ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please contact us here.

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ALS Topics

ALS Research & Treatments

(18 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,055

119,669

6/16/2021 7:01:53 PM
in Photobiomodulation or Near Infrared Light Therapy...
by SilverFox

Living with ALS

(6 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,889

15,939

Today at 2:32:00 AM
in ALS at late stage
by JPLeRouzic

ALS Advocacy

Discuss strategies for increasing public funding and attention

516

3,243

6/2/2021 4:43:33 PM
in The MLB has announced an annual Lou Gehrig's...
by RichardHALS

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

100

1,138

4/22/2021 9:01:27 PM
in Connecting the ALS dots
by donate@mcball.net

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

161

1,284

5/18/2021 2:36:26 AM
in Is it really educating people?
by JPLeRouzic

Irrelevant to ALS

Postings deemed irrelevant to ALS by the ALS TDI Research Team

286

3,555

4/8/2021 6:36:24 PM
in Strange onset?!! Or not so strange :(
by John1980

Forum
ALS Topics
ALS Research & Treatments (18 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,055 Posts: 119,669
Latest Post: 6/16/2021 7:01:53 PM in Photobiomodulation or Near Infrared Light Therapy... by SilverFox
Living with ALS (6 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,889 Posts: 15,939
Latest Post: Today at 2:32:00 AM in ALS at late stage by JPLeRouzic
ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 516 Posts: 3,243
Latest Post: 6/2/2021 4:43:33 PM in The MLB has announced an annual Lou Gehrig's... by RichardHALS
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 100 Posts: 1,138
Latest Post: 4/22/2021 9:01:27 PM in Connecting the ALS dots by donate@mcball.net
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 161 Posts: 1,284
Latest Post: 5/18/2021 2:36:26 AM in Is it really educating people? by JPLeRouzic
Irrelevant to ALS
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 286 Posts: 3,555
Latest Post: 4/8/2021 6:36:24 PM in Strange onset?!! Or not so strange :( by John1980

Latest Posts
ALS at late stage by JPLeRouzic (Living with ALS)	Today at 2:32:00 AM
Is there anything better than Ensure? by jchexpress (Living with ALS)	6/16/2021 9:41:22 PM
Photobiomodulation or Near Infrared Light Therapy for ALS Patients by SilverFox (ALS Research & Treatments)	6/16/2021 7:01:53 PM
Please pray or send good thoughts for nancy by SilverFox (Living with ALS)	6/16/2021 6:58:58 PM
Weekly HEALEY ALS Platform Trial Webinar by MToole (ALS Research & Treatments)	6/14/2021 6:20:48 PM
Medicare and radicava home infusions by SilverFox (Living with ALS)	6/11/2021 9:57:08 PM
Physical Exercise is a Risk Factor for Amyotrophic Lateral Sclerosis by tempwaf (ALS Research & Treatments)	6/11/2021 5:02:41 PM
Anger by Rlschafferrr (Living with ALS)	6/9/2021 11:50:08 AM
MND and Cholesterol by tempwaf (ALS Research & Treatments)	6/4/2021 10:01:49 AM
The MLB has announced an annual Lou Gehrig's day by RichardHALS (ALS Advocacy)	6/2/2021 4:43:33 PM
Has anybody tried oral contraceptives for ALS by drnishitsawal (ALS Research & Treatments)	5/31/2021 2:16:21 PM
ALS - A Lack of Support - But You Can Help Resolve This by Jim1192 (ALS Advocacy)	5/31/2021 7:48:37 AM
SRSF1 Inhibitors by JPLeRouzic (ALS Research & Treatments)	5/28/2021 5:47:15 PM
Healey Platform trial - faster enrollment = faster results by PhilipFromGermany (ALS Research & Treatments)	5/26/2021 1:31:45 PM
Need advice on research project. by KimB (ALS Research & Treatments)	5/23/2021 12:38:02 PM

Active Users
	29 active users - 1 member, 28 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. Pepe91
Statistics
	There are 145,169 posts in 12,091 topics in 7 forums. Last post Today at 2:32:00 AM by JPLeRouzic. We have 37,723 registered members. The newest member is Kcbug33.

ALS Forum

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (18 Viewing) Discuss the latest ALS-related scientific and medical findings	9,055	119,669	6/16/2021 7:01:53 PM in Photobiomodulation or Near Infrared Light Therapy... by SilverFox
	Living with ALS (6 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,889	15,939	Today at 2:32:00 AM in ALS at late stage by JPLeRouzic
	ALS Advocacy Discuss strategies for increasing public funding and attention	516	3,243	6/2/2021 4:43:33 PM in The MLB has announced an annual Lou Gehrig's... by RichardHALS
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	100	1,138	4/22/2021 9:01:27 PM in Connecting the ALS dots by donate@mcball.net
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	161	1,284	5/18/2021 2:36:26 AM in Is it really educating people? by JPLeRouzic
	Irrelevant to ALS Postings deemed irrelevant to ALS by the ALS TDI Research Team	286	3,555	4/8/2021 6:36:24 PM in Strange onset?!! Or not so strange :( by John1980