ARC Data Commons | ALS Therapy Development Institute

The ARC Data Commons is a cloud-based research platform offering ALS researchers access to a vast and growing dataset from the ALS Research Collaborative (ARC) Study—the longest-running natural history study in ALS. The ARC Data Commons enables high-powered data exploration to accelerate ALS research and discovery.

Request access here

How to Cite:

To cite this data, use the following: ALS Therapy Development Institute (ALS TDI). (2023). ALS Research Collaborative (ARC) [Data set]. Amyotrophic Lateral Sclerosis Therapy Development Institute. https://doi.org/10.71944/C3NA-9124

Analyze ALS Data with Precision

Use the ARC Data Commons to investigate the complex relationships between ALS symptoms, genetic variants, and disease progression. By combining the ARC Study's rich longitudinal data with powerful analytics tools, you can generate research insights with unprecedented speed.

Access to the ARC Data Commons is free for nonprofit and academic researchers. For-profit industry partners will be charged a small system maintenance fee.

Key benefits of the ARC Data Commons include:

Visual Data Exploration: Instantly generate charts and visualizations to uncover trends in the data.
Targeted Filtering: Customize your view with precise filters based on participant traits or data types.
Multi-Modal Integration: Analyze integrated datasets including surveys, accelerometer data, speech recordings, genetic data, and ALSFRS-R scores.

Watch this short demo to see examples of how data can be viewed and filtered in the ARC Data Commons.

This demo was recorded during beta testing. Due to this, the load times for the data shown may vary, and all current updates may not be reflected.

Why Researchers Choose the ARC Data Commons

Proven Scientific Value: Data has supported 50+ studies and contributed to six peer-reviewed publications.

Massive Data Volume: Analyze over 8.5 trillion data points to support robust, high-resolution analyses.

Enabling Innovation: Powered the development of five prototype digital biomarkers for ALS progression.

Global Research Network: Join a growing community of 110+ research groups around the world.

Custom Dashboards & Downloads: Build and save personalized tables for flexible data exploration.

Continuously Updated: New data and features added regularly to reflect the latest contributions to the ARC Study.

Explore Over a Decade of Longitudinal ALS Data

Gain access to over a decade of longitudinal data, continuously enriched with contributions from individuals with ALS and asymptomatic gene carriers. This comprehensive and diverse dataset includes:

Demographics
Medical, social, and environmental surveys
Accelerometer-based movement tracking
Speech recordings
Genetic data
ALSFRS-R scores

In the News: How Researchers Are Using ARC Data

ALS TDI and the Longitude Prize: A Data Sharing Partnership

Organized by Challenge Works, the Longitude Prize on ALS is a global challenge to develop ...

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ALS TDI Joins DataCite to Expand Access and Impact of ARC Dataset

The ALS Therapy Development Institute (ALS TDI) is pleased to announce its acceptance as a...

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LifeArc and ALS TDI: A New Partnership to Discover ALS Biomarkers

ALS TDI recently announced a new partnership with LifeArc, one of the United Kingdom’s lea...

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Request Access to the ARC Data Commons

The ARC Data Commons is available to academic researchers, nonprofit organizations, and industry partners. For-profit users may be subject to a system maintenance fee.

Fill out the form to request access and start exploring this powerful ALS research resource.

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