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ALS News & Stories

Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.

ALS News & Stories

Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.

ALS Research News

Friday, May 24, 2024
Reflecting on 25 Years and Honoring a Best Friend’s Legacy
ALS TDI's CEO, Fernando Vieira, M.D. reflects on ALS TDI's 25th anniversary and remembers words written to him by his best friend and former ALS TDI President, Sean Scott, before he passed from ALS in 2008.
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Tuesday, April 30, 2024
Dr. Anoopum Gupta: Collaborating with ALS TDI to Advance More Accurate Digital Biomarkers for ALS
ALS TDI speaks with Dr. Gupta to learn how new digital biomarkers could pave the way for faster clinical trials and more effective treatments, as detailed in a groundbreaking paper published in Nature.
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Thursday, April 25, 2024
Identifying ALS Lifestyle Risk Factors: Dr. Danielle Boyce, MPH, DPA, on Her Collaboration with ALS TDI
In 2023, the ALS Therapy Development Institute (ALS TDI) received a grant from the Centers for Disease Control (CDC) to undertake an unprecedented study to identify these ALS risk factors.
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From trial readouts to news from our lab, you can find all of the latest ALS research news here.

ALS TDI Community Blog

Friday, June 14, 2024
Alex Litt and Cory Sullivan: Playing 100 Holes of Golf to Honor their Fathers and Help End ALS
On June 18th, Alex Litt and Cory Sullivan, along with six other golfers whose loved ones have been affected by ALS, will tackle 100 holes of golf in one day. This marathon-like challenge aims to raise funds by auctioning incredible golf experiences to combat ALS
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Friday, May 31, 2024
What Lou Gehrig Day Means to Pro Pitcher Whose Father is Living with ALS
Tommy Nance is a pitcher with the San Diego Padres organization, where he currently plays for their Minor League affiliate, the El Paso Chihuahuas. He’s also the son of Mark Nance, who has been living with ALS since 2014.
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Thursday, May 30, 2024
Lou Gehrig Day 2024!
Celebrate Lou Gehrig Day with ALS TDI and the greater ALS community on June 2, 2024!
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Blog posts and commentary pieces from ALS TDI and community members with topics ranging from funding ALS research to how ALS impacts the lives of community members.

ALS TDI Press Releases

Thursday, March 7, 2024
ALS Therapy Development Institute, Answer ALS, and Microsoft Announce Groundbreaking Data Sharing Collaboration
ALS Therapy Development Institute, Answer ALS, and Microsoft Announce Groundbreaking Data Sharing Collaboration
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Monday, February 12, 2024
ALS TDI Launches ALS Trial Navigator
ALS TDI Launches ALS Trial Navigator: A Revolutionary Platform to Simplify Access to Clinical Trials
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Monday, July 31, 2023
The ALS Therapy Development Institute and Unite Genomics Partner to Integrate Electronic Health Records into the ALS Research Collaborative
Read the announcement below and attend the Town Hall event on August 9, 2023 to learn more about this collaboration.
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A complete list of press releases from the ALS Therapy Development Institute.
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