ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(140 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,121

120,160

Yesterday at 7:45:33 AM
in terazosin
by shueydj

Living with ALS

(26 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,911

16,102

7/30/2022 11:15:04 AM
in 18 years
by Mau

ALS Advocacy

(13 Viewing)

Discuss strategies for increasing public funding and attention

517

3,247

8/9/2022 2:40:08 AM
in CDC ALS Registry in the US
by rknt50b

Military Service and ALS

(3 Viewing)

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Forum’s Choice Program at ALS TDI

(4 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

101

1,141

8/10/2022 1:44:42 AM
in Intraperitoneal Administration of Tegoprubart
by royalfig

Philosophy and Feedback

(4 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(4 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

289

3,577

8/4/2022 11:30:15 AM
in Pathetic
by ntuc

Forum
ALS Topics
ALS Research & Treatments (140 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,121 Posts: 120,160
Latest Post: Yesterday at 7:45:33 AM in terazosin by shueydj
Living with ALS (26 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,911 Posts: 16,102
Latest Post: 7/30/2022 11:15:04 AM in 18 years by Mau
ALS Advocacy (13 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 517 Posts: 3,247
Latest Post: 8/9/2022 2:40:08 AM in CDC ALS Registry in the US by rknt50b
Military Service and ALS (3 Viewing)
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Forum’s Choice Program at ALS TDI (4 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 101 Posts: 1,141
Latest Post: 8/10/2022 1:44:42 AM in Intraperitoneal Administration of Tegoprubart by royalfig
Philosophy and Feedback (4 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (4 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 289 Posts: 3,577
Latest Post: 8/4/2022 11:30:15 AM in Pathetic by ntuc

Latest Posts
terazosin by shueydj (ALS Research & Treatments)	Yesterday at 7:45:33 AM
Nicotinamide riboside (NR) and co-factors experiences and results by AKMopar (ALS Research & Treatments)	8/10/2022 1:46:26 PM
Intraperitoneal Administration of Tegoprubart by royalfig (Forum’s Choice Program at ALS TDI)	8/10/2022 1:44:42 AM
CDC ALS Registry in the US by rknt50b (ALS Advocacy)	8/9/2022 2:40:08 AM
Pathetic by ntuc (Irrelevant to ALS)	8/4/2022 11:30:15 AM
tikomed by MichaelNg (ALS Research & Treatments)	8/4/2022 2:04:23 AM
18 years by Mau (Living with ALS)	7/30/2022 11:15:04 AM
Quality control of mitochondria in neurons by shueydj (ALS Research & Treatments)	7/22/2022 3:56:45 PM
The Rutherford Method for treating ALS by royalfig (ALS Research & Treatments)	7/22/2022 1:54:57 PM
Genetic Testing is [not] Medically Necessary by royalfig (ALS Advocacy)	7/22/2022 1:41:47 PM
EMG and Nerve Conduction by anneyoung (Living with ALS)	7/19/2022 2:05:07 AM
ALSUntangled - Please View by Dalerfink (ALS Research & Treatments)	7/16/2022 4:26:59 PM
Fasudil - Promising Results in 3 ALS Patients by Dalerfink (ALS Research & Treatments)	7/9/2022 10:03:24 AM
Valproic acid for treatment of SMA by Leo199013 (ALS Research & Treatments)	7/3/2022 12:17:47 PM
Pulse Oximeter Accuracy and Limitations: FDA Safety Communication by Dalerfink (ALS Research & Treatments)	6/25/2022 4:43:54 PM

Active Users
	178 active users - 0 members, 178 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM.
Statistics
	There are 145,857 posts in 12,185 topics in 7 forums. Last post Yesterday at 7:45:33 AM by shueydj. We have 39,374 registered members. The newest member is riyasharma.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (140 Viewing) Discuss the latest ALS-related scientific and medical findings	9,121	120,160	Yesterday at 7:45:33 AM in terazosin by shueydj
	Living with ALS (26 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,911	16,102	7/30/2022 11:15:04 AM in 18 years by Mau
	ALS Advocacy (13 Viewing) Discuss strategies for increasing public funding and attention	517	3,247	8/9/2022 2:40:08 AM in CDC ALS Registry in the US by rknt50b
	Military Service and ALS (3 Viewing) Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Forum’s Choice Program at ALS TDI (4 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	101	1,141	8/10/2022 1:44:42 AM in Intraperitoneal Administration of Tegoprubart by royalfig
	Philosophy and Feedback (4 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (4 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	289	3,577	8/4/2022 11:30:15 AM in Pathetic by ntuc