andrea Lytle Peet
2015 - Matt Bellina, Jay Smith
2013 - Kevin Swan
2012 - Peter Frates, Rob Tison (posthumously)
2011 - Frank Provost
2010 - Steve Saling
2009 - Corey Reich
2008 - Ken Patterson
2007 - Scott Stafne
2006 - Jon Blais
2005 - Joe Shambo, Matt Dowd
Thursday, November 15, 2018
Want to see the science happening? Come into ALS TDI for a lab tour! We will be holding lab tours on
Thursday, November 15 at 3 p.m. A member of the ALS TDI will give
you an intimate look into the inner workings of the research happening today toward the discovery and
development of effective treatments for ALS. The tour will start with a brief overview of ALS TDI in a
conference room followed by a tour of the labs at ALS TDI. The entire experience lasts approximately
90mins. ALS TDI is entirely accessible, so people with ALS are very welcome to attend lab tours.
From 5 p.m. - 7 p.m., you can come meet the ALS TDI team at the lab! Refreshments and snacks will be provided.
Email us at email@example.com
to learn more or sign up for a lab tour or the Open House. If you indicated on your summit registration that you would like
to attend a lab tour, a member of our team will reach out to you to determine which time is best for you.
Friday, November 16, 2018
Renaissance Boston Waterfront Hotel
606 Congress Street
Boston, MA 02210
The entire Summit occurs at the hotel, which is located just a short car ride from Logan International Airport, or local public transit.
There is a limited number of hotel rooms secured at the Renaissance Boston Waterfront Hotel
(606 Congress Street, Boston, MA 02210).
This block is being held in conjunction with our White Coat Affair gala, which will occur there on November 17, 2018.
To access this room block, you must call the hotel and provide them with the code "White Coat Affair Attendees" to
access the discounted rate.