ALS Forums

ALS Forum

Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

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ALS Topics

ALS Research & Treatments

(34 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,811

117,059

Today at 5:32:19 AM
in Improving a peptide targeting TDP-43 with...
by JPLeRouzic

Living with ALS

(4 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,804

15,302

11/14/2019 4:52:42 PM
in Can this be anything other than ALS?
by leroyb

ALS Advocacy

(6 Viewing)

Discuss strategies for increasing public funding and attention

506

3,217

11/12/2019 7:32:32 PM
in Genetic Testing is [not] Medically Necessary
by royalfig

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

338

10/9/2019 6:59:50 PM
in Neudexta
by Rusknight

Forum’s Choice Program at ALS TDI

(1 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,081

11/18/2019 4:18:40 AM
in Ambroxol
by JPLeRouzic

Philosophy and Feedback

(1 Viewing)

Discusses forum philosophy and any comments or suggestions.

153

1,228

Yesterday at 8:57:08 AM
in Infections, antibiotics and ALS
by Rlschafferrr

Irrelevant to ALS

Postings deemed irrelevant to ALS by the ALS TDI Research Team

277

3,524

10/26/2019 10:18:39 AM
in Bulbar onset
by Tam

Forum
ALS Topics
ALS Research & Treatments (34 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,811 Posts: 117,059
Latest Post: Today at 5:32:19 AM in Improving a peptide targeting TDP-43 with... by JPLeRouzic
Living with ALS (4 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,804 Posts: 15,302
Latest Post: 11/14/2019 4:52:42 PM in Can this be anything other than ALS? by leroyb
ALS Advocacy (6 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 506 Posts: 3,217
Latest Post: 11/12/2019 7:32:32 PM in Genetic Testing is [not] Medically Necessary by royalfig
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 338
Latest Post: 10/9/2019 6:59:50 PM in Neudexta by Rusknight
Forum’s Choice Program at ALS TDI (1 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 93 Posts: 1,081
Latest Post: 11/18/2019 4:18:40 AM in Ambroxol by JPLeRouzic
Philosophy and Feedback (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 153 Posts: 1,228
Latest Post: Yesterday at 8:57:08 AM in Infections, antibiotics and ALS by Rlschafferrr
Irrelevant to ALS
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 277 Posts: 3,524
Latest Post: 10/26/2019 10:18:39 AM in Bulbar onset by Tam

Latest Posts
Improving a peptide targeting TDP-43 with bioinformatics tools. by JPLeRouzic (ALS Research & Treatments)	Today at 5:32:19 AM
cu-astm where to buy by taztaz (ALS Research & Treatments)	Yesterday at 10:13:41 PM
Does someone research what ALS could it be? by Deja (ALS Research & Treatments)	Yesterday at 3:56:00 PM
NurOwn and Stem Cells by JPLeRouzic (ALS Research & Treatments)	Yesterday at 10:42:36 AM
Infections, antibiotics and ALS by Rlschafferrr (Philosophy and Feedback)	Yesterday at 8:57:08 AM
Blocking SARM1 Prevents Neuronal Degeneration by Barbarawanda (ALS Research & Treatments)	Yesterday at 7:09:19 AM
Stop the disease. by Tima (ALS Research & Treatments)	11/19/2019 3:03:12 AM
Ambroxol by JPLeRouzic (Forum’s Choice Program at ALS TDI)	11/18/2019 4:18:40 AM
Quality control of mitochondria in neurons by Barbarawanda (ALS Research & Treatments)	11/17/2019 8:03:27 PM
Red light therapy by sergey (ALS Research & Treatments)	11/15/2019 11:44:14 AM
Can this be anything other than ALS? by leroyb (Living with ALS)	11/14/2019 4:52:42 PM
"Pre-ALS"? by Tam (ALS Research & Treatments)	11/14/2019 11:49:50 AM
Hydrotherapy by DeeBee (Living with ALS)	11/14/2019 3:49:42 AM
Patient Fellowships - Intl ALS MND Symposium - December - Perth by DeeBee (ALS Research & Treatments)	11/13/2019 3:44:08 AM
Genetic Testing is [not] Medically Necessary by royalfig (ALS Advocacy)	11/12/2019 7:32:32 PM

Active Users
	40 active users - 1 member, 39 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. ksenver
Statistics
	There are 141,749 posts in 11,727 topics in 7 forums. Last post Today at 5:32:19 AM by JPLeRouzic. We have 33,487 registered members. The newest member is Carlpeter.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (34 Viewing) Discuss the latest ALS-related scientific and medical findings	8,811	117,059	Today at 5:32:19 AM in Improving a peptide targeting TDP-43 with... by JPLeRouzic
	Living with ALS (4 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,804	15,302	11/14/2019 4:52:42 PM in Can this be anything other than ALS? by leroyb
	ALS Advocacy (6 Viewing) Discuss strategies for increasing public funding and attention	506	3,217	11/12/2019 7:32:32 PM in Genetic Testing is [not] Medically Necessary by royalfig
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	61	338	10/9/2019 6:59:50 PM in Neudexta by Rusknight
	Forum’s Choice Program at ALS TDI (1 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	93	1,081	11/18/2019 4:18:40 AM in Ambroxol by JPLeRouzic
	Philosophy and Feedback (1 Viewing) Discusses forum philosophy and any comments or suggestions.	153	1,228	Yesterday at 8:57:08 AM in Infections, antibiotics and ALS by Rlschafferrr
	Irrelevant to ALS Postings deemed irrelevant to ALS by the ALS TDI Research Team	277	3,524	10/26/2019 10:18:39 AM in Bulbar onset by Tam