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Article
The Periodicals: Volume 19 Issue 7
July 16, 2018
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*|MC_PREVIEW_TEXT|*
News from the ALS Therapy Development Institute
Volume 19 Issue 7 | July 16, 2018
“I have been living with ALS for four years, but ALS doesn’t stop me from participating in the Trek. This year, I rode the last 9 miles on my trike. Crossing the finish line to hundreds of screaming supporters evoked a feeling I won’t soon forget.”
– Andrea Peet
We're Not There Yet
Recently, hundreds of people rode bikes as part of the Tri-State Trek 270-mile ride to end ALS! This included many people with ALS riding the last nine miles, including Andrea, Bobby Forster, Lisa Cherno and Andrew Niblock. This year's Trek has raised over $650K, and while this is quite the accomplishment, ALS TDI has a lot of work to do to reach its goal of $1 million. To help us reach that goal, click
here
to donate.
ALS and the Art of Communication
This summer, ALS TDI welcomes intern Betsy Macdonnell to the Communications team, and she's doing great work! She wrote this piece about her grandmother, whom she lost to ALS in 2013. Read more about their journey with ALS
here
.
Ales for ALS 2018
In 2018, the sixth season of Ales for ALS
™
, the program has distributed more hops than ever before, thanks to Loftus Ranches and YCH Hops. This means we have more brewers fighting ALS than ever before! To find a participating brewery near you, click
here
.
Midyear ALS Research Review
On June 13, 2018, Dr. Steve Perrin hosted a midyear ALS research review webinar. This session specifically outlined what we think people should be on the lookout for in 2018, including where we stand with Masitinib, CopperATSM, NP001, NurOwn, AT-1501, and other potential treatments. Watch the webinar
here
.
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Related Reading
Jeff Norman: Spreading the Word About Ales for ALS™
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Run the TCS New York City Marathon and Support ALS Research with ALS TDI
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One Year of the ALS Research Collaborative (ARC)
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Author:
Emily Dhondt
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Jeff Norman: Spreading the Word About Ales for ALS™
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One Year of the ALS Research Collaborative (ARC)
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