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ALS News & Stories

Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.

ALS News & Stories

Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.

ALS Research News

Monday, May 1, 2023
Why Should People with ALS Participate in the ARC Study?
Learn how people with ALS can easily participate in the ARC study from home and help to advance global ALS drug discovery.
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Tuesday, April 18, 2023
ALS TDI Publishes New Paper on Potential ALS Treatment
A new research study by researchers at the ALS Therapy Development Institute sheds light on the way abnormal proteins created because of mutations in the C9orf72 gene cause toxicity in motor neurons.
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Wednesday, March 29, 2023
ARC: A Letter to the Community from Fernando Vieira M.D.
A letter to the community from Fernando Vieira on the ALS Research Collaborative (ARC)
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From trial readouts to news from our lab, you can find all of the latest ALS research news here.

ALS TDI Community Blog

Tuesday, May 30, 2023
Lorri Carey: Biking 400 Miles – While Living with ALS – To Support ALS Research and the Tri-State Trek
Lorri has been living with ALS for almost two decades. This year she has set an ambitious goal to participate in the virtual Trek – riding 400 miles over three months on her recumbent tricycle.
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Wednesday, May 24, 2023
Lynne Nieto: ALS TDI’s New Board Chair Aims to Carry on Her Late Husband's Legacy
In May 2023, Lynne Nieto was unanimously voted in as the chair of the ALS Therapy Development Institute’s (ALS TDI) board of directors. A few weeks before, she also took over as the chair of Augie’s Quest to Cure ALS.
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Monday, May 15, 2023
How ALS TDI Sowed the Seeds for Millions in Research Funding in Honor of Veterans with ALS
The connection between military service and ALS was first established nearly 20 years ago. This is the story of how ALS TDI – and some key partners – played a roll in securing support for ALS research from the Department of Defense.
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Blog posts and commentary pieces from ALS TDI and community members with topics ranging from funding ALS research to how ALS impacts the lives of community members.

ALS TDI Press Releases

Wednesday, September 28, 2022
ALS Therapy Development Institute Announces Superior Rail & Iron Works, Inc. as First Title Sponsor of White Coat Affair Gala
Superior Rail & Iron Works, Inc. will be the first Title Sponsor of the White Coat Affair gala, being held on October 15, 2022, at the Boston Sheraton to raise funds for ALS research.
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Tuesday, March 1, 2022
Tegoprubart: AT-1501’s New Name
AT-1501, a drug invented at the ALS Therapy Development Institute (ALS TDI) and being developed by Eledon Pharmaceuticals, has a new name: tegoprubart.
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A complete list of press releases from the ALS Therapy Development Institute.
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