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ALS News & Stories

Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.

ALS News & Stories

Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.

ALS Research News

Monday, August 1, 2022
ALS TDI's 2022 Mid-Year Highlights
We are proud of the progress that we have made thus far in 2022 and we look forward to continuing to share detailed updates at the 2022 ALS TDI Summit on October 14th.
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Monday, July 18, 2022
What Clinical Trials are Recruiting Right Now?
A list of phase 3 clinical trials recruiting in the United States as of July 2022.
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Wednesday, June 29, 2022
Dr. Ammar Al-Chalabi: Why the Terms “familial” and “sporadic” ALS can be Misleading
Many in the ALS research community believe that, in light of what we now know about the disease, these terms are not entirely accurate.
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From trial readouts to news from our lab, you can find all of the latest ALS research news here.

ALS TDI Community Blog

Wednesday, August 3, 2022
ALS TDI Hosts Town Hall with Eledon Pharmaceuticals on Updates on Tegoprubart
Tegoprubart, formerly known as AT-1501, is the first ALS drug invented by a nonprofit to reach human clinical trials.
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Tuesday, August 2, 2022
Perspectives on Improving the CDC ALS Registry
How many people in the United States have amyotrophic lateral sclerosis (ALS) at any one time is a difficult – and often fraught – question.
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Monday, July 25, 2022
Café Martin: New Restaurant Aims to Create Community and Spread ALS Awareness
Before Café Martin West Street was a real-life restaurant, it was a porch.
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Blog posts and commentary pieces from ALS TDI and community members with topics ranging from funding ALS research to how ALS impacts the lives of community members.

ALS TDI Press Releases

Tuesday, March 1, 2022
Tegoprubart: AT-1501’s New Name
AT-1501, a drug invented at the ALS Therapy Development Institute (ALS TDI) and being developed by Eledon Pharmaceuticals, has a new name: tegoprubart.
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Monday, January 31, 2022
ALS TDI and Google Develop New ALS Symptom Severity Measurement Tool
In a recently released preprint paper and accompanying GitHub link, ALS TDI and Google researchers share two AI-powered algorithms for more objectively measuring ALS disease symptom severity and progression.
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A complete list of press releases from the ALS Therapy Development Institute.
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