ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please contact us here.

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ALS Topics

ALS Research & Treatments

(18 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,926

118,128

7/6/2020 12:56:17 PM
in Harnessing muscle stem cells to fight Duchenne...
by SGA

Living with ALS

(7 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,841

15,547

Yesterday at 1:23:49 PM
in Coronavirus news...
by DeeBee

ALS Advocacy

(3 Viewing)

Discuss strategies for increasing public funding and attention

509

3,225

6/11/2020 7:01:11 AM
in Global MND Awareness Day
by DeeBee

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

339

4/29/2020 7:13:36 PM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda

Forum’s Choice Program at ALS TDI

(1 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,128

6/16/2020 6:58:33 PM
in COVID-19, TMPRSS2, camostat mesilate, Tazemetostat...
by Mary Reid

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

156

1,248

7/4/2020 4:41:46 AM
in What to do if Als.net is shut down someday?
by DeeBee

Irrelevant to ALS

(3 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

284

3,536

5/17/2020 3:17:17 PM
in An article about natural products and...
by JPLeRouzic

Forum
ALS Topics
ALS Research & Treatments (18 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,926 Posts: 118,128
Latest Post: 7/6/2020 12:56:17 PM in Harnessing muscle stem cells to fight Duchenne... by SGA
Living with ALS (7 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,841 Posts: 15,547
Latest Post: Yesterday at 1:23:49 PM in Coronavirus news... by DeeBee
ALS Advocacy (3 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 509 Posts: 3,225
Latest Post: 6/11/2020 7:01:11 AM in Global MND Awareness Day by DeeBee
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 339
Latest Post: 4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
Forum’s Choice Program at ALS TDI (1 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,128
Latest Post: 6/16/2020 6:58:33 PM in COVID-19, TMPRSS2, camostat mesilate, Tazemetostat... by Mary Reid
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 156 Posts: 1,248
Latest Post: 7/4/2020 4:41:46 AM in What to do if Als.net is shut down someday? by DeeBee
Irrelevant to ALS (3 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 284 Posts: 3,536
Latest Post: 5/17/2020 3:17:17 PM in An article about natural products and... by JPLeRouzic

Latest Posts
Coronavirus news... by DeeBee (Living with ALS)	Yesterday at 1:23:49 PM
Harnessing muscle stem cells to fight Duchenne muscular dystrophy by SGA (ALS Research & Treatments)	7/6/2020 12:56:17 PM
4 years symptoms but no diagnosis by leroyb (Living with ALS)	7/6/2020 10:42:48 AM
NSI-189 (Neurogenesis) by nolazybits (ALS Research & Treatments)	7/5/2020 3:20:33 AM
What to do if Als.net is shut down someday? by DeeBee (Philosophy and Feedback)	7/4/2020 4:41:46 AM
Interesting iScience article by Barbarawanda (ALS Research & Treatments)	7/3/2020 7:03:51 AM
What do you think of Adomet for ALS? by JPLeRouzic (ALS Research & Treatments)	7/3/2020 6:53:40 AM
A Global Revolt Against Experts? by SilverFox (ALS Research & Treatments)	7/2/2020 10:59:33 PM
Nicotine for ALS? by tomasz (ALS Research & Treatments)	7/2/2020 9:14:15 AM
Compound Found in Blackberries Prolongs Lifespan, Reduces Disease Severity in ALS Mice by alsorlando (ALS Research & Treatments)	7/1/2020 9:07:34 PM
DE111 Parkinsons by murmurat (ALS Research & Treatments)	7/1/2020 5:11:42 PM
A clinically feasible approach to treat Parkinson by replacing lost neurons by tomasz (ALS Research & Treatments)	6/30/2020 12:09:02 PM
Testing new drugs with 'ALS-on-a-chip' (rapamycin and bosutinib successful so far) by MichaelNg (ALS Research & Treatments)	6/29/2020 10:10:14 PM
PTB by shueydj (ALS Research & Treatments)	6/29/2020 8:27:59 PM
EMG and NCS Question. Need Help. by JPLeRouzic (Living with ALS)	6/28/2020 6:50:47 AM

Active Users
	34 active users - 1 member, 33 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. Tiaan
Statistics
	There are 143,151 posts in 11,899 topics in 7 forums. Last post Yesterday at 1:23:49 PM by DeeBee. We have 35,572 registered members. The newest member is alleyjohn.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (18 Viewing) Discuss the latest ALS-related scientific and medical findings	8,926	118,128	7/6/2020 12:56:17 PM in Harnessing muscle stem cells to fight Duchenne... by SGA
	Living with ALS (7 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,841	15,547	Yesterday at 1:23:49 PM in Coronavirus news... by DeeBee
	ALS Advocacy (3 Viewing) Discuss strategies for increasing public funding and attention	509	3,225	6/11/2020 7:01:11 AM in Global MND Awareness Day by DeeBee
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	339	4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
	Forum’s Choice Program at ALS TDI (1 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,128	6/16/2020 6:58:33 PM in COVID-19, TMPRSS2, camostat mesilate, Tazemetostat... by Mary Reid
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	156	1,248	7/4/2020 4:41:46 AM in What to do if Als.net is shut down someday? by DeeBee
	Irrelevant to ALS (3 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	284	3,536	5/17/2020 3:17:17 PM in An article about natural products and... by JPLeRouzic