ALS Forums

ALS Forum

Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

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ALS Topics

ALS Research & Treatments

(19 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,796

116,841

Today at 6:35:11 AM
in Patient Fellowships - Intl ALS MND Symposium -...
by tomasz

Living with ALS

(4 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,799

15,275

Today at 3:50:44 AM
in EMG Question/Advice
by JPLeRouzic

ALS Advocacy

Discuss strategies for increasing public funding and attention

505

3,215

8/3/2019 6:53:07 PM
in Harry Potter
by DeeBee

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

338

10/9/2019 6:59:50 PM
in Neudexta
by Rusknight

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

1,077

10/7/2019 7:33:57 PM
in Sphingosine-1-Phosphate (S1P)
by royalfig

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

152

1,207

10/18/2019 12:54:43 PM
in Unnatural Selection
by DeeBee

Irrelevant to ALS

Postings deemed irrelevant to ALS by the ALS TDI Research Team

276

3,521

10/8/2019 5:18:46 AM
in Relations between genetic mutations and putative...
by ardi

Forum
ALS Topics
ALS Research & Treatments (19 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,796 Posts: 116,841
Latest Post: Today at 6:35:11 AM in Patient Fellowships - Intl ALS MND Symposium -... by tomasz
Living with ALS (4 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,799 Posts: 15,275
Latest Post: Today at 3:50:44 AM in EMG Question/Advice by JPLeRouzic
ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 505 Posts: 3,215
Latest Post: 8/3/2019 6:53:07 PM in Harry Potter by DeeBee
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 338
Latest Post: 10/9/2019 6:59:50 PM in Neudexta by Rusknight
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 92 Posts: 1,077
Latest Post: 10/7/2019 7:33:57 PM in Sphingosine-1-Phosphate (S1P) by royalfig
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 152 Posts: 1,207
Latest Post: 10/18/2019 12:54:43 PM in Unnatural Selection by DeeBee
Irrelevant to ALS
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 276 Posts: 3,521
Latest Post: 10/8/2019 5:18:46 AM in Relations between genetic mutations and putative... by ardi

Latest Posts
Patient Fellowships - Intl ALS MND Symposium - December - Perth by tomasz (ALS Research & Treatments)	Today at 6:35:11 AM
EMG Question/Advice by JPLeRouzic (Living with ALS)	Today at 3:50:44 AM
L-Serine Self Testing Thread by Rusknight (ALS Research & Treatments)	10/19/2019 8:11:29 PM
AMX0035 by TimSmith (ALS Research & Treatments)	10/19/2019 4:29:37 PM
Making Sense of Symptoms by tompeen (Living with ALS)	10/19/2019 1:21:08 PM
Unnatural Selection by DeeBee (Philosophy and Feedback)	10/18/2019 12:54:43 PM
Negative free copper after earlier tests showed high free copper - stop the zinc? by shankargopal (ALS Research & Treatments)	10/18/2019 1:40:08 AM
Tuberculosis invastigation? by JPLeRouzic (ALS Research & Treatments)	10/17/2019 12:30:39 PM
"Pre-ALS"? by Tam (ALS Research & Treatments)	10/17/2019 10:53:40 AM
Evidence for Fungal Infection in ALS patients by tompeen (ALS Research & Treatments)	10/17/2019 10:28:15 AM
Tuberculosis Treatment anyone? by Deja (ALS Research & Treatments)	10/17/2019 8:21:31 AM
Dichloroacetate - something promising? by PhilipFromGermany (ALS Research & Treatments)	10/17/2019 5:00:25 AM
white stains patches on tongue by Rlschafferrr (ALS Research & Treatments)	10/16/2019 8:27:01 PM
Carnivore's Conundrum by DeeBee (Philosophy and Feedback)	10/16/2019 1:06:57 PM
Arimoclomol by shueydj (ALS Research & Treatments)	10/16/2019 6:15:11 AM

Active Users
	25 active users - 1 member, 24 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. tomasz
Statistics
	There are 141,473 posts in 11,703 topics in 7 forums. Last post Today at 3:50:44 AM by JPLeRouzic. We have 33,104 registered members. The newest member is mizz.mozart@gmail.com.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (19 Viewing) Discuss the latest ALS-related scientific and medical findings	8,796	116,841	Today at 6:35:11 AM in Patient Fellowships - Intl ALS MND Symposium -... by tomasz
	Living with ALS (4 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,799	15,275	Today at 3:50:44 AM in EMG Question/Advice by JPLeRouzic
	ALS Advocacy Discuss strategies for increasing public funding and attention	505	3,215	8/3/2019 6:53:07 PM in Harry Potter by DeeBee
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	61	338	10/9/2019 6:59:50 PM in Neudexta by Rusknight
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	92	1,077	10/7/2019 7:33:57 PM in Sphingosine-1-Phosphate (S1P) by royalfig
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	152	1,207	10/18/2019 12:54:43 PM in Unnatural Selection by DeeBee
	Irrelevant to ALS Postings deemed irrelevant to ALS by the ALS TDI Research Team	276	3,521	10/8/2019 5:18:46 AM in Relations between genetic mutations and putative... by ardi