ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(77 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,168

120,484

11/30/2023 2:25:18 PM
in Hypothesis paper from 2004
by mdrdan

Living with ALS

(8 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,923

16,162

11/10/2023 1:41:24 PM
in may you RiS (rest in space)?
by mdrdan

ALS Advocacy

(2 Viewing)

Discuss strategies for increasing public funding and attention

519

3,249

8/16/2023 4:30:26 PM
in The Chill "Black Woods Blizzard Tour...
by mdrdan

Military Service and ALS

(1 Viewing)

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Philosophy and Feedback

(1 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(1 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

289

3,577

8/4/2022 11:30:15 AM
in Pathetic
by ntuc

Forum
ALS Topics
ALS Research & Treatments (77 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,168 Posts: 120,484
Latest Post: 11/30/2023 2:25:18 PM in Hypothesis paper from 2004 by mdrdan
Living with ALS (8 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,923 Posts: 16,162
Latest Post: 11/10/2023 1:41:24 PM in may you RiS (rest in space)? by mdrdan
ALS Advocacy (2 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 519 Posts: 3,249
Latest Post: 8/16/2023 4:30:26 PM in The Chill "Black Woods Blizzard Tour... by mdrdan
Military Service and ALS (1 Viewing)
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Philosophy and Feedback (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (1 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 289 Posts: 3,577
Latest Post: 8/4/2022 11:30:15 AM in Pathetic by ntuc

Latest Posts
Hypothesis paper from 2004 by mdrdan (ALS Research & Treatments)	11/30/2023 2:25:18 PM
Buggy Rental Dubai by mxdubai (ALS Research & Treatments)	11/30/2023 9:24:52 AM
Elland Taxis by taxiaclass (ALS Research & Treatments)	11/30/2023 7:03:16 AM
Happy Thanksgiving, {everyone try some g-tube food?!} by alsorlando (ALS Research & Treatments)	11/22/2023 4:34:03 PM
Mitohormesis by Dilbert (ALS Research & Treatments)	11/22/2023 1:38:46 AM
RespiStimALS median update? by mdrdan (ALS Research & Treatments)	11/17/2023 1:19:25 PM
Autophagy in ALS by mdrdan (ALS Research & Treatments)	11/17/2023 1:16:27 PM
may you RiS (rest in space)? by mdrdan (Living with ALS)	11/10/2023 1:41:24 PM
Repair my nerve connections... my wish by alsorlando (ALS Research & Treatments)	10/26/2023 1:23:12 PM
the build-uk forum is gone but mnda has one by mdrdan (ALS Research & Treatments)	10/17/2023 2:23:28 PM
Limb onset - legs. by mdrdan (Living with ALS)	10/17/2023 11:42:05 AM
Adult Brain Cell Type Census by Dalerfink (ALS Research & Treatments)	10/14/2023 5:38:22 PM
COYA 302 Results by abc (ALS Research & Treatments)	10/11/2023 8:05:52 PM
Takeda acquires license to ALS therapy aimed at toxic TDP-43 by mdrdan (ALS Research & Treatments)	10/11/2023 11:58:21 AM
Borrelia Bacteria , mercury in fillings, mrna vaccine by abc (ALS Research & Treatments)	10/9/2023 5:42:45 PM

Active Users
	49 active users - 0 members, 49 guests. Most users ever online was 3069, 5/23/2023 2:50:35 PM.
Statistics
	There are 145,102 posts in 12,145 topics in 6 forums. Last post 11/30/2023 2:25:18 PM by mdrdan. We have 41,508 registered members. The newest member is floridabaker@att.net.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (77 Viewing) Discuss the latest ALS-related scientific and medical findings	9,168	120,484	11/30/2023 2:25:18 PM in Hypothesis paper from 2004 by mdrdan
	Living with ALS (8 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,923	16,162	11/10/2023 1:41:24 PM in may you RiS (rest in space)? by mdrdan
	ALS Advocacy (2 Viewing) Discuss strategies for increasing public funding and attention	519	3,249	8/16/2023 4:30:26 PM in The Chill "Black Woods Blizzard Tour... by mdrdan
	Military Service and ALS (1 Viewing) Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Philosophy and Feedback (1 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (1 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	289	3,577	8/4/2022 11:30:15 AM in Pathetic by ntuc