ALS Forums

ALS Forum

Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

Forum

Topics

Posts

Last Post

ALS Topics

ALS Research & Treatments

(16 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,861

117,540

Today at 5:35:53 AM
in A Global Revolt Against Experts?
by DeeBee

Living with ALS

(5 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,827

15,450

2/17/2020 3:59:24 PM
in Do I have als?
by Annlau1

ALS Advocacy

(1 Viewing)

Discuss strategies for increasing public funding and attention

506

3,221

2/6/2020 3:12:14 PM
in Genetic Testing is [not] Medically Necessary
by royalfig

Military Service and ALS

(1 Viewing)

Discuss issues relevant to ALS incidence in the military and veteran population

338

10/9/2019 6:59:50 PM
in Neudexta
by Rusknight

Forum’s Choice Program at ALS TDI

(1 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,090

Yesterday at 9:15:38 PM
in Alpha1 antitrypsin (A1AT)
by Mary Reid

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

154

1,242

2/7/2020 12:24:01 AM
in Strange als disease in my wife
by royalfig

Irrelevant to ALS

(2 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

283

3,535

1/31/2020 8:18:24 AM
in New Here...
by adrienne9

Forum
ALS Topics
ALS Research & Treatments (16 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,861 Posts: 117,540
Latest Post: Today at 5:35:53 AM in A Global Revolt Against Experts? by DeeBee
Living with ALS (5 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,827 Posts: 15,450
Latest Post: 2/17/2020 3:59:24 PM in Do I have als? by Annlau1
ALS Advocacy (1 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 506 Posts: 3,221
Latest Post: 2/6/2020 3:12:14 PM in Genetic Testing is [not] Medically Necessary by royalfig
Military Service and ALS (1 Viewing)
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 338
Latest Post: 10/9/2019 6:59:50 PM in Neudexta by Rusknight
Forum’s Choice Program at ALS TDI (1 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 97 Posts: 1,090
Latest Post: Yesterday at 9:15:38 PM in Alpha1 antitrypsin (A1AT) by Mary Reid
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 154 Posts: 1,242
Latest Post: 2/7/2020 12:24:01 AM in Strange als disease in my wife by royalfig
Irrelevant to ALS (2 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 283 Posts: 3,535
Latest Post: 1/31/2020 8:18:24 AM in New Here... by adrienne9

Latest Posts
A Global Revolt Against Experts? by DeeBee (ALS Research & Treatments)	Today at 5:35:53 AM
Alpha1 antitrypsin (A1AT) by Mary Reid (Forum’s Choice Program at ALS TDI)	Yesterday at 9:15:38 PM
Nicotine for ALS? by Mary Reid (ALS Research & Treatments)	Yesterday at 9:13:23 PM
Quality control of mitochondria in neurons by deb1aw (ALS Research & Treatments)	Yesterday at 3:31:06 PM
Do I have als? by Annlau1 (Living with ALS)	2/17/2020 3:59:24 PM
How My Daughter Got Cured Of ALS by DeeBee (Living with ALS)	2/17/2020 6:28:06 AM
Prosetin? Prostetin? MAP4K Inhibitor by any other name? by Dalerfink (ALS Research & Treatments)	2/16/2020 11:12:31 AM
EMG Thoracic muscle by Nina1977 (Living with ALS)	2/15/2020 9:34:13 PM
OVERCHARGED CELL PROCESS CLEARS DANGEROUS ALS ‘JUNK by packattack (ALS Research & Treatments)	2/13/2020 5:25:21 PM
BrainStorm Cell Therapeutics and FDA Agree to Potential NurOwn® Regulatory Pathway for Approval in ALS by PhilipFromGermany (ALS Research & Treatments)	2/13/2020 11:27:53 AM
prime c primeC - neurosense drug by Rusknight (ALS Research & Treatments)	2/13/2020 5:57:51 AM
Gamisoyo San - Possible Supplement? by LizzieQ (ALS Research & Treatments)	2/11/2020 10:48:49 AM
Anyone can help pls? What I need to do next((Thanks a lot by Nina1977 (Living with ALS)	2/10/2020 11:11:43 PM
The Microscopic World Of IPS Cells by SGA (ALS Research & Treatments)	2/8/2020 11:56:09 PM
Treating parkinson disease with IPS Cells by SGA (ALS Research & Treatments)	2/8/2020 11:23:56 PM

Active Users
	28 active users - 1 member, 27 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. mesmith7355@yahoo.com
Statistics
	There are 142,416 posts in 11,811 topics in 7 forums. Last post Today at 5:35:53 AM by DeeBee. We have 34,484 registered members. The newest member is mesmith7355@yahoo.com.

ALS Forum

ALS Resources

Favorites

Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (16 Viewing) Discuss the latest ALS-related scientific and medical findings	8,861	117,540	Today at 5:35:53 AM in A Global Revolt Against Experts? by DeeBee
	Living with ALS (5 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,827	15,450	2/17/2020 3:59:24 PM in Do I have als? by Annlau1
	ALS Advocacy (1 Viewing) Discuss strategies for increasing public funding and attention	506	3,221	2/6/2020 3:12:14 PM in Genetic Testing is [not] Medically Necessary by royalfig
	Military Service and ALS (1 Viewing) Discuss issues relevant to ALS incidence in the military and veteran population	61	338	10/9/2019 6:59:50 PM in Neudexta by Rusknight
	Forum’s Choice Program at ALS TDI (1 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	97	1,090	Yesterday at 9:15:38 PM in Alpha1 antitrypsin (A1AT) by Mary Reid
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	154	1,242	2/7/2020 12:24:01 AM in Strange als disease in my wife by royalfig
	Irrelevant to ALS (2 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	283	3,535	1/31/2020 8:18:24 AM in New Here... by adrienne9