ALS Forums

ALS Forum

Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

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ALS Topics

ALS Research & Treatments

(24 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,754

116,416

Today at 11:18:10 AM
in Nicotinamide Riboside Self Testing Thread
by Barbarawanda

Living with ALS

(8 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,782

15,077

8/20/2019 11:00:08 AM
in Has anyone had any luck obtaining Arimoclomol?
by JPLeRouzic

ALS Advocacy

(2 Viewing)

Discuss strategies for increasing public funding and attention

505

3,215

8/3/2019 6:53:07 PM
in Harry Potter
by DeeBee

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

337

3/13/2019 11:44:59 PM
in SAH grant
by GregK

Forum’s Choice Program at ALS TDI

(2 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,046

Today at 3:52:15 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by DeeBee

Philosophy and Feedback

(8 Viewing)

Discusses forum philosophy and any comments or suggestions.

146

1,178

8/20/2019 10:43:20 AM
in Death
by sergey

Irrelevant to ALS

Postings deemed irrelevant to ALS by the ALS TDI Research Team

275

3,517

8/19/2019 12:47:36 AM
in Camouflage
by DeeBee

Forum
ALS Topics
ALS Research & Treatments (24 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,754 Posts: 116,416
Latest Post: Today at 11:18:10 AM in Nicotinamide Riboside Self Testing Thread by Barbarawanda
Living with ALS (8 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,782 Posts: 15,077
Latest Post: 8/20/2019 11:00:08 AM in Has anyone had any luck obtaining Arimoclomol? by JPLeRouzic
ALS Advocacy (2 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 505 Posts: 3,215
Latest Post: 8/3/2019 6:53:07 PM in Harry Potter by DeeBee
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 337
Latest Post: 3/13/2019 11:44:59 PM in SAH grant by GregK
Forum’s Choice Program at ALS TDI (2 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 92 Posts: 1,046
Latest Post: Today at 3:52:15 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by DeeBee
Philosophy and Feedback (8 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 146 Posts: 1,178
Latest Post: 8/20/2019 10:43:20 AM in Death by sergey
Irrelevant to ALS
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 275 Posts: 3,517
Latest Post: 8/19/2019 12:47:36 AM in Camouflage by DeeBee

Latest Posts
Nicotinamide Riboside Self Testing Thread by Barbarawanda (ALS Research & Treatments)	Today at 11:18:10 AM
Possible sporadic Amyotrophic Lateral Sclerosis (sALS) cure. by DeeBee (Forum’s Choice Program at ALS TDI)	Today at 3:52:15 AM
What happened to GM604, Genervon? by lolcol (ALS Research & Treatments)	Yesterday at 4:36:41 AM
Brainstorm update - Matt Bellina Right to Try by brokenav8r (ALS Research & Treatments)	8/20/2019 2:38:12 PM
Has anyone had any luck obtaining Arimoclomol? by JPLeRouzic (Living with ALS)	8/20/2019 11:00:08 AM
Death by sergey (Philosophy and Feedback)	8/20/2019 10:43:20 AM
Trying out protocol for LMN dominant sALS (my friend) - restarting and will report here by OhGosh (ALS Research & Treatments)	8/20/2019 9:14:58 AM
Stress and ALS by Mau (ALS Research & Treatments)	8/20/2019 9:14:20 AM
Eating with a partially atrophied tongue by shankargopal (Living with ALS)	8/19/2019 9:10:33 PM
Leaky Gut Syndrome ALS connection by deb1aw (ALS Research & Treatments)	8/19/2019 8:23:18 AM
Camouflage by DeeBee (Irrelevant to ALS)	8/19/2019 12:47:36 AM
How does one detect or identify what type of ALS they have so as too better treat it? by JPLeRouzic (Living with ALS)	8/17/2019 2:54:51 AM
Quality control of mitochondria in neurons by deb1aw (ALS Research & Treatments)	8/16/2019 6:42:03 PM
Test for toxicity?! And help for sleepness?! by SilverFox (Living with ALS)	8/16/2019 3:24:30 PM
Is ALS.net is mining bitcoins in our browsers? by JPLeRouzic (Irrelevant to ALS)	8/16/2019 3:16:02 AM

Active Users
	53 active users - 3 members, 50 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. jm389 , cmals , Mikey1
Statistics
	There are 140,786 posts in 11,637 topics in 7 forums. Last post Today at 11:18:10 AM by Barbarawanda. We have 32,345 registered members. The newest member is cmals.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (24 Viewing) Discuss the latest ALS-related scientific and medical findings	8,754	116,416	Today at 11:18:10 AM in Nicotinamide Riboside Self Testing Thread by Barbarawanda
	Living with ALS (8 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,782	15,077	8/20/2019 11:00:08 AM in Has anyone had any luck obtaining Arimoclomol? by JPLeRouzic
	ALS Advocacy (2 Viewing) Discuss strategies for increasing public funding and attention	505	3,215	8/3/2019 6:53:07 PM in Harry Potter by DeeBee
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	61	337	3/13/2019 11:44:59 PM in SAH grant by GregK
	Forum’s Choice Program at ALS TDI (2 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	92	1,046	Today at 3:52:15 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by DeeBee
	Philosophy and Feedback (8 Viewing) Discusses forum philosophy and any comments or suggestions.	146	1,178	8/20/2019 10:43:20 AM in Death by sergey
	Irrelevant to ALS Postings deemed irrelevant to ALS by the ALS TDI Research Team	275	3,517	8/19/2019 12:47:36 AM in Camouflage by DeeBee