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ALS Forum

ALS Research Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

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   ALS Topics
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 (13 Viewing)
Discuss the latest ALS-related scientific and medical findings
8,846 117,420 Yesterday at 9:35:25 AM
in MND-SMART
by agenjoe72 Go to last post
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 (6 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
1,819 15,419 Yesterday at 6:04:12 AM
in Masivet Mastinib
by MichaelNg Go to last post
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Discuss strategies for increasing public funding and attention
506 3,216 11/12/2019 6:31:02 PM
in Genetic Testing is [not] Medically Necessary
by royalfig Go to last post
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Discuss issues relevant to ALS incidence in the military and veteran population
61 338 10/9/2019 6:59:50 PM
in Neudexta
by Rusknight Go to last post
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Nominate and discuss for advancement therapeutics to test in the mouse model
96 1,087 1/16/2020 10:03:01 PM
in Soliris - Eculizumab
by Mary Reid Go to last post
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 (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
154 1,241 1/10/2020 6:16:44 AM
in Drone Control
by DeeBee Go to last post
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 (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
282 3,534 12/26/2019 3:16:48 AM
in Merry Christmas
by JPLeRouzic Go to last post
Forum
   ALS Topics
No New Posts No New Posts  ALS Research & Treatments  (13 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,846 Posts: 117,420
Latest Post: Yesterday at 9:35:25 AM
in MND-SMART
by agenjoe72 Go to last post
No New Posts No New Posts  Living with ALS  (6 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,819 Posts: 15,419
Latest Post: Yesterday at 6:04:12 AM
in Masivet Mastinib
by MichaelNg Go to last post
No New Posts No New Posts  ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 506 Posts: 3,216
Latest Post: 11/12/2019 6:31:02 PM
in Genetic Testing is [not] Medically Necessary
by royalfig Go to last post
No New Posts No New Posts  Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 338
Latest Post: 10/9/2019 6:59:50 PM
in Neudexta
by Rusknight Go to last post
No New Posts No New Posts  Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 96 Posts: 1,087
Latest Post: 1/16/2020 10:03:01 PM
in Soliris - Eculizumab
by Mary Reid Go to last post
No New Posts No New Posts  Philosophy and Feedback  (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 154 Posts: 1,241
Latest Post: 1/10/2020 6:16:44 AM
in Drone Control
by DeeBee Go to last post
No New Posts No New Posts  Irrelevant to ALS  (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 282 Posts: 3,534
Latest Post: 12/26/2019 3:16:48 AM
in Merry Christmas
by JPLeRouzic Go to last post

  Active Discussions
Latest Posts
No New Posts  MND-SMART by agenjoe72 (ALS Research & Treatments) Yesterday at 9:35:25 AM Latest
No New Posts  Masivet Mastinib by MichaelNg (Living with ALS) Yesterday at 6:04:12 AM Latest
No New Posts  Ultomiris (ravulizumab) by Mary Reid (ALS Research & Treatments) 1/17/2020 6:38:16 AM Latest
No New Posts  Soliris - Eculizumab by Mary Reid (Forum’s Choice Program at ALS TDI) 1/16/2020 10:03:01 PM Latest
No New Posts  Viral infection can serve as a trigger of FUS proteinopathy in ALS. by JPLeRouzic (ALS Research & Treatments) 1/16/2020 2:00:16 AM Latest
No New Posts  New Study on Parkinsons and the Gut Link and possible other CNS disorders by JPLeRouzic (ALS Research & Treatments) 1/15/2020 2:18:59 AM Latest
No New Posts  meta.org by shueydj (ALS Research & Treatments) 1/14/2020 7:52:47 PM Latest
No New Posts  2,400 Compounds tested with 149 showing positive results to protect Mitochondria (Dyclonine) by DeeBee (ALS Research & Treatments) 1/14/2020 5:43:47 PM Latest
No New Posts  Improving a peptide targeting TDP-43 with bioinformatics tools. by JPLeRouzic (ALS Research & Treatments) 1/14/2020 3:18:44 PM Latest
No New Posts  RCH4 by Grounded (ALS Research & Treatments) 1/14/2020 10:13:05 AM Latest
No New Posts  2 Totally Different Phase 3 Trials Enrolling People with ALS right now by Claudia1960 (ALS Research & Treatments) 1/14/2020 3:23:37 AM Latest
No New Posts  A Global Revolt Against Experts? by DeeBee (ALS Research & Treatments) 1/14/2020 1:49:49 AM Latest
No New Posts  Is it possible to all symptoms at once by lorilu1221@yahoo.com (Living with ALS) 1/13/2020 6:22:33 PM Latest
No New Posts  can also symptoms come and go by lorilu1221@yahoo.com (Living with ALS) 1/13/2020 5:58:50 PM Latest
No New Posts  can also symptoms come and go by lorilu1221@yahoo.com (Living with ALS) 1/13/2020 4:08:02 PM Latest

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Last post Yesterday at 9:35:25 AM by agenjoe72.
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