ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(37 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,979

118,656

Today at 1:28:15 PM
in dihydrotestostetone in ALS
by Cure92951

Living with ALS

(13 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,861

15,649

11/22/2020 7:34:59 PM
in Strong symptoms but NO diagnosis, help appreciated
by royalfig

ALS Advocacy

Discuss strategies for increasing public funding and attention

510

3,226

8/10/2020 10:11:07 PM
in https://alsmnd.com/
by nolazybits

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

339

4/29/2020 7:13:36 PM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda

Forum’s Choice Program at ALS TDI

(1 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,132

8/15/2020 3:07:38 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by JPLeRouzic

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

157

1,256

11/17/2020 9:20:00 AM
in Impact of religion on disease
by Cure92951

Irrelevant to ALS

(1 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

285

3,541

7/29/2020 4:22:11 PM
in New Forum Moderator
by jgang

Forum
ALS Topics
ALS Research & Treatments (37 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,979 Posts: 118,656
Latest Post: Today at 1:28:15 PM in dihydrotestostetone in ALS by Cure92951
Living with ALS (13 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,861 Posts: 15,649
Latest Post: 11/22/2020 7:34:59 PM in Strong symptoms but NO diagnosis, help appreciated by royalfig
ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 510 Posts: 3,226
Latest Post: 8/10/2020 10:11:07 PM in https://alsmnd.com/ by nolazybits
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 339
Latest Post: 4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
Forum’s Choice Program at ALS TDI (1 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,132
Latest Post: 8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 157 Posts: 1,256
Latest Post: 11/17/2020 9:20:00 AM in Impact of religion on disease by Cure92951
Irrelevant to ALS (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 285 Posts: 3,541
Latest Post: 7/29/2020 4:22:11 PM in New Forum Moderator by jgang

Latest Posts
dihydrotestostetone in ALS by Cure92951 (ALS Research & Treatments)	Today at 1:28:15 PM
SLS-005 Trehalose by Cure92951 (ALS Research & Treatments)	Yesterday at 2:20:39 PM
Phase 3 Nurown by Cure92951 (ALS Research & Treatments)	Yesterday at 2:17:20 PM
New thread not new topic by Cure92951 (ALS Research & Treatments)	Yesterday at 12:25:10 PM
Double Wammy by Cure92951 (ALS Research & Treatments)	11/23/2020 4:11:55 PM
Strong symptoms but NO diagnosis, help appreciated by royalfig (Living with ALS)	11/22/2020 7:34:59 PM
Quality control of mitochondria in neurons by Barbarawanda (ALS Research & Treatments)	11/18/2020 6:03:25 AM
Over-the-Counter Pain Relievers Work to Prevent ALS, Study Suggests by packattack (ALS Research & Treatments)	11/18/2020 12:34:01 AM
Duke-Bedlack-Clenbuterol by murmurat (ALS Research & Treatments)	11/17/2020 7:24:50 PM
Impact of religion on disease by Cure92951 (Philosophy and Feedback)	11/17/2020 9:20:00 AM
Gilenya by Cure92951 (ALS Research & Treatments)	11/15/2020 10:56:35 AM
Axonal spheroids and ALS by JPLeRouzic (ALS Research & Treatments)	11/15/2020 3:13:29 AM
Naturally increasing igf-1 and type of Nurown growth factors by Cure92951 (ALS Research & Treatments)	11/13/2020 4:07:25 PM
Propofol and sevoflurane by Cure92951 (ALS Research & Treatments)	11/13/2020 12:09:46 PM
Quality pulmo recomm in Florida by Cure92951 (Living with ALS)	11/11/2020 11:44:11 AM

Active Users
	58 active users - 0 members, 58 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM.
Statistics
	There are 143,799 posts in 11,975 topics in 7 forums. Last post Today at 1:28:15 PM by Cure92951. We have 36,400 registered members. The newest member is Wschmidt.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (37 Viewing) Discuss the latest ALS-related scientific and medical findings	8,979	118,656	Today at 1:28:15 PM in dihydrotestostetone in ALS by Cure92951
	Living with ALS (13 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,861	15,649	11/22/2020 7:34:59 PM in Strong symptoms but NO diagnosis, help appreciated by royalfig
	ALS Advocacy Discuss strategies for increasing public funding and attention	510	3,226	8/10/2020 10:11:07 PM in https://alsmnd.com/ by nolazybits
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	339	4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
	Forum’s Choice Program at ALS TDI (1 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,132	8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	157	1,256	11/17/2020 9:20:00 AM in Impact of religion on disease by Cure92951
	Irrelevant to ALS (1 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	285	3,541	7/29/2020 4:22:11 PM in New Forum Moderator by jgang