ALS Forums

ALS Forum

Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

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ALS Topics

ALS Research & Treatments

(33 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,826

117,212

Today at 3:09:04 PM
in Surprising Study-ALS and Telomere Length
by Nemesis

Living with ALS

(5 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,810

15,356

Today at 8:54:14 AM
in fALS and trouble with doctors
by arandomguy01

ALS Advocacy

(2 Viewing)

Discuss strategies for increasing public funding and attention

506

3,217

11/12/2019 7:32:32 PM
in Genetic Testing is [not] Medically Necessary
by royalfig

Military Service and ALS

(1 Viewing)

Discuss issues relevant to ALS incidence in the military and veteran population

338

10/9/2019 6:59:50 PM
in Neudexta
by Rusknight

Forum’s Choice Program at ALS TDI

(2 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,082

11/22/2019 11:36:21 AM
in Proposal for peptides able to clear TDP-43 from...
by JPLeRouzic

Philosophy and Feedback

(3 Viewing)

Discusses forum philosophy and any comments or suggestions.

153

1,237

11/26/2019 9:02:35 PM
in Infections, antibiotics and ALS
by Tam

Irrelevant to ALS

(1 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

281

3,532

Yesterday at 2:42:58 PM
in Strange onset?!! Or not so strange :(
by kayj

Forum
ALS Topics
ALS Research & Treatments (33 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,826 Posts: 117,212
Latest Post: Today at 3:09:04 PM in Surprising Study-ALS and Telomere Length by Nemesis
Living with ALS (5 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,810 Posts: 15,356
Latest Post: Today at 8:54:14 AM in fALS and trouble with doctors by arandomguy01
ALS Advocacy (2 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 506 Posts: 3,217
Latest Post: 11/12/2019 7:32:32 PM in Genetic Testing is [not] Medically Necessary by royalfig
Military Service and ALS (1 Viewing)
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 338
Latest Post: 10/9/2019 6:59:50 PM in Neudexta by Rusknight
Forum’s Choice Program at ALS TDI (2 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 94 Posts: 1,082
Latest Post: 11/22/2019 11:36:21 AM in Proposal for peptides able to clear TDP-43 from... by JPLeRouzic
Philosophy and Feedback (3 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 153 Posts: 1,237
Latest Post: 11/26/2019 9:02:35 PM in Infections, antibiotics and ALS by Tam
Irrelevant to ALS (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 281 Posts: 3,532
Latest Post: Yesterday at 2:42:58 PM in Strange onset?!! Or not so strange :( by kayj

Latest Posts
Surprising Study-ALS and Telomere Length by Nemesis (ALS Research & Treatments)	Today at 3:09:04 PM
Neuroinflammation by tomasz (ALS Research & Treatments)	Today at 2:37:39 PM
fALS and trouble with doctors by arandomguy01 (Living with ALS)	Today at 8:54:14 AM
CHIP and telomerase by Mary Reid (ALS Research & Treatments)	Yesterday at 11:51:32 PM
Strange onset?!! Or not so strange :( by kayj (Irrelevant to ALS)	Yesterday at 2:42:58 PM
Strange onset?!! Or not so strange :( by kayj (Irrelevant to ALS)	Yesterday at 1:46:03 PM
Name of topic by JPLeRouzic (ALS Research & Treatments)	Yesterday at 9:19:27 AM
Gleevec Again by Mary Reid (ALS Research & Treatments)	Yesterday at 4:20:48 AM
First Treatments in the HEALEY ALS Platform Trial by MichaelNg (ALS Research & Treatments)	Yesterday at 4:02:12 AM
RIP Pete Frates by packattack (ALS Research & Treatments)	12/9/2019 2:12:21 PM
new als drug by royalfig (ALS Research & Treatments)	12/9/2019 12:31:52 AM
"Pre-ALS"? by Tam (ALS Research & Treatments)	12/8/2019 10:51:27 AM
Is Riluzole Really Helpful by Tam (Living with ALS)	12/7/2019 11:16:21 AM
Improving a peptide targeting TDP-43 with bioinformatics tools. by JPLeRouzic (ALS Research & Treatments)	12/7/2019 2:34:00 AM
Artificial Neurons on a Microchip by packattack (ALS Research & Treatments)	12/6/2019 5:34:22 PM

Active Users
	56 active users - 3 members, 53 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. deggleton2 , shueydj , tomekp
Statistics
	There are 141,974 posts in 11,753 topics in 7 forums. Last post Today at 3:09:04 PM by Nemesis. We have 33,709 registered members. The newest member is ShawnMS12112019.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (33 Viewing) Discuss the latest ALS-related scientific and medical findings	8,826	117,212	Today at 3:09:04 PM in Surprising Study-ALS and Telomere Length by Nemesis
	Living with ALS (5 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,810	15,356	Today at 8:54:14 AM in fALS and trouble with doctors by arandomguy01
	ALS Advocacy (2 Viewing) Discuss strategies for increasing public funding and attention	506	3,217	11/12/2019 7:32:32 PM in Genetic Testing is [not] Medically Necessary by royalfig
	Military Service and ALS (1 Viewing) Discuss issues relevant to ALS incidence in the military and veteran population	61	338	10/9/2019 6:59:50 PM in Neudexta by Rusknight
	Forum’s Choice Program at ALS TDI (2 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	94	1,082	11/22/2019 11:36:21 AM in Proposal for peptides able to clear TDP-43 from... by JPLeRouzic
	Philosophy and Feedback (3 Viewing) Discusses forum philosophy and any comments or suggestions.	153	1,237	11/26/2019 9:02:35 PM in Infections, antibiotics and ALS by Tam
	Irrelevant to ALS (1 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	281	3,532	Yesterday at 2:42:58 PM in Strange onset?!! Or not so strange :( by kayj