ALS Forums

ALS Forum

Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

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ALS Topics

ALS Research & Treatments

(13 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,846

117,420

Yesterday at 9:35:25 AM
in MND-SMART
by agenjoe72

Living with ALS

(6 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,819

15,419

Yesterday at 6:04:12 AM
in Masivet Mastinib
by MichaelNg

ALS Advocacy

Discuss strategies for increasing public funding and attention

506

3,216

11/12/2019 6:31:02 PM
in Genetic Testing is [not] Medically Necessary
by royalfig

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

338

10/9/2019 6:59:50 PM
in Neudexta
by Rusknight

Forum’s Choice Program at ALS TDI

Nominate and discuss for advancement therapeutics to test in the mouse model

1,087

1/16/2020 10:03:01 PM
in Soliris - Eculizumab
by Mary Reid

Philosophy and Feedback

(1 Viewing)

Discusses forum philosophy and any comments or suggestions.

154

1,241

1/10/2020 6:16:44 AM
in Drone Control
by DeeBee

Irrelevant to ALS

(1 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

282

3,534

12/26/2019 3:16:48 AM
in Merry Christmas
by JPLeRouzic

Forum
ALS Topics
ALS Research & Treatments (13 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,846 Posts: 117,420
Latest Post: Yesterday at 9:35:25 AM in MND-SMART by agenjoe72
Living with ALS (6 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,819 Posts: 15,419
Latest Post: Yesterday at 6:04:12 AM in Masivet Mastinib by MichaelNg
ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 506 Posts: 3,216
Latest Post: 11/12/2019 6:31:02 PM in Genetic Testing is [not] Medically Necessary by royalfig
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 338
Latest Post: 10/9/2019 6:59:50 PM in Neudexta by Rusknight
Forum’s Choice Program at ALS TDI
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 96 Posts: 1,087
Latest Post: 1/16/2020 10:03:01 PM in Soliris - Eculizumab by Mary Reid
Philosophy and Feedback (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 154 Posts: 1,241
Latest Post: 1/10/2020 6:16:44 AM in Drone Control by DeeBee
Irrelevant to ALS (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 282 Posts: 3,534
Latest Post: 12/26/2019 3:16:48 AM in Merry Christmas by JPLeRouzic

Latest Posts
MND-SMART by agenjoe72 (ALS Research & Treatments)	Yesterday at 9:35:25 AM
Masivet Mastinib by MichaelNg (Living with ALS)	Yesterday at 6:04:12 AM
Ultomiris (ravulizumab) by Mary Reid (ALS Research & Treatments)	1/17/2020 6:38:16 AM
Soliris - Eculizumab by Mary Reid (Forum’s Choice Program at ALS TDI)	1/16/2020 10:03:01 PM
Viral infection can serve as a trigger of FUS proteinopathy in ALS. by JPLeRouzic (ALS Research & Treatments)	1/16/2020 2:00:16 AM
New Study on Parkinsons and the Gut Link and possible other CNS disorders by JPLeRouzic (ALS Research & Treatments)	1/15/2020 2:18:59 AM
meta.org by shueydj (ALS Research & Treatments)	1/14/2020 7:52:47 PM
2,400 Compounds tested with 149 showing positive results to protect Mitochondria (Dyclonine) by DeeBee (ALS Research & Treatments)	1/14/2020 5:43:47 PM
Improving a peptide targeting TDP-43 with bioinformatics tools. by JPLeRouzic (ALS Research & Treatments)	1/14/2020 3:18:44 PM
RCH4 by Grounded (ALS Research & Treatments)	1/14/2020 10:13:05 AM
2 Totally Different Phase 3 Trials Enrolling People with ALS right now by Claudia1960 (ALS Research & Treatments)	1/14/2020 3:23:37 AM
A Global Revolt Against Experts? by DeeBee (ALS Research & Treatments)	1/14/2020 1:49:49 AM
Is it possible to all symptoms at once by lorilu1221@yahoo.com (Living with ALS)	1/13/2020 6:22:33 PM
can also symptoms come and go by lorilu1221@yahoo.com (Living with ALS)	1/13/2020 5:58:50 PM
can also symptoms come and go by lorilu1221@yahoo.com (Living with ALS)	1/13/2020 4:08:02 PM

Active Users
	22 active users - 1 member, 21 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. opusensemble
Statistics
	There are 142,255 posts in 11,786 topics in 7 forums. Last post Yesterday at 9:35:25 AM by agenjoe72. We have 34,112 registered members. The newest member is boenigk@gmail.com.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (13 Viewing) Discuss the latest ALS-related scientific and medical findings	8,846	117,420	Yesterday at 9:35:25 AM in MND-SMART by agenjoe72
	Living with ALS (6 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,819	15,419	Yesterday at 6:04:12 AM in Masivet Mastinib by MichaelNg
	ALS Advocacy Discuss strategies for increasing public funding and attention	506	3,216	11/12/2019 6:31:02 PM in Genetic Testing is [not] Medically Necessary by royalfig
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	61	338	10/9/2019 6:59:50 PM in Neudexta by Rusknight
	Forum’s Choice Program at ALS TDI Nominate and discuss for advancement therapeutics to test in the mouse model	96	1,087	1/16/2020 10:03:01 PM in Soliris - Eculizumab by Mary Reid
	Philosophy and Feedback (1 Viewing) Discusses forum philosophy and any comments or suggestions.	154	1,241	1/10/2020 6:16:44 AM in Drone Control by DeeBee
	Irrelevant to ALS (1 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	282	3,534	12/26/2019 3:16:48 AM in Merry Christmas by JPLeRouzic