ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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Forum

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ALS Topics

ALS Research & Treatments

(29 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,909

117,974

Yesterday at 2:49:14 PM
in Scientists made squid fall ill with ALS to...
by packattack

Living with ALS

(3 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,843

15,554

Today at 1:15:30 AM
in respiratory muscles in ALS
by MichaelNg

ALS Advocacy

(3 Viewing)

Discuss strategies for increasing public funding and attention

507

3,222

4/13/2020 1:15:14 PM
in Every-Community Map
by rknt50b

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

339

4/29/2020 7:13:36 PM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

1,127

5/7/2020 6:55:55 PM
in COVID-19, TMPRSS2, camostat mesilate, Tazemetostat...
by Mary Reid

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

155

1,246

3/14/2020 4:52:19 PM
in ALS and bit of biochemistry
by JPLeRouzic

Irrelevant to ALS

(1 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

284

3,536

5/17/2020 3:17:17 PM
in An article about natural products and...
by JPLeRouzic

Forum
ALS Topics
ALS Research & Treatments (29 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,909 Posts: 117,974
Latest Post: Yesterday at 2:49:14 PM in Scientists made squid fall ill with ALS to... by packattack
Living with ALS (3 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,843 Posts: 15,554
Latest Post: Today at 1:15:30 AM in respiratory muscles in ALS by MichaelNg
ALS Advocacy (3 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 507 Posts: 3,222
Latest Post: 4/13/2020 1:15:14 PM in Every-Community Map by rknt50b
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 339
Latest Post: 4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,127
Latest Post: 5/7/2020 6:55:55 PM in COVID-19, TMPRSS2, camostat mesilate, Tazemetostat... by Mary Reid
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 155 Posts: 1,246
Latest Post: 3/14/2020 4:52:19 PM in ALS and bit of biochemistry by JPLeRouzic
Irrelevant to ALS (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 284 Posts: 3,536
Latest Post: 5/17/2020 3:17:17 PM in An article about natural products and... by JPLeRouzic

Latest Posts
respiratory muscles in ALS by MichaelNg (Living with ALS)	Today at 1:15:30 AM
Scientists made squid fall ill with ALS to understand how to stop the disease by packattack (ALS Research & Treatments)	Yesterday at 2:49:14 PM
Duke-Bedlack-Clenbuterol by murmurat (ALS Research & Treatments)	6/1/2020 7:45:06 PM
Improving a peptide targeting TDP-43 with bioinformatics tools. by JPLeRouzic (ALS Research & Treatments)	6/1/2020 2:36:27 PM
Nicotine for ALS? by packattack (ALS Research & Treatments)	6/1/2020 1:16:37 PM
Problems with Metabolizing Metals in Childhood Linked to Developing ALS in Adulthood by packattack (ALS Research & Treatments)	6/1/2020 12:38:11 PM
Wisdom Teeth by packattack (ALS Research & Treatments)	6/1/2020 12:20:33 PM
Coronavirus news... by DeeBee (Living with ALS)	6/1/2020 5:14:41 AM
ALS and gut bacteria linked in “remarkable” new Harvard study (Akkermansia Muciniphila- Shape B420) by murmurat (ALS Research & Treatments)	5/31/2020 7:09:31 PM
The Nose (microbiome and neurogenesis) by packattack (ALS Research & Treatments)	5/31/2020 4:30:54 AM
Short bike rides drive "death marker protein" to refresh worn muscles (Lysine) by packattack (ALS Research & Treatments)	5/30/2020 9:31:36 PM
Restoring nerve-muscle communication in ALS (SV2) by MichaelNg (ALS Research & Treatments)	5/29/2020 8:29:48 AM
Matt and Mark in the gym after Nurown on 5/25/20 by Big__Steve (ALS Research & Treatments)	5/28/2020 5:58:11 PM
advice requested. by JPLeRouzic (Living with ALS)	5/28/2020 1:19:25 PM
Quality control of mitochondria in neurons by Barbarawanda (ALS Research & Treatments)	5/28/2020 12:36:51 PM

Active Users
	36 active users - 1 member, 35 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. agenjoe72
Statistics
	There are 142,998 posts in 11,881 topics in 7 forums. Last post Today at 1:15:30 AM by MichaelNg. We have 35,360 registered members. The newest member is lesly.serrano86@gmail.com.

ALS Forum

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (29 Viewing) Discuss the latest ALS-related scientific and medical findings	8,909	117,974	Yesterday at 2:49:14 PM in Scientists made squid fall ill with ALS to... by packattack
	Living with ALS (3 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,843	15,554	Today at 1:15:30 AM in respiratory muscles in ALS by MichaelNg
	ALS Advocacy (3 Viewing) Discuss strategies for increasing public funding and attention	507	3,222	4/13/2020 1:15:14 PM in Every-Community Map by rknt50b
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	339	4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,127	5/7/2020 6:55:55 PM in COVID-19, TMPRSS2, camostat mesilate, Tazemetostat... by Mary Reid
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	155	1,246	3/14/2020 4:52:19 PM in ALS and bit of biochemistry by JPLeRouzic
	Irrelevant to ALS (1 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	284	3,536	5/17/2020 3:17:17 PM in An article about natural products and... by JPLeRouzic