Tuesday, May 6, 2025 | 3:00 - 4:00pm ET

Join ALS TDI and Her ALS Story for the first of a 3-part collaborative Town Hall series, "Your Story. Our Science."

On May 6th, join ALS TDI and Her ALS Story (HAS) for Why Me? Identifying ALS Causes: An important discussion exploring the potential causes of ALS. Hear personal stories from HAS members as they share their experiences and discuss the factors they believe could contribute to ALS.

Building on these personal insights, ALS TDI researchers will share their expert perspective on the current state of ALS research, including established, highly suspected, and emerging causes and risk factors. They will also explain how the community's lived experiences directly shape ongoing research efforts to understand ALS causes and risk factors.

Register

Tuesday, June 10, 2025 | 3:00 - 4:00pm ET

Join ALS TDI and Her ALS Story (HAS) for the second of a 3-part collaborative Town Hall series, "Your Story. Our Science."

Our journey continues with What Are Lesser-Known ALS Symptoms?, where we'll delve into the often-overlooked and less-discussed aspects of living with ALS. Connect with the powerful personal stories of HAS members as they share their experiences with ALS symptoms and the insights they've gained within the community.

ALS TDI researchers will discuss how the ARC Study currently tracks symptoms and emphasize the critical need for community feedback to identify symptoms that may not yet be fully understood or recorded. Discover how lived experiences shared by the community are helping to shape ALS research.

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Thursday, July 10, 2025 | 3:00 - 4:00pm ET

Join ALS TDI and Her ALS Story (HAS) for the third and final installment of our 3-part collaborative Town Hall series, "Your Story. Our Science."

Our series concludes with How Can We Improve the Diagnosis Process?, where we will discuss the personal challenges of receiving an ALS diagnosis and the ongoing efforts to make the process faster and more efficient. Hear directly from HAS members as they share their personal diagnosis stories, including their initial symptoms, the journey of seeking a diagnosis, and the timeline they experienced until receiving confirmation.

Following these stories, we will run through the current ALS diagnosis process and highlight its existing challenges. Researchers from ALS TDI will describe ongoing initiatives and research efforts aimed at improving and accelerating the ALS diagnosis process, ultimately striving for earlier and more accurate diagnoses for individuals and families affected by ALS.

Register