ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

Bad language, disparaging remarks, personal attacks, misleading information, solicitation, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please contact us here.

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ALS Topics

ALS Research & Treatments

(61 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,119

120,123

Today at 4:03:03 PM
in The Rutherford Method for treating ALS
by redrooflm

Living with ALS

(14 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,911

16,092

6/22/2022 9:57:23 AM
in dizziness
by Grounded

ALS Advocacy

(2 Viewing)

Discuss strategies for increasing public funding and attention

516

3,243

6/2/2021 4:43:33 PM
in The MLB has announced an annual Lou Gehrig's...
by RichardHALS

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Forum’s Choice Program at ALS TDI

(1 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

100

1,140

5/24/2022 5:31:19 PM
in Round 1 Forum Member Prioritization
by Trespalmas

Philosophy and Feedback

(1 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(5 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

289

3,577

1/2/2022 12:45:47 PM
in Numerous diseases might benefit from...
by JPLeRouzic

Forum
ALS Topics
ALS Research & Treatments (61 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,119 Posts: 120,123
Latest Post: Today at 4:03:03 PM in The Rutherford Method for treating ALS by redrooflm
Living with ALS (14 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,911 Posts: 16,092
Latest Post: 6/22/2022 9:57:23 AM in dizziness by Grounded
ALS Advocacy (2 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 516 Posts: 3,243
Latest Post: 6/2/2021 4:43:33 PM in The MLB has announced an annual Lou Gehrig's... by RichardHALS
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Forum’s Choice Program at ALS TDI (1 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 100 Posts: 1,140
Latest Post: 5/24/2022 5:31:19 PM in Round 1 Forum Member Prioritization by Trespalmas
Philosophy and Feedback (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (5 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 289 Posts: 3,577
Latest Post: 1/2/2022 12:45:47 PM in Numerous diseases might benefit from... by JPLeRouzic

Latest Posts
The Rutherford Method for treating ALS by redrooflm (ALS Research & Treatments)	Today at 4:03:03 PM
tikomed by Dalerfink (ALS Research & Treatments)	6/26/2022 9:06:17 AM
Pulse Oximeter Accuracy and Limitations: FDA Safety Communication by Dalerfink (ALS Research & Treatments)	6/25/2022 4:43:54 PM
dizziness by Grounded (Living with ALS)	6/22/2022 9:57:23 AM
18 years by mdrdan (Living with ALS)	6/21/2022 11:13:04 AM
Potential diagnosis by mdrdan (Living with ALS)	6/19/2022 12:55:49 PM
EMG and Nerve Conduction by glondono (Living with ALS)	6/18/2022 7:10:33 PM
Nicotinamide riboside (NR) and co-factors experiences and results by Dalerfink (ALS Research & Treatments)	6/17/2022 5:03:25 PM
Amylyx Approved in Canada... by Dalerfink (ALS Research & Treatments)	6/17/2022 4:35:37 PM
Potential diagnosis by glondono (Living with ALS)	6/14/2022 7:10:06 PM
Sarms for ALS by murmurat (ALS Research & Treatments)	6/13/2022 8:36:41 PM
Silent mutations not silent after all ??? by Dalerfink (ALS Research & Treatments)	6/11/2022 11:39:42 AM
Quality control of mitochondria in neurons by shueydj (ALS Research & Treatments)	6/10/2022 2:18:02 PM
niclosamide by murmurat (ALS Research & Treatments)	6/8/2022 4:49:48 PM
Extra-pulmonary tuberculosis - MND association by Deja (ALS Research & Treatments)	6/7/2022 7:08:50 PM

Active Users
	93 active users - 2 members, 91 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. alsorlando , verbeek1444
Statistics
	There are 145,805 posts in 12,181 topics in 7 forums. Last post Today at 4:03:03 PM by redrooflm. We have 39,194 registered members. The newest member is billcorrigan.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (61 Viewing) Discuss the latest ALS-related scientific and medical findings	9,119	120,123	Today at 4:03:03 PM in The Rutherford Method for treating ALS by redrooflm
	Living with ALS (14 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,911	16,092	6/22/2022 9:57:23 AM in dizziness by Grounded
	ALS Advocacy (2 Viewing) Discuss strategies for increasing public funding and attention	516	3,243	6/2/2021 4:43:33 PM in The MLB has announced an annual Lou Gehrig's... by RichardHALS
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Forum’s Choice Program at ALS TDI (1 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	100	1,140	5/24/2022 5:31:19 PM in Round 1 Forum Member Prioritization by Trespalmas
	Philosophy and Feedback (1 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (5 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	289	3,577	1/2/2022 12:45:47 PM in Numerous diseases might benefit from... by JPLeRouzic