At any given moment in the United States, there are 30,000 people living with
ALS and an estimated 450,000 people worldwide. When they
are given their diagnosis, they are told that there are no treatments, no cure and
no hope for a life past two to five years from the time of their diagnosis.
Two to five years.
During those years, a person living with ALS can expect to lose the ability to move up
to all voluntary muscles in their body, while their mind, senses and soul remain
completely intact. They are told to "put their affairs in order," while they gradually
become locked inside their own body. We would not wish this fate on even our worst
enemies as it is cruel, barbaric and brutal.
There is still hope.
This month, we want to talk about the unbelievable realities of this disease and how
it makes those impacted feel. And "those impacted" can mean anyone and everyone in the
ALS community. We are sharing photos and videos on
of people answering the question "How does ALS make you feel?" using just three words.
Share your own picture or video using the hashtags #InThreeWords and
#EndALS and encourage your friends and family to get involved too.
Let's #SpreadTheWord about ALS and raise enough funds for our most promising
treatment AT-1501, so that one day soon our friends,
neighbors, and loved ones will be spared the horror that is ALS.