Hi,
I would like to ask you and very appreciate your answer. Nearly 4 years ago, I have been diagnosed with benign fasciculations. I have had them everywhere but never constantly, just 10 seconds in arm...then nothing for hour...then 5 seconds in leg etc. Got 2 EMGs done after 2 years, entirely clean.
4 months ago I noticed twitching of the tongue for the first time. It lasted few seconds but since then I have experienced it several times. Its clearly visible and felt the same way as e.g. eye tic...just clearly feel of twitching.
Some PALS I know told me they never noticed it but they could see it in mirror. Doctor told me it is unusual but can happen.
I have no talking problems or swallowing issues.
THank you in advance

Tongue fasics are a sign of neurological problems..I see and feel mine..Ron

I had them before speech problems..mine are constant..there are many diseases that mimic ALS . I wouldn't think you have it.. ALS does not come and go..once it presents itself, it's relentless in its symptoms..You don't have it...Ron

Had..my symptoms started with slurred speech..tongue fasics later..after one year a few twitches and fasics in limbs..I had no limb involvement for 3-4 years.. In 4-5 year I had weak legs, and arms.about 50 percent loss of strength. Balance went next..I have no atrophy,. I'm eight years with ALS..walk with walker. Can't talk..I eat ok..YOU DONT HAVE IT..keep saying that..Ron

Found this link just in case...
http://www.kennedysdisease.org/about.html

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“It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood, who strives valiantly; who errs and comes short again and again; because there is not effort without error and shortcomings; but who does actually strive to do the deed; who knows the great enthusiasm, the great devotion, who spends himself in a worthy cause, who at the best knows in the end the triumph of high achievement and who at the worst, if he fails, at least he fails while daring greatly. So that his place shall never be with those cold and timid souls who know neither victory nor defeat.”

OOOORUAHH !!!!!

Ron: Interesting and great it is so slow in your case. The man I was talking about was also diagnosed by great medical center but after 10 years they changed his dg to Kenney disease.
Michael.Kastner: Do you feel your tongue twitching all the time or just see it and feel "vibration like" feelings (one patient describe that to me). Thank you

Ron: Well, anyway I am happy to know there are fighters like you and so slowly progressing cases. Thank you for clarification of your tongue twitching!

Yup and keep a good positive attitude! In my opinion thats half of the ball game here.

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“It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood, who strives valiantly; who errs and comes short again and again; because there is not effort without error and shortcomings; but who does actually strive to do the deed; who knows the great enthusiasm, the great devotion, who spends himself in a worthy cause, who at the best knows in the end the triumph of high achievement and who at the worst, if he fails, at least he fails while daring greatly. So that his place shall never be with those cold and timid souls who know neither victory nor defeat.”

OOOORUAHH !!!!!