ALS Forums

ALS Forum

Welcome to the ALS Forum! This forum is a community-driven space for people impacted by ALS to exchange information, ask questions, and share experiences.

Please Note:

While the ALS Therapy Development Institute (ALS TDI) continues to provide access to this forum's archives and the ability to create new discussions, we no longer actively monitor or moderate content.

For the most up-to-date and reliable information about ALS research, you can visit our website or reach out to us at info@als.net.

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ALS Topics

ALS Research & Treatments

(105 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,300

120,837

Yesterday at 2:34:42 AM
in Enhancing Tofersen
by TerryG

Living with ALS

(4 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,931

16,198

Yesterday at 3:41:51 AM
in My ALS Book
by syscoshims221111

ALS Advocacy

(4 Viewing)

Discuss strategies for increasing public funding and attention

519

3,253

6/4/2026 3:22:13 AM
in CDC ALS Registry in the US
by blueinsincere

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

352

1/4/2026 4:20:47 AM
in Als a fascia injury
by dave.swati2@gmail.com

Philosophy and Feedback

(1 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(3 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

292

3,596

8/6/2026 2:38:55 AM
in Bitcoin (and why it matters here)
by TerryG

Forum
ALS Topics
ALS Research & Treatments (105 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,300 Posts: 120,837
Latest Post: Yesterday at 2:34:42 AM in Enhancing Tofersen by TerryG
Living with ALS (4 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,931 Posts: 16,198
Latest Post: Yesterday at 3:41:51 AM in My ALS Book by syscoshims221111
ALS Advocacy (4 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 519 Posts: 3,253
Latest Post: 6/4/2026 3:22:13 AM in CDC ALS Registry in the US by blueinsincere
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 64 Posts: 352
Latest Post: 1/4/2026 4:20:47 AM in Als a fascia injury by dave.swati2@gmail.com
Philosophy and Feedback (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (3 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 292 Posts: 3,596
Latest Post: 8/6/2026 2:38:55 AM in Bitcoin (and why it matters here) by TerryG

Latest Posts
My ALS Book by syscoshims221111 (Living with ALS)	Yesterday at 3:41:51 AM
Enhancing Tofersen by TerryG (ALS Research & Treatments)	Yesterday at 2:34:42 AM
Dallas Buyers Club for ALS by TerryG (ALS Research & Treatments)	8/28/2026 10:28:32 PM
Unifying consent standards for implantable brain-computer interfaces by mdrdan (ALS Research & Treatments)	8/28/2026 11:35:34 AM
Maybe your bored, stuck inside all day . . . by Uscopper (ALS Research & Treatments)	8/26/2026 4:10:11 AM
much more complete chart . . . by mdrdan (ALS Research & Treatments)	8/25/2026 11:40:50 AM
Electric wheelchair explosion caught on camera in Florida by mdrdan (ALS Research & Treatments)	8/23/2026 6:30:25 PM
Enhancing Edaravone by TerryG (ALS Research & Treatments)	8/22/2026 1:19:15 AM
Enhancing Riluzole by TerryG (ALS Research & Treatments)	8/21/2026 10:27:47 PM
Breathing Circuit Set Recall: Hamilton Medical Removes Breathing Circuit Set by mdrdan (ALS Research & Treatments)	8/13/2026 10:47:04 AM
UREA by TerryG (ALS Research & Treatments)	8/11/2026 11:23:41 PM
Voice Back by mdrdan (ALS Research & Treatments)	8/7/2026 2:42:28 PM
Bitcoin (and why it matters here) by TerryG (Irrelevant to ALS)	8/6/2026 2:38:55 AM
Watch how it moves - this $150,000 robot feels almost too human by mdrdan (ALS Research & Treatments)	8/5/2026 10:04:56 AM
Abilities Expo in Houston (from 31 July -> 2 August) by mdrdan (ALS Research & Treatments)	7/29/2026 2:22:44 PM

Active Users
	48 active users - 0 members, 48 guests. Most users ever online was 3069, 5/23/2023 2:50:35 PM.
Statistics
	There are 145,525 posts in 12,290 topics in 6 forums. Last post Yesterday at 3:41:51 AM by syscoshims221111. We have 46,805 registered members. The newest member is isabel.rybalnik@yahoo.com.

ALS Forum

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (105 Viewing) Discuss the latest ALS-related scientific and medical findings	9,300	120,837	Yesterday at 2:34:42 AM in Enhancing Tofersen by TerryG
	Living with ALS (4 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,931	16,198	Yesterday at 3:41:51 AM in My ALS Book by syscoshims221111
	ALS Advocacy (4 Viewing) Discuss strategies for increasing public funding and attention	519	3,253	6/4/2026 3:22:13 AM in CDC ALS Registry in the US by blueinsincere
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	64	352	1/4/2026 4:20:47 AM in Als a fascia injury by dave.swati2@gmail.com
	Philosophy and Feedback (1 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (3 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	292	3,596	8/6/2026 2:38:55 AM in Bitcoin (and why it matters here) by TerryG