ALS Town Hall

The ALS Town Hall is a virtual discussion led by experts in the fields of research, patient advocacy, care, awareness building, and fundraising.

Hosted by the ALS Therapy Development Institute (ALS TDI), each event begins with brief presentations from guest speakers and then invites the community to ask questions and engage in live discussion.

See upcoming events below and click the register button to sign up.

ALS Town Hall

The ALS Town Hall is a virtual discussion led by experts in the fields of research, patient advocacy, care, awareness building, and fundraising.

See upcoming events below and click the register button to sign up.

Upcoming ALS Town Halls

The Power of Your EHR Data in ALS Research

Led by Dr. Danielle Boyce, Principal Investigator, Real World Evidence, ALS TDI

Tuesday, April 29, 2025 | 3:00 - 4:00pm ET

Discover the Power of Your EHR Data in ALS Research. Join Dr. Danielle Boyce for a Town Hall to learn how ALS TDI's ARC Study is using electronic health records (EHRs) to drive ALS research breakthroughs. Dr. Boyce will discuss the current landscape of EHR research, revealing how ALS TDI is leveraging these records to advance our research and enhance collaborations. You'll gain valuable insights through real-world case studies, understand the advantages of these data, and most importantly, learn how you can play a crucial role by sharing your EHR data through the ARC study.

Why Me? Identifying ALS Causes

Led by ALS TDI and Her ALS Story

Tuesday, May 6, 2025 | 3:00 - 4:00pm ET

Join ALS TDI and Her ALS Story for the first of a 3-part collaborative Town Hall series, "Your Story. Our Science."

On May 6th, join ALS TDI and Her ALS Story (HAS) for Why Me? Identifying ALS Causes: An important discussion exploring the potential causes of ALS. Hear personal stories from HAS members as they share their experiences and discuss the factors they believe could contribute to ALS.

Building on these personal insights, ALS TDI researchers will share their expert perspective on the current state of ALS research, including established, highly suspected, and emerging causes and risk factors. They will also explain how the community's lived experiences directly shape ongoing research efforts to understand ALS causes and risk factors.

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