ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(96 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,127

120,219

9/26/2022 7:01:05 AM
in M102
by MichaelNg

Living with ALS

(87 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,911

16,107

9/23/2022 2:05:20 PM
in 18 years
by mdrdan

ALS Advocacy

(3 Viewing)

Discuss strategies for increasing public funding and attention

517

3,247

8/9/2022 2:40:08 AM
in CDC ALS Registry in the US
by rknt50b

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

101

1,147

8/29/2022 1:14:50 PM
in Chromophores from Purified Aloe Vera
by royalfig

Philosophy and Feedback

(3 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(4 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

289

3,577

8/4/2022 11:30:15 AM
in Pathetic
by ntuc

Forum
ALS Topics
ALS Research & Treatments (96 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,127 Posts: 120,219
Latest Post: 9/26/2022 7:01:05 AM in M102 by MichaelNg
Living with ALS (87 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,911 Posts: 16,107
Latest Post: 9/23/2022 2:05:20 PM in 18 years by mdrdan
ALS Advocacy (3 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 517 Posts: 3,247
Latest Post: 8/9/2022 2:40:08 AM in CDC ALS Registry in the US by rknt50b
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 101 Posts: 1,147
Latest Post: 8/29/2022 1:14:50 PM in Chromophores from Purified Aloe Vera by royalfig
Philosophy and Feedback (3 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (4 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 289 Posts: 3,577
Latest Post: 8/4/2022 11:30:15 AM in Pathetic by ntuc

Latest Posts
M102 by MichaelNg (ALS Research & Treatments)	9/26/2022 7:01:05 AM
Army veteran regains ability to walk with robotic exoskeleton after paralysis: ‘Beyond words’ by mdrdan (ALS Research & Treatments)	9/23/2022 4:33:22 PM
A Truly remarable new drug : Perhaps a new ALS research model ?? by gocurcama (ALS Research & Treatments)	9/23/2022 3:20:03 PM
18 years by mdrdan (Living with ALS)	9/23/2022 2:05:20 PM
The Rutherford Method for treating ALS by Dilbert (ALS Research & Treatments)	9/18/2022 1:14:56 PM
terazosin by MichaelNg (ALS Research & Treatments)	9/14/2022 3:27:43 AM
amx0035 by alsorlando (ALS Research & Treatments)	9/9/2022 1:28:46 PM
Apolipoprotein B-100 by MichaelNg (ALS Research & Treatments)	9/6/2022 12:51:11 AM
Bojungikgi-tang BJIGT by Dalerfink (ALS Research & Treatments)	9/5/2022 4:29:14 PM
tikomed by alsorlando (ALS Research & Treatments)	9/2/2022 11:28:20 AM
NEK6 Inhibitor as novel disease modifier by 3chris057 (ALS Research & Treatments)	8/30/2022 2:51:08 AM
Chromophores from Purified Aloe Vera by royalfig (Forum’s Choice Program at ALS TDI)	8/29/2022 1:14:50 PM
Quality control of mitochondria in neurons by shueydj (ALS Research & Treatments)	8/25/2022 3:34:36 PM
Nicotinamide riboside (NR) and co-factors experiences and results by leviticus (ALS Research & Treatments)	8/23/2022 12:23:22 AM
Amylyx AM0035 - Anyone taking this? by Sarahhelen (ALS Research & Treatments)	8/15/2022 11:20:06 AM

Active Users
	148 active users - 0 members, 148 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM.
Statistics
	There are 145,927 posts in 12,191 topics in 7 forums. Last post 9/26/2022 7:01:05 AM by MichaelNg. We have 39,559 registered members. The newest member is durgoiti.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (96 Viewing) Discuss the latest ALS-related scientific and medical findings	9,127	120,219	9/26/2022 7:01:05 AM in M102 by MichaelNg
	Living with ALS (87 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,911	16,107	9/23/2022 2:05:20 PM in 18 years by mdrdan
	ALS Advocacy (3 Viewing) Discuss strategies for increasing public funding and attention	517	3,247	8/9/2022 2:40:08 AM in CDC ALS Registry in the US by rknt50b
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	101	1,147	8/29/2022 1:14:50 PM in Chromophores from Purified Aloe Vera by royalfig
	Philosophy and Feedback (3 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (4 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	289	3,577	8/4/2022 11:30:15 AM in Pathetic by ntuc