ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(38 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,970

118,532

Today at 2:38:38 PM
in Current protocol
by Cure92951

Living with ALS

(10 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,858

15,636

Yesterday at 9:56:51 AM
in MRI hotspots in ALS
by Cure92951

ALS Advocacy

(2 Viewing)

Discuss strategies for increasing public funding and attention

510

3,226

8/10/2020 10:11:07 PM
in https://alsmnd.com/
by nolazybits

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

339

4/29/2020 7:13:36 PM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

1,132

8/15/2020 3:07:38 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by JPLeRouzic

Philosophy and Feedback

Discusses forum philosophy and any comments or suggestions.

156

1,248

7/4/2020 4:41:46 AM
in What to do if Als.net is shut down someday?
by DeeBee

Irrelevant to ALS

(3 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

285

3,541

7/29/2020 4:22:11 PM
in New Forum Moderator
by jgang

Forum
ALS Topics
ALS Research & Treatments (38 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,970 Posts: 118,532
Latest Post: Today at 2:38:38 PM in Current protocol by Cure92951
Living with ALS (10 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,858 Posts: 15,636
Latest Post: Yesterday at 9:56:51 AM in MRI hotspots in ALS by Cure92951
ALS Advocacy (2 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 510 Posts: 3,226
Latest Post: 8/10/2020 10:11:07 PM in https://alsmnd.com/ by nolazybits
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 339
Latest Post: 4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,132
Latest Post: 8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
Philosophy and Feedback
Discusses forum philosophy and any comments or suggestions.
Topics: 156 Posts: 1,248
Latest Post: 7/4/2020 4:41:46 AM in What to do if Als.net is shut down someday? by DeeBee
Irrelevant to ALS (3 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 285 Posts: 3,541
Latest Post: 7/29/2020 4:22:11 PM in New Forum Moderator by jgang

Latest Posts
Current protocol by Cure92951 (ALS Research & Treatments)	Today at 2:38:38 PM
Seen in prior threads zinc gluzin for breathing help by Cure92951 (ALS Research & Treatments)	Today at 2:04:24 PM
dihydrotestostetone in ALS by Cure92951 (ALS Research & Treatments)	Today at 12:20:43 PM
Gilenya by Cure92951 (ALS Research & Treatments)	Yesterday at 2:56:38 PM
Propofol and sevoflurane by Cure92951 (ALS Research & Treatments)	Yesterday at 2:51:38 PM
Duke-Bedlack-Clenbuterol by Cure92951 (ALS Research & Treatments)	Yesterday at 2:29:28 PM
MRI hotspots in ALS by Cure92951 (Living with ALS)	Yesterday at 9:56:51 AM
Gliosis in white matter brain mri by Cure92951 (ALS Research & Treatments)	10/25/2020 2:42:48 PM
Coronavirus news... by DeeBee (Living with ALS)	10/25/2020 8:14:11 AM
17 years by Cure92951 (Living with ALS)	10/24/2020 4:50:56 PM
Please to help understand weakness/wasting by Nina1977 (ALS Research & Treatments)	10/23/2020 12:40:04 PM
Twitching 11 months by Cure92951 (ALS Research & Treatments)	10/23/2020 10:27:25 AM
Patients and their Pets with MND. by Cure92951 (ALS Research & Treatments)	10/21/2020 4:52:42 PM
CBD oil by Cure92951 (Living with ALS)	10/21/2020 11:59:56 AM
Tamoxifen and clinical trials in general by Cure92951 (ALS Research & Treatments)	10/20/2020 5:20:40 AM

Active Users
	60 active users - 0 members, 60 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM.
Statistics
	There are 143,654 posts in 11,962 topics in 7 forums. Last post Today at 2:38:38 PM by Cure92951. We have 36,238 registered members. The newest member is gtrout68.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (38 Viewing) Discuss the latest ALS-related scientific and medical findings	8,970	118,532	Today at 2:38:38 PM in Current protocol by Cure92951
	Living with ALS (10 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,858	15,636	Yesterday at 9:56:51 AM in MRI hotspots in ALS by Cure92951
	ALS Advocacy (2 Viewing) Discuss strategies for increasing public funding and attention	510	3,226	8/10/2020 10:11:07 PM in https://alsmnd.com/ by nolazybits
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	339	4/29/2020 7:13:36 PM in NR proposed as treatment for Gulf War Illness by Barbarawanda
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,132	8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
	Philosophy and Feedback Discusses forum philosophy and any comments or suggestions.	156	1,248	7/4/2020 4:41:46 AM in What to do if Als.net is shut down someday? by DeeBee
	Irrelevant to ALS (3 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	285	3,541	7/29/2020 4:22:11 PM in New Forum Moderator by jgang