ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(54 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,007

119,014

Today at 3:11:21 PM
in Safety of Engensis
by MToole

Living with ALS

(10 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,867

15,680

Today at 2:49:54 PM
in Strong bulbar symptoms no diagnosis
by Kiki123

ALS Advocacy

Discuss strategies for increasing public funding and attention

510

3,227

12/7/2020 4:34:22 AM
in What's That?
by DeeBee

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

340

1/12/2021 8:34:27 AM
in NR proposed as treatment for Gulf War Illness
by Wrs@cfl.rr.com

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

1,132

8/15/2020 3:07:38 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by JPLeRouzic

Philosophy and Feedback

(1 Viewing)

Discusses forum philosophy and any comments or suggestions.

159

1,260

1/16/2021 11:05:51 AM
in Impact of religion on disease
by DeeBee

Irrelevant to ALS

(1 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

285

3,541

7/29/2020 4:22:11 PM
in New Forum Moderator
by jgang

Forum
ALS Topics
ALS Research & Treatments (54 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,007 Posts: 119,014
Latest Post: Today at 3:11:21 PM in Safety of Engensis by MToole
Living with ALS (10 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,867 Posts: 15,680
Latest Post: Today at 2:49:54 PM in Strong bulbar symptoms no diagnosis by Kiki123
ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 510 Posts: 3,227
Latest Post: 12/7/2020 4:34:22 AM in What's That? by DeeBee
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 340
Latest Post: 1/12/2021 8:34:27 AM in NR proposed as treatment for Gulf War Illness by Wrs@cfl.rr.com
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 99 Posts: 1,132
Latest Post: 8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
Philosophy and Feedback (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 159 Posts: 1,260
Latest Post: 1/16/2021 11:05:51 AM in Impact of religion on disease by DeeBee
Irrelevant to ALS (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 285 Posts: 3,541
Latest Post: 7/29/2020 4:22:11 PM in New Forum Moderator by jgang

Latest Posts
Safety of Engensis by MToole (ALS Research & Treatments)	Today at 3:11:21 PM
Strong bulbar symptoms no diagnosis by Kiki123 (Living with ALS)	Today at 2:49:54 PM
Any opinion on this article "Breakthrough discovery reveals way of reversing Motor Neurone Disease damage" by Cure92951 (ALS Research & Treatments)	Today at 2:17:58 PM
Mitochondria energy levels. by murmurat (ALS Research & Treatments)	Yesterday at 7:39:49 PM
Eurika!!! I found the cause! by PhilipFromGermany (ALS Research & Treatments)	Yesterday at 6:43:15 PM
Berberine updates by Barbarawanda61 (ALS Research & Treatments)	Yesterday at 1:55:17 PM
Berberine by Barbarawanda61 (ALS Research & Treatments)	Yesterday at 1:53:51 PM
Floating Stools for anyone else? by donate@mcball.net (Living with ALS)	Yesterday at 10:15:48 AM
Corona Virus by Barbarawanda61 (ALS Research & Treatments)	1/18/2021 7:40:40 AM
My quick guide to als from diagnosis until end stage by Cure92951 (ALS Research & Treatments)	1/17/2021 6:50:03 PM
* The Neatest Little Guide to ALS * by Cure92951 (ALS Research & Treatments)	1/17/2021 4:23:53 PM
Quality control of mitochondria in neurons by Barbarawanda61 (ALS Research & Treatments)	1/17/2021 1:59:30 PM
CNM-Au8 - colloidal gold by royalfig (ALS Research & Treatments)	1/16/2021 5:34:09 PM
Impact of religion on disease by DeeBee (Philosophy and Feedback)	1/16/2021 11:05:51 AM
Theacrine - a novel and promising nutraceutical by murmurat (ALS Research & Treatments)	1/15/2021 5:48:47 PM

Active Users
	62 active users - 4 members, 58 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. agenjoe72 , tmartell123 , gas , MToole
Statistics
	There are 144,194 posts in 12,011 topics in 7 forums. Last post Today at 3:11:21 PM by MToole. We have 36,717 registered members. The newest member is thedude48.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (54 Viewing) Discuss the latest ALS-related scientific and medical findings	9,007	119,014	Today at 3:11:21 PM in Safety of Engensis by MToole
	Living with ALS (10 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,867	15,680	Today at 2:49:54 PM in Strong bulbar symptoms no diagnosis by Kiki123
	ALS Advocacy Discuss strategies for increasing public funding and attention	510	3,227	12/7/2020 4:34:22 AM in What's That? by DeeBee
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	340	1/12/2021 8:34:27 AM in NR proposed as treatment for Gulf War Illness by Wrs@cfl.rr.com
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	99	1,132	8/15/2020 3:07:38 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by JPLeRouzic
	Philosophy and Feedback (1 Viewing) Discusses forum philosophy and any comments or suggestions.	159	1,260	1/16/2021 11:05:51 AM in Impact of religion on disease by DeeBee
	Irrelevant to ALS (1 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	285	3,541	7/29/2020 4:22:11 PM in New Forum Moderator by jgang