A Love Story: 2026 | Love Stories from our ALS Community
ALS TDI is proud to partner once again with Augie’s Quest this February for the #ALoveStory campaign. Throughout the month, we’ll be sharing powerful love stories from across the ALS community. Read a few featured stories below and follow along on social media all February for more.
Louis and Emily Del Re
In the summer of 2017, I met my future wife, Emily, at a house party hosted by her cousin, who also happened to be my best friend. Her beauty caught my attention immediately. Despite my friends insisting she was out of my league, something inside told me I had to take the chance. So I built up some liquid courage and took my shot. Our connection felt natural and effortless. I knew there was something special.
We started dating later that summer and went on countless adventures together, traveling to more places than I can count. Her love for nature and ability to navigate the outdoors always amazed me. In 2020, we purchased our first home, and in 2021, we welcomed our puppy, Auston, into our family. Life felt full. Purposeful. Complete. It was at an all-time high.
When a couple says “I do” to “in sickness and in health”, most would assume the sickness is in the far distant future. On October 4, 2024, Emily said “I do” to that now. She made the ultimate sacrifice for our love. Teaching me the true meaning of devotion, love, and marriage. Not a day goes by that I forget this.
Sharing our story has taken us on the most unexpected and beautiful journey — connecting us with incredible people, experiences, and organizations across North America. Today, I proudly serve as a board member of ALS Action Canada, collaborating with others who share the same spirit of collaboration and mission: to end ALS.
Through this journey, we’ve seen firsthand how powerful love can be, even in the face of ALS. Our story is just one of many, but it’s a reminder that love doesn’t stop when things get hard; it grows stronger.
– Louis Del Re
David and Scott Lloyd
My brother Dave is still the smartest person I've ever known. As a kid he was the biggest and strongest person I had ever known from a physical standpoint, but he really proved how strong he was with how he chose to fight ALS! My brother and I loved each other dearly, and I'm grateful for every moment that I had with him throughout our lives, but I most cherish the intentional time we spent together after his diagnosis.
Throughout my brother's fight, and our work to build racing for ALS together (first just to make memories together, but then it quickly evolved into so much more in regards to helping other community members and funding research for a cure), Dave worked ardently behind the scenes to support so many people through his presence, his knowledge, his encouragement, and his rare brand of brutal humor. I was blown away after his passing just how many people came to me and said Dave used to text me every day, he did so much to lift me up when I was feeling down, to help alleviate my fears, etcetera. He did all of that while facing down the specter of ALS in his own life as it slowly took away his physical abilities.
I could not be more proud of who my brother was, how he lived his life, how he loved others, and above all, I'm grateful that I know I'll see him again one day in Heaven, where he sits now ALS and pain-free!
– Scott Lloyd
Vince and Glynis Murray
Vince and I were one of those lucky couples who find each other later in life. We had both been married, but not to the right people. So, when we found one another, it was a perfect fit. A love that was meant for a lifetime. But no one told us it would have to be my lifetime.
We met in 2011, not in a rush to get remarried, we lived together, having the best life! But once we finally decided to make it official, things changed. Two days before our wedding, Vince was diagnosed with bulbar ALS. He was now the second person in his family to have it. Things got scary that day.
But we took that weekend, yes our honeymoon weekend, to have a pity party, and then we started to LIVE! We traveled! We went to Alaska, toured national parks, took fishing trips, and did everything we could while we were still able to! We just lived and took photos, knowing that one day those photos would be all I’d have.
And even after losing him just 13 months later, I still traveled with him. “Flat Vince” is a photo of Vince on a stick that has visited the Swiss Alps, a U2 concert in Dublin, Ireland, a canal ride in Amsterdam, Dracula’s Castle in Transylvania, and many more amazing spots. Not bad for a man who never left the States. But this year, to celebrate his birthday and mark 10 years since he’s been gone, we’re heading off to Paris. Not the way we wanted, but enough for our lifetimes!
– Glynis Murray