ALS Forums

ALS Forum

Welcome to the ALS Therapy Development Institute’s ALS Forum. The ALS Forum is a space for community members to exchange information about ALS, scientific advances in ALS, and potential treatments for ALS.

Forum members include people with ALS, their caregivers, family, friends, and neurologists, along with neurodegenerative disease researchers and pharmaceutical executives. We encourage an open dialogue and the sharing of ideas and opinions between all parties. The ALS Forum is moderated with the help of long-time forum members.

Bad language, disparaging remarks, personal attacks, marketing, or inappropriate remarks will be deleted and may lead to your removal from the forum. If you have any questions about the use of this forum, or experience difficulties, please email us at info@als.net.

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ALS Topics

ALS Research & Treatments

(32 Viewing)

Discuss the latest ALS-related scientific and medical findings

8,753

116,390

Yesterday at 6:42:03 PM
in Quality control of mitochondria in neurons
by deb1aw

Living with ALS

(12 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,781

15,072

Today at 2:54:51 AM
in How does one detect or identify what type of ALS...
by JPLeRouzic

ALS Advocacy

(1 Viewing)

Discuss strategies for increasing public funding and attention

505

3,215

8/3/2019 6:53:07 PM
in Harry Potter
by DeeBee

Military Service and ALS

(3 Viewing)

Discuss issues relevant to ALS incidence in the military and veteran population

337

3/13/2019 11:44:59 PM
in SAH grant
by GregK

Forum’s Choice Program at ALS TDI

(4 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

1,036

Today at 4:01:42 AM
in Possible sporadic Amyotrophic Lateral Sclerosis...
by David Hicks

Philosophy and Feedback

(2 Viewing)

Discusses forum philosophy and any comments or suggestions.

146

1,176

7/10/2019 7:56:37 PM
in Strange als disease in my wife
by rafiksq@interia.pl

Irrelevant to ALS

(4 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

274

3,516

Yesterday at 3:16:02 AM
in Is ALS.net is mining bitcoins in our browsers?
by JPLeRouzic

Forum
ALS Topics
ALS Research & Treatments (32 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 8,753 Posts: 116,390
Latest Post: Yesterday at 6:42:03 PM in Quality control of mitochondria in neurons by deb1aw
Living with ALS (12 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,781 Posts: 15,072
Latest Post: Today at 2:54:51 AM in How does one detect or identify what type of ALS... by JPLeRouzic
ALS Advocacy (1 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 505 Posts: 3,215
Latest Post: 8/3/2019 6:53:07 PM in Harry Potter by DeeBee
Military Service and ALS (3 Viewing)
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 61 Posts: 337
Latest Post: 3/13/2019 11:44:59 PM in SAH grant by GregK
Forum’s Choice Program at ALS TDI (4 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 92 Posts: 1,036
Latest Post: Today at 4:01:42 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by David Hicks
Philosophy and Feedback (2 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 146 Posts: 1,176
Latest Post: 7/10/2019 7:56:37 PM in Strange als disease in my wife by rafiksq@interia.pl
Irrelevant to ALS (4 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 274 Posts: 3,516
Latest Post: Yesterday at 3:16:02 AM in Is ALS.net is mining bitcoins in our browsers? by JPLeRouzic

Latest Posts
Possible sporadic Amyotrophic Lateral Sclerosis (sALS) cure. by David Hicks (Forum’s Choice Program at ALS TDI)	Today at 4:01:42 AM
How does one detect or identify what type of ALS they have so as too better treat it? by JPLeRouzic (Living with ALS)	Today at 2:54:51 AM
Quality control of mitochondria in neurons by deb1aw (ALS Research & Treatments)	Yesterday at 6:42:03 PM
Test for toxicity?! And help for sleepness?! by SilverFox (Living with ALS)	Yesterday at 3:24:30 PM
Is ALS.net is mining bitcoins in our browsers? by JPLeRouzic (Irrelevant to ALS)	Yesterday at 3:16:02 AM
Has anyone had any luck obtaining Arimoclomol? by DeeBee (Living with ALS)	Yesterday at 3:12:19 AM
A Global Revolt Against Experts? by DeeBee (ALS Research & Treatments)	8/15/2019 3:25:30 AM
Sore spot by jchexpress (Living with ALS)	8/14/2019 11:33:03 PM
Brainstorm update - Matt Bellina Right to Try by JPLeRouzic (ALS Research & Treatments)	8/14/2019 3:46:40 PM
Melatonin is produced in the mitochondria and that may be for a good reason....... by SilverFox (ALS Research & Treatments)	8/14/2019 3:37:11 PM
Nicotinamide Riboside Self Testing Thread by Yo (ALS Research & Treatments)	8/14/2019 9:29:07 AM
ALS symptoms occuring post oral Herpes infection by Tam (Living with ALS)	8/13/2019 11:51:28 PM
Leaky Gut Syndrome ALS connection by Barbarawanda (ALS Research & Treatments)	8/13/2019 6:56:27 PM
NNMT a new neuroprotective target for drug development by shueydj (ALS Research & Treatments)	8/13/2019 4:32:04 AM
Snapshot Studies by DeeBee (ALS Research & Treatments)	8/13/2019 1:58:32 AM

Active Users
	51 active users - 1 member, 50 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. teach55
Statistics
	There are 140,742 posts in 11,634 topics in 7 forums. Last post Today at 4:01:42 AM by David Hicks. We have 32,272 registered members. The newest member is chrislovestanya.

ALS Forum

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (32 Viewing) Discuss the latest ALS-related scientific and medical findings	8,753	116,390	Yesterday at 6:42:03 PM in Quality control of mitochondria in neurons by deb1aw
	Living with ALS (12 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,781	15,072	Today at 2:54:51 AM in How does one detect or identify what type of ALS... by JPLeRouzic
	ALS Advocacy (1 Viewing) Discuss strategies for increasing public funding and attention	505	3,215	8/3/2019 6:53:07 PM in Harry Potter by DeeBee
	Military Service and ALS (3 Viewing) Discuss issues relevant to ALS incidence in the military and veteran population	61	337	3/13/2019 11:44:59 PM in SAH grant by GregK
	Forum’s Choice Program at ALS TDI (4 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	92	1,036	Today at 4:01:42 AM in Possible sporadic Amyotrophic Lateral Sclerosis... by David Hicks
	Philosophy and Feedback (2 Viewing) Discusses forum philosophy and any comments or suggestions.	146	1,176	7/10/2019 7:56:37 PM in Strange als disease in my wife by rafiksq@interia.pl
	Irrelevant to ALS (4 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	274	3,516	Yesterday at 3:16:02 AM in Is ALS.net is mining bitcoins in our browsers? by JPLeRouzic