ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(38 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,025

119,240

Today at 7:24:57 AM
in ALS neuron damage reversed with new compound
by JPLeRouzic

Living with ALS

(10 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,873

15,760

Yesterday at 8:33:42 PM
in tounge twitches
by Johnny5

ALS Advocacy

(2 Viewing)

Discuss strategies for increasing public funding and attention

511

3,229

2/14/2021 7:12:13 AM
in COVID stimulus
by JPLeRouzic

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Forum’s Choice Program at ALS TDI

(1 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,132

8/15/2020 3:07:38 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by JPLeRouzic

Philosophy and Feedback

(2 Viewing)

Discusses forum philosophy and any comments or suggestions.

159

1,260

1/16/2021 11:05:51 AM
in Impact of religion on disease
by DeeBee

Irrelevant to ALS

(4 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

286

3,549

2/13/2021 8:52:48 PM
in My Mother...
by jchexpress

Forum
ALS Topics
ALS Research & Treatments (38 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,025 Posts: 119,240
Latest Post: Today at 7:24:57 AM in ALS neuron damage reversed with new compound by JPLeRouzic
Living with ALS (10 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,873 Posts: 15,760
Latest Post: Yesterday at 8:33:42 PM in tounge twitches by Johnny5
ALS Advocacy (2 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 511 Posts: 3,229
Latest Post: 2/14/2021 7:12:13 AM in COVID stimulus by JPLeRouzic
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Forum’s Choice Program at ALS TDI (1 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,132
Latest Post: 8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
Philosophy and Feedback (2 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 159 Posts: 1,260
Latest Post: 1/16/2021 11:05:51 AM in Impact of religion on disease by DeeBee
Irrelevant to ALS (4 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 286 Posts: 3,549
Latest Post: 2/13/2021 8:52:48 PM in My Mother... by jchexpress

Latest Posts
ALS neuron damage reversed with new compound by JPLeRouzic (ALS Research & Treatments)	Today at 7:24:57 AM
Quality control of mitochondria in neurons by nolazybits (ALS Research & Treatments)	Today at 12:19:12 AM
tounge twitches by Johnny5 (Living with ALS)	Yesterday at 8:33:42 PM
NLF test by Kiki123 (ALS Research & Treatments)	Yesterday at 4:34:23 PM
Any Updates on the Progress or Success of Copper-Australia ALS Trial? by Dvholmes (ALS Research & Treatments)	Yesterday at 10:07:09 AM
Arimoclomol by JPLeRouzic (ALS Research & Treatments)	Yesterday at 3:27:51 AM
Kindly asking for help about symptoms by Cure92951 (Living with ALS)	2/25/2021 11:52:31 AM
Low aromatic amino acids in ALS. by alsorlando (ALS Research & Treatments)	2/23/2021 2:58:21 PM
A company is selling a "TDP43 blocking peptide" by JPLeRouzic (ALS Research & Treatments)	2/23/2021 12:16:50 PM
Improving a peptide targeting TDP-43 with bioinformatics tools. by Barbarawanda61 (ALS Research & Treatments)	2/23/2021 7:08:30 AM
Breakthrough discovery may lead to reverse motor neurons death by Cure92951 (ALS Research & Treatments)	2/21/2021 12:34:09 PM
M102 by DeeBee (ALS Research & Treatments)	2/21/2021 6:40:39 AM
Shooting pains/ ALS diagnosis by Cure92951 (Living with ALS)	2/19/2021 11:55:47 AM
Soft touch keyboard for weak hands by canadianbuddy171 (Living with ALS)	2/18/2021 11:06:55 AM
BCV ventilation by Cure92951 (Living with ALS)	2/18/2021 10:47:44 AM

Active Users
	51 active users - 2 members, 49 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. Cure92951 , mziolk@gmail.com
Statistics
	There are 144,511 posts in 12,037 topics in 7 forums. Last post Today at 7:24:57 AM by JPLeRouzic. We have 37,012 registered members. The newest member is platinum.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (38 Viewing) Discuss the latest ALS-related scientific and medical findings	9,025	119,240	Today at 7:24:57 AM in ALS neuron damage reversed with new compound by JPLeRouzic
	Living with ALS (10 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,873	15,760	Yesterday at 8:33:42 PM in tounge twitches by Johnny5
	ALS Advocacy (2 Viewing) Discuss strategies for increasing public funding and attention	511	3,229	2/14/2021 7:12:13 AM in COVID stimulus by JPLeRouzic
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Forum’s Choice Program at ALS TDI (1 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,132	8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
	Philosophy and Feedback (2 Viewing) Discusses forum philosophy and any comments or suggestions.	159	1,260	1/16/2021 11:05:51 AM in Impact of religion on disease by DeeBee
	Irrelevant to ALS (4 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	286	3,549	2/13/2021 8:52:48 PM in My Mother... by jchexpress