ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

Bad language, disparaging remarks, personal attacks, misleading information, solicitation, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please contact us here.

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ALS Topics

ALS Research & Treatments

(44 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,130

120,279

12/2/2022 1:40:13 PM
in NAC, glycine ... and glutamate
by Nemesis

Living with ALS

(15 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,914

16,122

12/6/2022 12:56:40 AM
in ALS forum member has died
by Mau

ALS Advocacy

(1 Viewing)

Discuss strategies for increasing public funding and attention

518

3,248

11/23/2022 7:29:23 PM
in PLEASE sign and share this 'I am ALS'...
by par220

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

102

1,159

12/4/2022 7:03:50 AM
in TUDCA
by BBerg

Philosophy and Feedback

(3 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(2 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

289

3,577

8/4/2022 11:30:15 AM
in Pathetic
by ntuc

Forum
ALS Topics
ALS Research & Treatments (44 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,130 Posts: 120,279
Latest Post: 12/2/2022 1:40:13 PM in NAC, glycine ... and glutamate by Nemesis
Living with ALS (15 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,914 Posts: 16,122
Latest Post: 12/6/2022 12:56:40 AM in ALS forum member has died by Mau
ALS Advocacy (1 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 518 Posts: 3,248
Latest Post: 11/23/2022 7:29:23 PM in PLEASE sign and share this 'I am ALS'... by par220
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 102 Posts: 1,159
Latest Post: 12/4/2022 7:03:50 AM in TUDCA by BBerg
Philosophy and Feedback (3 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (2 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 289 Posts: 3,577
Latest Post: 8/4/2022 11:30:15 AM in Pathetic by ntuc

Latest Posts
ALS forum member has died by Mau (Living with ALS)	12/6/2022 12:56:40 AM
18 years by Mau (Living with ALS)	12/6/2022 12:52:39 AM
TUDCA by BBerg (Forum’s Choice Program at ALS TDI)	12/4/2022 7:03:50 AM
NAC, glycine ... and glutamate by Nemesis (ALS Research & Treatments)	12/2/2022 1:40:13 PM
Fasudil - Promising Results in 3 ALS Patients by BBerg (ALS Research & Treatments)	11/27/2022 8:54:20 AM
PLEASE sign and share this 'I am ALS' petition to have the FDA allow an AdComm hearing for Nurown. by par220 (ALS Advocacy)	11/23/2022 7:29:23 PM
Heart rate, diagnosis by Johnny5 (Living with ALS)	11/21/2022 8:19:35 PM
VRG50635- new drug for new target using AI by BBerg (ALS Research & Treatments)	11/18/2022 7:47:00 AM
ALS5 / ALS6 - now ciliogenesis by Mary Reid (ALS Research & Treatments)	11/12/2022 7:20:02 PM
A Truly remarable new drug : Perhaps a new ALS research model ?? by gocurcama (ALS Research & Treatments)	11/1/2022 4:07:42 PM
Pyruvate Supplementation by JPLeRouzic (ALS Research & Treatments)	11/1/2022 10:29:19 AM
COVID-19, TMPRSS2, camostat mesilate, Tazemetostat and ALS. by Mary Reid (Forum’s Choice Program at ALS TDI)	10/30/2022 10:01:22 PM
Blocking SARM1 Prevents Neuronal Degeneration by aloef (ALS Research & Treatments)	10/29/2022 4:30:33 PM
terazosin by MichaelNg (ALS Research & Treatments)	10/22/2022 1:14:02 AM
ALS text analysis by JPLeRouzic (ALS Research & Treatments)	10/17/2022 4:10:22 AM

Active Users
	51 active users - 1 member, 50 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. mdrdan
Statistics
	There are 146,015 posts in 12,199 topics in 7 forums. Last post Today at 3:02:17 AM by thomaslane. We have 39,825 registered members. The newest member is mmk69.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (44 Viewing) Discuss the latest ALS-related scientific and medical findings	9,130	120,279	12/2/2022 1:40:13 PM in NAC, glycine ... and glutamate by Nemesis
	Living with ALS (15 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,914	16,122	12/6/2022 12:56:40 AM in ALS forum member has died by Mau
	ALS Advocacy (1 Viewing) Discuss strategies for increasing public funding and attention	518	3,248	11/23/2022 7:29:23 PM in PLEASE sign and share this 'I am ALS'... by par220
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	102	1,159	12/4/2022 7:03:50 AM in TUDCA by BBerg
	Philosophy and Feedback (3 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (2 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	289	3,577	8/4/2022 11:30:15 AM in Pathetic by ntuc