ALS Town Hall

The ALS Town Hall is a virtual discussion led by experts in the fields of research, patient advocacy, care, awareness building, and fundraising.

Hosted by the ALS Therapy Development Institute (ALS TDI), each event begins with brief presentations from guest speakers and then invites the community to ask questions and engage in live discussion.

See upcoming events below and click the register button to sign up.

ALS Town Hall

The ALS Town Hall is a virtual discussion led by experts in the fields of research, patient advocacy, care, awareness building, and fundraising.

See upcoming events below and click the register button to sign up.

Upcoming ALS Town Halls

What are Lesser-Known ALS Symptoms?

Led by ALS TDI and Her ALS Story

Tuesday, June 10, 2025 | 3:00 - 4:00pm ET

Join ALS TDI and Her ALS Story (HAS) for the second of a 3-part collaborative Town Hall series, "Your Story. Our Science."

Our journey continues with What Are Lesser-Known ALS Symptoms?, where we'll delve into the often-overlooked and less-discussed aspects of living with ALS. Connect with the powerful personal stories of HAS members as they share their experiences with ALS symptoms and the insights they've gained within the community.

ALS TDI researchers will discuss how the ARC Study currently tracks symptoms and emphasize the critical need for community feedback to identify symptoms that may not yet be fully understood or recorded. Discover how lived experiences shared by the community are helping to shape ALS research.

How Can We Improve ALS Diagnosis?

Led by ALS TDI and Her ALS Story

Thursday, July 10, 2025 | 3:00 - 4:00pm ET

Join ALS TDI and Her ALS Story (HAS) for the third and final installment of our 3-part collaborative Town Hall series, "Your Story. Our Science."

Our series concludes with How Can We Improve the Diagnosis Process?, where we will discuss the personal challenges of receiving an ALS diagnosis and the ongoing efforts to make the process faster and more efficient. Hear directly from HAS members as they share their personal diagnosis stories, including their initial symptoms, the journey of seeking a diagnosis, and the timeline they experienced until receiving confirmation.

Following these stories, we will run through the current ALS diagnosis process and highlight its existing challenges. Researchers from ALS TDI will describe ongoing initiatives and research efforts aimed at improving and accelerating the ALS diagnosis process, ultimately striving for earlier and more accurate diagnoses for individuals and families affected by ALS.