ALS Looks Like Me | ALS Therapy Development Institute

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Help Spread Awareness

#ALSLooksLikeMe

The lifetime incidence of ALS is estimated to be 1 in 400, and it can impact anyone. We need your help to spread awareness of how differently ALS impacts individuals.

How to Participate:

Complete the short questionnaire below to share how ALS impacts you as a person living with ALS, or answer on behalf of a friend or loved one who is living with/lived with ALS.
When you submit the questionnaire, ALS TDI will email you your personalized image (be sure to check your spam folders).
Download your image and share it using #ALSLooksLikeMe.

We know that the impact of ALS on individuals and families goes far beyond what is conveyed here – but we hope that these short snapshots can help to increase awareness and understanding of the disease.

Please help us spread awareness by sharing your image with #ALSLooksLikeMe.

Start your questionnaire

* Required field

to pre-fill in some of the form

I am filling this out for: *

Myself, a person with ALS

A loved one or family member

What is your first name? * What's the first name of the person with ALS you’re sharing about? *

A name is required

What was your age when you were diagnosed with ALS? * What was their age when they were diagnosed with ALS? *

Where did your symptoms first present? * Where did their symptoms first present? *

A symptom is required

How many months did it take for you to get an official ALS diagnosis? * How many months did it take them to get their official ALS diagnosis? *

How many years have you been living with ALS? * How many years have/had they been living with ALS? *

An ability affected by ALS An ability affected by ALS

25 character limit

An ability lost is required

An ability NOT affected by ALS An ability NOT affected by ALS

25 character limit

An ability not lost is required

Where should we send your shareable image?

Your Email *
We will email you a copy of your personalized image, which you can then download and share.

Email is required Invalid email entered

Your contact info

Only fields marked with an asterisk (*) are required. None of these fields will be displayed on your image.

First name *

First name is required

Last name *

Last name is required

Address

City

State/Region *

State/Region is required

Zip

Country *

Country is required

I am (relation to ALS) *

Relation to ALS is required

Please specify (Relation to ALS: other) *

Relation to ALS other is required

Twitter handle

Instagram handle

Facebook URL

Stay informed

We'd love to keep you updated about our research to discover treatments and cures for ALS. We'd also like to let you know how you can help by donating or fundraising to fuel our lab.

By generating a shareable image, you will automatically receive ALS TDI's monthly newsletter. You may choose additional email options below. You may unsubscribe or change your preferences at any time.

#ALSLooksLikeMe

1 in 400 people may be diagnosed with ALS, and no two cases are the same. See the hundreds of badges from our ALS community below and create your own #ALSLooksLikeMe badge to join the movement.