ALS Forums

ALS Forum

Welcome to the ALS Forum! This forum is a community-driven space for people impacted by ALS to exchange information, ask questions, and share experiences.

Please Note:

While the ALS Therapy Development Institute (ALS TDI) continues to provide access to this forum's archives and the ability to create new discussions, we no longer actively monitor or moderate content.

For the most up-to-date and reliable information about ALS research, you can visit our website or reach out to us at info@als.net.

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ALS Research & Treatments

(46 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,273

120,769

6/2/2026 10:53:50 AM
in US FDA MAUDE database remains out of service . . ....
by mdrdan

Living with ALS

(19 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,931

16,194

5/18/2026 7:03:44 PM
in My ALS Book
by mdrdan

ALS Advocacy

(5 Viewing)

Discuss strategies for increasing public funding and attention

519

3,253

Yesterday at 3:22:13 AM
in CDC ALS Registry in the US
by blueinsincere

Military Service and ALS

(4 Viewing)

Discuss issues relevant to ALS incidence in the military and veteran population

352

1/4/2026 4:20:47 AM
in Als a fascia injury
by dave.swati2@gmail.com

Philosophy and Feedback

(2 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(5 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

292

3,595

4/1/2026 8:29:51 AM
in When Should You Consider Professional Movement...
by ntuc

Forum
ALS Topics
ALS Research & Treatments (46 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,273 Posts: 120,769
Latest Post: 6/2/2026 10:53:50 AM in US FDA MAUDE database remains out of service . . .... by mdrdan
Living with ALS (19 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,931 Posts: 16,194
Latest Post: 5/18/2026 7:03:44 PM in My ALS Book by mdrdan
ALS Advocacy (5 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 519 Posts: 3,253
Latest Post: Yesterday at 3:22:13 AM in CDC ALS Registry in the US by blueinsincere
Military Service and ALS (4 Viewing)
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 64 Posts: 352
Latest Post: 1/4/2026 4:20:47 AM in Als a fascia injury by dave.swati2@gmail.com
Philosophy and Feedback (2 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (5 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 292 Posts: 3,595
Latest Post: 4/1/2026 8:29:51 AM in When Should You Consider Professional Movement... by ntuc

Latest Posts
CDC ALS Registry in the US by blueinsincere (ALS Advocacy)	Yesterday at 3:22:13 AM
US FDA MAUDE database remains out of service . . . by mdrdan (ALS Research & Treatments)	6/2/2026 10:53:50 AM
Best Ivermectin 12mg Tablets \| Safe & Reliable Healthcare by genericusa (ALS Research & Treatments)	5/27/2026 3:23:56 AM
much more complete chart . . . by mdrdan (ALS Research & Treatments)	5/26/2026 12:10:51 PM
Team Gleason makes Forbes Accessibility 200 list! by mdrdan (ALS Research & Treatments)	5/19/2026 4:13:26 PM
My ALS Book by mdrdan (Living with ALS)	5/18/2026 7:03:44 PM
New Possible treatment by mdrdan (ALS Research & Treatments)	5/13/2026 12:52:23 PM
Herpes virus mimicking ALS by mdrdan (ALS Research & Treatments)	5/5/2026 3:33:38 PM
Ten Cancer-Related Breakthroughs Giving Us Hope in 2026 by mdrdan (ALS Research & Treatments)	4/28/2026 3:37:38 PM
NEALS Webinar: Culinary Strategies to Optimize Nutrition in ALS, Th. 30 Apr 2026 by mdrdan (ALS Research & Treatments)	4/22/2026 12:48:40 PM
Isolated pulmonary recovery in a veteran with late stage bulbar ALS following edaravone treatment and cessation by mdrdan (ALS Research & Treatments)	4/19/2026 2:31:27 PM
30 Year Impact Report from NEALS by mdrdan (ALS Research & Treatments)	4/16/2026 10:17:45 AM
Ventilator Correction: Philips Issues Correction for Trilogy Evo Platform Ventilators by mdrdan (ALS Research & Treatments)	4/16/2026 9:25:03 AM
Former Kansas Supreme Court Justice Evelyn Wilson dies after ALS battle by mdrdan (ALS Research & Treatments)	4/6/2026 9:27:36 AM
Scientist with rare ALS genetic mutation looks to experimental treatment (FUS) by mdrdan (ALS Research & Treatments)	4/6/2026 9:22:44 AM

Active Users
	95 active users - 0 members, 95 guests. Most users ever online was 3069, 5/23/2023 2:50:35 PM.
Statistics
	There are 145,452 posts in 12,263 topics in 6 forums. Last post Yesterday at 3:22:13 AM by blueinsincere. We have 46,505 registered members. The newest member is udaipurkamgirl01.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (46 Viewing) Discuss the latest ALS-related scientific and medical findings	9,273	120,769	6/2/2026 10:53:50 AM in US FDA MAUDE database remains out of service . . .... by mdrdan
	Living with ALS (19 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,931	16,194	5/18/2026 7:03:44 PM in My ALS Book by mdrdan
	ALS Advocacy (5 Viewing) Discuss strategies for increasing public funding and attention	519	3,253	Yesterday at 3:22:13 AM in CDC ALS Registry in the US by blueinsincere
	Military Service and ALS (4 Viewing) Discuss issues relevant to ALS incidence in the military and veteran population	64	352	1/4/2026 4:20:47 AM in Als a fascia injury by dave.swati2@gmail.com
	Philosophy and Feedback (2 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (5 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	292	3,595	4/1/2026 8:29:51 AM in When Should You Consider Professional Movement... by ntuc