ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(53 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,935

118,200

Today at 7:18:11 AM
in drug for rigid legs
by murmurat

Living with ALS

(11 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,846

15,567

7/30/2020 11:14:57 AM
in Metallic taste in mouth and Tudca
by pagefan

ALS Advocacy

(1 Viewing)

Discuss strategies for increasing public funding and attention

509

3,225

6/11/2020 7:01:11 AM
in Global MND Awareness Day
by DeeBee

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

339

4/29/2020 7:13:36 PM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda

Forum’s Choice Program at ALS TDI

(1 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,130

7/25/2020 4:07:43 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by DeeBee

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

156

1,248

7/4/2020 4:41:46 AM
in What to do if Als.net is shut down someday?
by DeeBee

Irrelevant to ALS

(3 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

285

3,541

7/29/2020 4:22:11 PM
in New Forum Moderator
by jgang

Forum
ALS Topics
ALS Research & Treatments (53 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,935 Posts: 118,200
Latest Post: Today at 7:18:11 AM in drug for rigid legs by murmurat
Living with ALS (11 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,846 Posts: 15,567
Latest Post: 7/30/2020 11:14:57 AM in Metallic taste in mouth and Tudca by pagefan
ALS Advocacy (1 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 509 Posts: 3,225
Latest Post: 6/11/2020 7:01:11 AM in Global MND Awareness Day by DeeBee
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 339
Latest Post: 4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
Forum’s Choice Program at ALS TDI (1 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,130
Latest Post: 7/25/2020 4:07:43 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by DeeBee
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 156 Posts: 1,248
Latest Post: 7/4/2020 4:41:46 AM in What to do if Als.net is shut down someday? by DeeBee
Irrelevant to ALS (3 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 285 Posts: 3,541
Latest Post: 7/29/2020 4:22:11 PM in New Forum Moderator by jgang

Latest Posts
drug for rigid legs by murmurat (ALS Research & Treatments)	Today at 7:18:11 AM
Quality control of mitochondria in neurons by Barbarawanda (ALS Research & Treatments)	Yesterday at 1:20:28 PM
corona fallout by Barbarawanda (ALS Research & Treatments)	Yesterday at 12:28:52 PM
Symposium Cancelled by DeeBee (ALS Research & Treatments)	8/2/2020 5:49:39 AM
Duke-Bedlack-Clenbuterol by agenjoe72 (ALS Research & Treatments)	8/1/2020 4:27:54 PM
Fasudil - Promising Results in 3 ALS Patients by drpawell (ALS Research & Treatments)	7/30/2020 12:09:29 PM
Metallic taste in mouth and Tudca by pagefan (Living with ALS)	7/30/2020 11:14:57 AM
SOD1 genetic therapy results by JPLeRouzic (ALS Research & Treatments)	7/30/2020 9:33:14 AM
New Forum Moderator by jgang (Irrelevant to ALS)	7/29/2020 4:22:11 PM
ALS Signal Clinical Research Dashboard by rknt50b (ALS Research & Treatments)	7/25/2020 2:36:58 PM
Berberine updates by Rusknight (ALS Research & Treatments)	7/25/2020 8:34:25 AM
Possible sporadic Amyotrophic Lateral Sclerosis (sALS) cure. by DeeBee (Forum’s Choice Program at ALS TDI)	7/25/2020 4:07:43 AM
Results from Phase 1/2 clinical trial using SOD 1 antisense looks promising by Barbarawanda (ALS Research & Treatments)	7/23/2020 7:27:17 AM
genova metabolic analysis profile by zarkorama (ALS Research & Treatments)	7/23/2020 7:06:02 AM
Atypical onset ? Worried by Rusknight (Living with ALS)	7/22/2020 1:33:29 PM

Active Users
	37 active users - 0 members, 37 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM.
Statistics
	There are 143,250 posts in 11,914 topics in 7 forums. Last post Today at 7:18:11 AM by murmurat. We have 35,790 registered members. The newest member is Gabrielle71.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (53 Viewing) Discuss the latest ALS-related scientific and medical findings	8,935	118,200	Today at 7:18:11 AM in drug for rigid legs by murmurat
	Living with ALS (11 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,846	15,567	7/30/2020 11:14:57 AM in Metallic taste in mouth and Tudca by pagefan
	ALS Advocacy (1 Viewing) Discuss strategies for increasing public funding and attention	509	3,225	6/11/2020 7:01:11 AM in Global MND Awareness Day by DeeBee
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	339	4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
	Forum’s Choice Program at ALS TDI (1 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,130	7/25/2020 4:07:43 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by DeeBee
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	156	1,248	7/4/2020 4:41:46 AM in What to do if Als.net is shut down someday? by DeeBee
	Irrelevant to ALS (3 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	285	3,541	7/29/2020 4:22:11 PM in New Forum Moderator by jgang