ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please contact us here.

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ALS Topics

ALS Research & Treatments

(12 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,952

118,319

Yesterday at 3:35:05 AM
in Trials begin for a new weapon against Parkinson’s:...
by JPLeRouzic

Living with ALS

(3 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,851

15,587

9/12/2020 6:33:30 AM
in Invasive ventilation
by Leo1mc

ALS Advocacy

Discuss strategies for increasing public funding and attention

510

3,226

8/10/2020 10:11:07 PM
in https://alsmnd.com/
by nolazybits

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

339

4/29/2020 7:13:36 PM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

1,132

8/15/2020 3:07:38 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by JPLeRouzic

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

156

1,248

7/4/2020 4:41:46 AM
in What to do if Als.net is shut down someday?
by DeeBee

Irrelevant to ALS

(5 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

285

3,541

7/29/2020 4:22:11 PM
in New Forum Moderator
by jgang

Forum
ALS Topics
ALS Research & Treatments (12 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,952 Posts: 118,319
Latest Post: Yesterday at 3:35:05 AM in Trials begin for a new weapon against Parkinson’s:... by JPLeRouzic
Living with ALS (3 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,851 Posts: 15,587
Latest Post: 9/12/2020 6:33:30 AM in Invasive ventilation by Leo1mc
ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 510 Posts: 3,226
Latest Post: 8/10/2020 10:11:07 PM in https://alsmnd.com/ by nolazybits
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 339
Latest Post: 4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,132
Latest Post: 8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 156 Posts: 1,248
Latest Post: 7/4/2020 4:41:46 AM in What to do if Als.net is shut down someday? by DeeBee
Irrelevant to ALS (5 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 285 Posts: 3,541
Latest Post: 7/29/2020 4:22:11 PM in New Forum Moderator by jgang

Latest Posts
Trials begin for a new weapon against Parkinson’s: light by JPLeRouzic (ALS Research & Treatments)	Yesterday at 3:35:05 AM
energy upp please by Cure92951 (ALS Research & Treatments)	9/17/2020 2:06:41 PM
Fasudil - Promising Results in 3 ALS Patients by MichaelNg (ALS Research & Treatments)	9/17/2020 12:52:23 AM
Drug Combo Slows Progression of ALS and Marks New Era of Treatments... by Nemesis (ALS Research & Treatments)	9/16/2020 3:56:17 PM
Corestem by Cure92951 (ALS Research & Treatments)	9/15/2020 2:41:49 PM
PRMT Inhibitors Protect Endothelial Cells from Toxic Methylated Arginine by neo52 (ALS Research & Treatments)	9/14/2020 3:18:44 AM
Invasive ventilation by Leo1mc (Living with ALS)	9/12/2020 6:33:30 AM
Duke-Bedlack-Clenbuterol by murmurat (ALS Research & Treatments)	9/11/2020 8:01:04 AM
A goodbye to my friend and a long overdue update to all of you by shankargopal (Living with ALS)	9/10/2020 1:55:54 PM
RCH4 by madmarlon (ALS Research & Treatments)	9/10/2020 7:07:58 AM
A Global Revolt Against Experts? by DeeBee (ALS Research & Treatments)	9/10/2020 4:19:03 AM
ebselen by JPLeRouzic (ALS Research & Treatments)	9/10/2020 3:27:13 AM
Alsfr decline and NFL test by sinfor (Living with ALS)	9/9/2020 1:33:30 PM
A spoon of leucine? by Barbarawanda (ALS Research & Treatments)	9/8/2020 1:18:11 PM
Any Updates on the Progress or Success of Copper-Australia ALS Trial? by TimSmith (ALS Research & Treatments)	9/7/2020 8:48:14 PM

Active Users
	27 active users - 0 members, 27 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM.
Statistics
	There are 143,392 posts in 11,937 topics in 7 forums. Last post Yesterday at 3:35:05 AM by JPLeRouzic. We have 36,020 registered members. The newest member is gmboughey.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (12 Viewing) Discuss the latest ALS-related scientific and medical findings	8,952	118,319	Yesterday at 3:35:05 AM in Trials begin for a new weapon against Parkinson’s:... by JPLeRouzic
	Living with ALS (3 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,851	15,587	9/12/2020 6:33:30 AM in Invasive ventilation by Leo1mc
	ALS Advocacy Discuss strategies for increasing public funding and attention	510	3,226	8/10/2020 10:11:07 PM in https://alsmnd.com/ by nolazybits
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	339	4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,132	8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	156	1,248	7/4/2020 4:41:46 AM in What to do if Als.net is shut down someday? by DeeBee
	Irrelevant to ALS (5 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	285	3,541	7/29/2020 4:22:11 PM in New Forum Moderator by jgang