ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please contact us here.

Forum

Topics

Posts

Last Post

ALS Topics

ALS Research & Treatments

(54 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,879

117,735

Today at 9:50:04 AM
in Hero Proteins
by gocurcama

Living with ALS

(13 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,835

15,508

Today at 2:45:54 AM
in Coronavirus news...
by DeeBee

ALS Advocacy

Discuss strategies for increasing public funding and attention

506

3,221

2/6/2020 3:12:14 PM
in Genetic Testing is [not] Medically Necessary
by royalfig

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

338

10/9/2019 6:59:50 PM
in Neudexta
by Rusknight

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

1,094

Today at 5:32:16 AM
in COVID-19, TMPRSS2, camostat mesilate and ALS.
by Mary Reid

Philosophy and Feedback

(1 Viewing)

Discusses forum philosophy and any comments or suggestions.

155

1,246

3/14/2020 4:52:19 PM
in ALS and bit of biochemistry
by JPLeRouzic

Irrelevant to ALS

(1 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

283

3,535

1/31/2020 8:18:24 AM
in New Here...
by adrienne9

Forum
ALS Topics
ALS Research & Treatments (54 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,879 Posts: 117,735
Latest Post: Today at 9:50:04 AM in Hero Proteins by gocurcama
Living with ALS (13 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,835 Posts: 15,508
Latest Post: Today at 2:45:54 AM in Coronavirus news... by DeeBee
ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 506 Posts: 3,221
Latest Post: 2/6/2020 3:12:14 PM in Genetic Testing is [not] Medically Necessary by royalfig
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 338
Latest Post: 10/9/2019 6:59:50 PM in Neudexta by Rusknight
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,094
Latest Post: Today at 5:32:16 AM in COVID-19, TMPRSS2, camostat mesilate and ALS. by Mary Reid
Philosophy and Feedback (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 155 Posts: 1,246
Latest Post: 3/14/2020 4:52:19 PM in ALS and bit of biochemistry by JPLeRouzic
Irrelevant to ALS (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 283 Posts: 3,535
Latest Post: 1/31/2020 8:18:24 AM in New Here... by adrienne9

Latest Posts
Hero Proteins by gocurcama (ALS Research & Treatments)	Today at 9:50:04 AM
COVID-19, TMPRSS2, camostat mesilate and ALS. by Mary Reid (Forum’s Choice Program at ALS TDI)	Today at 5:32:16 AM
Coronavirus news... by DeeBee (Living with ALS)	Today at 2:45:54 AM
Telbivudine by Rusknight (ALS Research & Treatments)	4/2/2020 6:41:01 AM
Pyruvate Supplementation by Barbarawanda (ALS Research & Treatments)	4/1/2020 1:44:56 PM
ALS with bulbar onset and urge to gag? by tlass (Living with ALS)	4/1/2020 9:06:46 AM
Ropinirole by Rusknight (ALS Research & Treatments)	4/1/2020 5:04:24 AM
Radicava Phase 3 trial results by Barbarawanda (ALS Research & Treatments)	3/30/2020 8:13:52 AM
Melatonin is produced in the mitochondria and that may be for a good reason....... by Barbarawanda (ALS Research & Treatments)	3/28/2020 2:00:55 PM
GAC Injections by DeeBee (ALS Research & Treatments)	3/27/2020 7:09:27 AM
Corona Virus by Barbarawanda (ALS Research & Treatments)	3/24/2020 7:13:09 AM
Could it be anything else? by SilverFox (Living with ALS)	3/21/2020 10:11:44 PM
Quality control of mitochondria in neurons by shueydj (ALS Research & Treatments)	3/21/2020 5:25:20 PM
Possible sporadic Amyotrophic Lateral Sclerosis (sALS) cure. by JPLeRouzic (Forum’s Choice Program at ALS TDI)	3/21/2020 4:35:16 AM
Concerned by Pg1995 (Living with ALS)	3/19/2020 4:27:34 PM

Active Users
	58 active users - 1 member, 57 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. sinfor
Statistics
	There are 142,677 posts in 11,840 topics in 7 forums. Last post Today at 9:50:04 AM by gocurcama. We have 34,926 registered members. The newest member is caroldstone.

ALS Forum

ALS Resources

Favorites

Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (54 Viewing) Discuss the latest ALS-related scientific and medical findings	8,879	117,735	Today at 9:50:04 AM in Hero Proteins by gocurcama
	Living with ALS (13 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,835	15,508	Today at 2:45:54 AM in Coronavirus news... by DeeBee
	ALS Advocacy Discuss strategies for increasing public funding and attention	506	3,221	2/6/2020 3:12:14 PM in Genetic Testing is [not] Medically Necessary by royalfig
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	61	338	10/9/2019 6:59:50 PM in Neudexta by Rusknight
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,094	Today at 5:32:16 AM in COVID-19, TMPRSS2, camostat mesilate and ALS. by Mary Reid
	Philosophy and Feedback (1 Viewing) Discusses forum philosophy and any comments or suggestions.	155	1,246	3/14/2020 4:52:19 PM in ALS and bit of biochemistry by JPLeRouzic
	Irrelevant to ALS (1 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	283	3,535	1/31/2020 8:18:24 AM in New Here... by adrienne9