ALS Forums

ALS Forum

Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

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ALS Topics

ALS Research & Treatments

(15 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,777

116,672

Today at 7:47:42 AM
in Quality control of mitochondria in neurons
by shueydj

Living with ALS

(3 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,790

15,207

9/20/2019 6:02:44 PM
in nightmares
by Rlschafferrr

ALS Advocacy

(1 Viewing)

Discuss strategies for increasing public funding and attention

505

3,215

8/3/2019 6:53:07 PM
in Harry Potter
by DeeBee

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

337

3/13/2019 11:44:59 PM
in SAH grant
by GregK

Forum’s Choice Program at ALS TDI

(1 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,073

9/13/2019 9:10:30 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by Pepe91

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

148

1,181

9/6/2019 12:08:10 PM
in Virginia Lee got the $3M Breakthrough prize
by shueydj

Irrelevant to ALS

(1 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

276

3,519

9/14/2019 6:49:53 PM
in Relations between genetic mutations and putative...
by ardi

Forum
ALS Topics
ALS Research & Treatments (15 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,777 Posts: 116,672
Latest Post: Today at 7:47:42 AM in Quality control of mitochondria in neurons by shueydj
Living with ALS (3 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,790 Posts: 15,207
Latest Post: 9/20/2019 6:02:44 PM in nightmares by Rlschafferrr
ALS Advocacy (1 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 505 Posts: 3,215
Latest Post: 8/3/2019 6:53:07 PM in Harry Potter by DeeBee
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 337
Latest Post: 3/13/2019 11:44:59 PM in SAH grant by GregK
Forum’s Choice Program at ALS TDI (1 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 92 Posts: 1,073
Latest Post: 9/13/2019 9:10:30 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by Pepe91
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 148 Posts: 1,181
Latest Post: 9/6/2019 12:08:10 PM in Virginia Lee got the $3M Breakthrough prize by shueydj
Irrelevant to ALS (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 276 Posts: 3,519
Latest Post: 9/14/2019 6:49:53 PM in Relations between genetic mutations and putative... by ardi

Latest Posts
Quality control of mitochondria in neurons by shueydj (ALS Research & Treatments)	Today at 7:47:42 AM
Gene Therapy Update by DeeBee (ALS Research & Treatments)	Yesterday at 3:43:29 AM
Do we know what causes ALS yet? by agenjoe72 (ALS Research & Treatments)	Yesterday at 3:09:23 AM
Happy News?: Mass. General to begin ALS trials that test several drugs at once by mdrdan (ALS Research & Treatments)	9/20/2019 7:08:12 PM
nightmares by Rlschafferrr (Living with ALS)	9/20/2019 6:02:44 PM
Repurposing by JPLeRouzic (ALS Research & Treatments)	9/20/2019 3:13:05 PM
10% survive 10 years, but why? by mdrdan (ALS Research & Treatments)	9/20/2019 2:04:19 PM
Brainstorm by PhilipFromGermany (ALS Research & Treatments)	9/20/2019 11:55:28 AM
Nicotinamide Riboside Self Testing Thread by Rusknight (ALS Research & Treatments)	9/19/2019 7:38:20 PM
Less of fasciculations by JPLeRouzic (ALS Research & Treatments)	9/18/2019 3:29:46 PM
Energy healing by DeeBee (ALS Research & Treatments)	9/18/2019 4:04:52 AM
Clonus came to "dead" leg by jethro1 (ALS Research & Treatments)	9/17/2019 2:22:37 PM
trimetazidine by murmurat (ALS Research & Treatments)	9/15/2019 7:39:51 PM
Leaky Gut Syndrome ALS connection by deb1aw (ALS Research & Treatments)	9/15/2019 2:11:58 PM
Can this be anything other than ALS? by Seymour (Living with ALS)	9/15/2019 11:06:21 AM

Active Users
	20 active users - 0 members, 20 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM.
Statistics
	There are 141,204 posts in 11,671 topics in 7 forums. Last post Today at 7:47:42 AM by shueydj. We have 32,804 registered members. The newest member is shakazuluu215@gmail.com.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (15 Viewing) Discuss the latest ALS-related scientific and medical findings	8,777	116,672	Today at 7:47:42 AM in Quality control of mitochondria in neurons by shueydj
	Living with ALS (3 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,790	15,207	9/20/2019 6:02:44 PM in nightmares by Rlschafferrr
	ALS Advocacy (1 Viewing) Discuss strategies for increasing public funding and attention	505	3,215	8/3/2019 6:53:07 PM in Harry Potter by DeeBee
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	61	337	3/13/2019 11:44:59 PM in SAH grant by GregK
	Forum’s Choice Program at ALS TDI (1 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	92	1,073	9/13/2019 9:10:30 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by Pepe91
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	148	1,181	9/6/2019 12:08:10 PM in Virginia Lee got the $3M Breakthrough prize by shueydj
	Irrelevant to ALS (1 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	276	3,519	9/14/2019 6:49:53 PM in Relations between genetic mutations and putative... by ardi