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ALS Forum

Welcome to the ALS Forum! This forum is a community-driven space for people impacted by ALS to exchange information, ask questions, and share experiences.

Please Note:

While the ALS Therapy Development Institute (ALS TDI) continues to provide access to this forum's archives and the ability to create new discussions, we no longer actively monitor or moderate content.

For the most up-to-date and reliable information about ALS research, you can visit our website or reach out to us at info@als.net.

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ALS Research & Treatments

(46 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,292

120,806

Yesterday at 11:19:49 AM
in Maybe your bored, stuck inside all day . . .
by mdrdan

Living with ALS

(16 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,931

16,197

7/21/2026 12:07:08 PM
in My ALS Book
by mdrdan

ALS Advocacy

(3 Viewing)

Discuss strategies for increasing public funding and attention

519

3,253

6/4/2026 3:22:13 AM
in CDC ALS Registry in the US
by blueinsincere

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

352

1/4/2026 4:20:47 AM
in Als a fascia injury
by dave.swati2@gmail.com

Philosophy and Feedback

(3 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

Postings deemed irrelevant to ALS by the ALS TDI Research Team

292

3,595

4/1/2026 8:29:51 AM
in When Should You Consider Professional Movement...
by ntuc

Forum
ALS Topics
ALS Research & Treatments (46 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,292 Posts: 120,806
Latest Post: Yesterday at 11:19:49 AM in Maybe your bored, stuck inside all day . . . by mdrdan
Living with ALS (16 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,931 Posts: 16,197
Latest Post: 7/21/2026 12:07:08 PM in My ALS Book by mdrdan
ALS Advocacy (3 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 519 Posts: 3,253
Latest Post: 6/4/2026 3:22:13 AM in CDC ALS Registry in the US by blueinsincere
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 64 Posts: 352
Latest Post: 1/4/2026 4:20:47 AM in Als a fascia injury by dave.swati2@gmail.com
Philosophy and Feedback (3 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 292 Posts: 3,595
Latest Post: 4/1/2026 8:29:51 AM in When Should You Consider Professional Movement... by ntuc

Latest Posts
Maybe your bored, stuck inside all day . . . by mdrdan (ALS Research & Treatments)	Yesterday at 11:19:49 AM
My ALS Book by mdrdan (Living with ALS)	7/21/2026 12:07:08 PM
Open Letter Concerning a Pathogenic Hypothesis for ALS by pingheng_pan (ALS Research & Treatments)	7/21/2026 8:38:10 AM
UREA by TerryG (ALS Research & Treatments)	7/20/2026 8:41:58 PM
Safety issue . . . Early Alert: Ventilator Issue from Resmed by mdrdan (ALS Research & Treatments)	7/16/2026 10:29:10 AM
Decisions, decisions: When to share the news that you have ALS {from Dagmar Munn} by mdrdan (ALS Research & Treatments)	7/15/2026 11:45:54 AM
The INTENT Study of Synchron’s Brain-Computer Interface (BCI) by mdrdan (ALS Research & Treatments)	7/14/2026 2:31:59 PM
Abilities Expo in Houston (from 31 July -> 2 August) by mdrdan (ALS Research & Treatments)	7/14/2026 2:26:29 PM
much more complete chart . . . by mdrdan (ALS Research & Treatments)	7/14/2026 12:15:57 PM
A New Pathogenesis Theory of ALS by mdrdan (ALS Research & Treatments)	7/14/2026 12:09:02 PM
Slow-wave Sleep Loss Is the Root of ALS & Broca’s Aphasia by pingheng_pan (ALS Research & Treatments)	7/13/2026 10:54:06 AM
New Possible treatment by TerryG (ALS Research & Treatments)	7/11/2026 7:32:39 PM
Glint of light in therapy for deadly ALS after decades of struggle by TerryG (ALS Research & Treatments)	7/10/2026 2:02:54 AM
Etiology of ALS: Chronic deep sleep disorder in the right brain by TerryG (ALS Research & Treatments)	7/9/2026 10:27:20 PM
Assignment Help Sydney for Urban Planning Students by Thiagojk (ALS Research & Treatments)	7/9/2026 12:19:59 AM

Active Users
	75 active users - 0 members, 75 guests. Most users ever online was 3069, 5/23/2023 2:50:35 PM.
Statistics
	There are 145,492 posts in 12,282 topics in 6 forums. Last post Yesterday at 11:19:49 AM by mdrdan. We have 46,664 registered members. The newest member is sadiebogiesam.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (46 Viewing) Discuss the latest ALS-related scientific and medical findings	9,292	120,806	Yesterday at 11:19:49 AM in Maybe your bored, stuck inside all day . . . by mdrdan
	Living with ALS (16 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,931	16,197	7/21/2026 12:07:08 PM in My ALS Book by mdrdan
	ALS Advocacy (3 Viewing) Discuss strategies for increasing public funding and attention	519	3,253	6/4/2026 3:22:13 AM in CDC ALS Registry in the US by blueinsincere
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	64	352	1/4/2026 4:20:47 AM in Als a fascia injury by dave.swati2@gmail.com
	Philosophy and Feedback (3 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS Postings deemed irrelevant to ALS by the ALS TDI Research Team	292	3,595	4/1/2026 8:29:51 AM in When Should You Consider Professional Movement... by ntuc