Hello everybody.
I m from Turkey and 29 years old.
I just want some help.

Before my story i pray all als and other illness people.I hope god will help everybody

Everything started 4 months ago.I felt numbness on my head and on my right arm for 3 days.Then i went to neorology doctor and she wanted some blood test coz she had doubt about b12.

Well.Blood results said that my b12 vitamine is not enough.Then i had injection for 2 months and my b12 is okay now.
In this time i had alot of twitchs and numbness then these things gone away.I had some throat problem too.Its like a somethings in my throat or somebody chocks me.Then all sympthoms gone for a time.

But it started again.Some twitchs and weakness.They made some blood test and checked my ck.Ck is okay but i couldnt be sure.Visited another nerology doctor and he said that u are in major depression and i started to use paxil.
But this pill made me worse and for being sure i wanted EMG test from them.They made it and everythings okay.No problem in my EMG test.
After it i thought that all is okay now but just in one night like somebody stolen my power from my legs and arms.My knees inside as empty.I have no power on my arms and legs.Or feel like that.I cant manage myself while walking in the street sometimes.But i can carry any heavy things, can run and still powerful.No any losing power but i feel so weak.

Then crazy twitchs started again with cramps.Visited another nerology doctor and blood results are again ok.He said that you are powerful and energic.I asked him that so why do i feel as a dead body? what about cramps and twitchs on my body?He said that coz of depression.

I didnt believe him and visited another doctor and said that i have cramps,twitchs and weakness.He made some tests and said that its depression coz you are so powerfull.

Well.I visited 12 different doctors.Nerology,throat,psychiatrist.All of them said same things.(YOU ARE IN JUST HUGE DEPRESSION)

But i dont belive them.How can it be?I feel like a dead body.I have twitchs but not so strong now.I have cramps but these cramps come and go sometimes.I have problem on my throat.Like a somethings there and chocks me.And on my arms like a fire.They are burning.But my legs and feet so cold.My legs and arms itching as a crazy.

I wrote a letter to Turkish Als community and admin answered me.By the way admin is an eye doctor and als ill person since 1990.He said that dont worry coz you cant be als.But i m still not sure.

So what is that? I really dont understand anything and going to mad slowly slowly.Yes i m in huge depression coz lost my job but a depression can make these sympthoms?

Can ALS be so fast? Can it be ALS if blood results and EMG tests are ok ,can this illness hide itself? What can it be depression or any other illness

I believe in god and even if i have als i can accept it so easy.I just bored my this unknown situation.Just want to be sure whats that?ALS,Depression or any other illness?

Sorry for my poor english.
And thanks for answer already.
Have nice day to all usa
Greetings from Turkey...

Lotusturk, it was not clear from your post whether you lost your job and then developed these symptoms, or lost your job because you developed these symptoms. It was also not clear if your job was so stressful that the stress might have led to symptoms such as you describe.

The symptoms (other than weakness) which you describe are not typical of depression. Since you acknowledge having depression you would probably be willing to ascribe those symptoms to depression if the symptoms were really due to the depression. Since you don't believe the symptoms are caused by depression, neither do I.

There are no diagnostic tests to prove you have ALS, unless genetic testing shows you have known familial type, which however is a small percentage of ALS patients who usually present with typical symptoms.

There is a lot of variability among ALS patients, since ALS is not a specific disease but just a category for patients with upper and lower motor neuron symptoms that the doctor can't explain in terms of some other definite disease. However ALS symptoms don't come and go suddenly as you describe, and aren't normally accompanied by such prominent sensory disturbances that you describe. Another thing that isn't typical of ALS is feeling weak and yet having full strength.

The doctor says, "don't worry, you don't have ALS." Easy for him to say! I don't think you have ALS, but you obviously have reason to worry if your body is malfunctioning as you describe.

I hope someone on the forum here can offer some informed guesses as to what your medical problem might be, esp. since you report that EMG and bloodwork are normal. Ron (Schafferr) already suggested low potassium as a possibility.

Wishing you the best,

--Dave J.

Thanks for the answer and get healthy soon.
I dont think so its about potassium coz my blood tests ok.
I think if my potassium was low that it would show itself in blood test.
Weakness few times gone and came back.
But at 22 april just in one night my power gone from my legs and arms.
My feet and legs become so cold but my arms are burning.
I have alot of pains on my body.
Is it possible in ALS?
i mean being cold and warm in same time?
And i have itch too as a crazy on my arms and legs.
thanks for the answer already

Greetings from Turkey

Hi, Lotusturk and welcome here. As you know everything is relative. I mean you're lucky because most probably you haven't ALS. Having a mental illness isn't good also, but at least hope of healing is much higer. I don't know which are the symptoms of a depression, but I know for sure that being so tired is one of them.

You have to recognize that having visited 12 neuros isn't a good symptom, Lotus. You're a bit obsessed, don't you?

I know this is easier to say than to do, but make the most of your strenght and take a ride on a bike or make a mild (or strong if you are able!) exercise so you can forget for a while your health. Think that human body is able to cure itself a lot of diseases and who knows, if you don't pay much attention, if you don't get obsessed perhaps gradually you recover your health.

Believe Ron and Dave, your disease fortunately isn't ALS, and celebrate it.

Cristina

Hello Rl Schafferr and thanks for the answer.
I really feel sorry coz steal your time with my questions.
I know that in ALS sympthoms dont come and go.
But my weakness continue since april 22.
Problem is that i have doubt this is bulbar als coz my throat is worse and i have never felt like that before.
Somethings in my throat and that things are becoming worse every new day.
They were on my throat but now close to my tongue and so fast.

Greetings from Turkey.

Go and check yourself for all infectious diseases there are. I recommend checking for Borrelia and Chlamydia Pneu. Do you feel tired after a full nights sleep? If so then you should definently continue to nag your doctors and get to the solution. Damn it I waited for 4 years with fatigue and it brought me to Bulbar ALS. I had three probable infections in my body which are now having a feast in my brain (according to my own theory) Get to the bottom of this, if you d like search for Augsburg Borreliose Centrum and check your values.

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http://borreliawenttofar.wordpress.com

Hey Lotusturk. That is about the same feeling as I have had for 8 years. It can be because of oxygen deprivation and in the end your body will shut down. You should definently go and check yourself for, asthma, because if this is a chlamydia pneu infection it will jump directly in to your throat causing you to have a much harder time to breath when you sleep. About your throat. For me I had a lot of fluids in my throat that I attributed to my allergies.

You said you ve had this since a few months. Well you are hopefully going to be just fine, this is not yet chronic I believe. Go on antibiotics for 3 weeks 200mg of Doxyferm one in the morning and one in the night. And hopefully your problems will clear up. I ve heard it is easy to get doxy in Turkey so it is worth taking a shot. Also while taking doxy don t stay in the sun and buy a probiotic which will help your stomache while you are on the antibiotics.

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http://borreliawenttofar.wordpress.com

No I do not think you have Bulbar.

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http://borreliawenttofar.wordpress.com

Lotus...we can't diagnose you, or should we try. But you keep thinking you have ALS , and you just might talk yourself into it.
Ask yourself " what if you do have it? " there's not a thing you can do. So I'd live while I could if I was you.

And good luck , my friend..I wish you the best..from South Carolina..USA.