ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please contact us here.

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ALS Topics

ALS Research & Treatments

(40 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,062

119,725

Today at 1:31:31 PM
in Covid
by FafutIsBack

Living with ALS

(6 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,890

15,941

7/16/2021 10:54:38 AM
in Looking for sturdy bidet seat that can work when...
by louflum

ALS Advocacy

(4 Viewing)

Discuss strategies for increasing public funding and attention

516

3,243

6/2/2021 4:43:33 PM
in The MLB has announced an annual Lou Gehrig's...
by RichardHALS

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Forum’s Choice Program at ALS TDI

(3 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

100

1,138

4/22/2021 9:01:27 PM
in Connecting the ALS dots
by donate@mcball.net

Philosophy and Feedback

(3 Viewing)

Discusses forum philosophy and any comments or suggestions.

161

1,284

5/18/2021 2:36:26 AM
in Is it really educating people?
by JPLeRouzic

Irrelevant to ALS

Postings deemed irrelevant to ALS by the ALS TDI Research Team

286

3,556

7/27/2021 12:53:32 AM
in Explanations / Details About The Underlying...
by ntuc

Forum
ALS Topics
ALS Research & Treatments (40 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,062 Posts: 119,725
Latest Post: Today at 1:31:31 PM in Covid by FafutIsBack
Living with ALS (6 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,890 Posts: 15,941
Latest Post: 7/16/2021 10:54:38 AM in Looking for sturdy bidet seat that can work when... by louflum
ALS Advocacy (4 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 516 Posts: 3,243
Latest Post: 6/2/2021 4:43:33 PM in The MLB has announced an annual Lou Gehrig's... by RichardHALS
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Forum’s Choice Program at ALS TDI (3 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 100 Posts: 1,138
Latest Post: 4/22/2021 9:01:27 PM in Connecting the ALS dots by donate@mcball.net
Philosophy and Feedback (3 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 161 Posts: 1,284
Latest Post: 5/18/2021 2:36:26 AM in Is it really educating people? by JPLeRouzic
Irrelevant to ALS
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 286 Posts: 3,556
Latest Post: 7/27/2021 12:53:32 AM in Explanations / Details About The Underlying... by ntuc

Latest Posts
Covid by FafutIsBack (ALS Research & Treatments)	Today at 1:31:31 PM
3-n-butylphthalide by sinfor (ALS Research & Treatments)	Yesterday at 2:55:06 PM
Suggestions for research project and Als clinic by saltandpepper5151 (ALS Research & Treatments)	7/27/2021 12:18:13 PM
Tankyrase Inhibitors inhibit TDP-53 aggregation by Barbarawanda61 (ALS Research & Treatments)	7/27/2021 8:40:28 AM
Explanations / Details About The Underlying Effectiveness & Mechanisms Of The (Needle-free) Acup by ntuc (Irrelevant to ALS)	7/27/2021 12:53:32 AM
Phase 3 Nurown by Re-SearchingALS (ALS Research & Treatments)	7/23/2021 1:24:59 AM
Intravenous Oxygen by Kiki123 (ALS Research & Treatments)	7/18/2021 5:27:04 PM
Trouble Swallowing? This is pretty innovative… by jchexpress (ALS Research & Treatments)	7/18/2021 1:45:32 PM
Looking for sturdy bidet seat that can work when doing slide transfers from wheelchair by louflum (Living with ALS)	7/16/2021 10:54:38 AM
RCH4 by saltandpepper5151 (ALS Research & Treatments)	7/15/2021 2:49:49 PM
FACS by FafutIsBack (ALS Research & Treatments)	7/14/2021 12:41:44 PM
Elevated Testosterone and Gluzin = Slowed Progression??? by drnishitsawal (ALS Research & Treatments)	7/10/2021 6:23:27 AM
Arimoclomol by FafutIsBack (ALS Research & Treatments)	7/9/2021 3:35:08 PM
Quality control of mitochondria in neurons by Barbarawanda61 (ALS Research & Treatments)	7/8/2021 1:22:43 PM
MND and Cholesterol by JPLeRouzic (ALS Research & Treatments)	7/6/2021 12:06:21 PM

Active Users
	62 active users - 1 member, 61 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. David Hicks
Statistics
	There are 145,228 posts in 12,099 topics in 7 forums. Last post Today at 1:31:31 PM by FafutIsBack. We have 37,903 registered members. The newest member is s.smith@nicheinvestment.co.uk.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (40 Viewing) Discuss the latest ALS-related scientific and medical findings	9,062	119,725	Today at 1:31:31 PM in Covid by FafutIsBack
	Living with ALS (6 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,890	15,941	7/16/2021 10:54:38 AM in Looking for sturdy bidet seat that can work when... by louflum
	ALS Advocacy (4 Viewing) Discuss strategies for increasing public funding and attention	516	3,243	6/2/2021 4:43:33 PM in The MLB has announced an annual Lou Gehrig's... by RichardHALS
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Forum’s Choice Program at ALS TDI (3 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	100	1,138	4/22/2021 9:01:27 PM in Connecting the ALS dots by donate@mcball.net
	Philosophy and Feedback (3 Viewing) Discusses forum philosophy and any comments or suggestions.	161	1,284	5/18/2021 2:36:26 AM in Is it really educating people? by JPLeRouzic
	Irrelevant to ALS Postings deemed irrelevant to ALS by the ALS TDI Research Team	286	3,556	7/27/2021 12:53:32 AM in Explanations / Details About The Underlying... by ntuc