News from the ALS Therapy Development Institute
Volume 19 Issue 2 | February 14, 2018

"You can either celebrate what you can do, or mourn what you can’t. Every day I wake up and create a new normal. I don’t dwell on what has changed, but instead, I focus on keeping busy achieving my goals." -Augie Nieto

This month's issue is dedicated to our chairman Augie Nieto, who celebrates his 60th birthday on February 15. Augie has been living with ALS for almost 13 years.

A Couple and Their Quest

On February 15, Augie Nieto will celebrate his 60th birthday, a day few people thought would happen. He's been living with ALS for almost 13 years, when the average lifespan of those battling the disease is 2-5 years. Augie and his wife, Lynne, share a life filled with love, hope, and an unparalleled dedication to changing the trajectory of ALS. Read more here.

2/15 - 3/8: Orangetheory Fitness Campaign

In 2017, Orangetheory Fitness raised over $2 million in its first ever nationwide fundraising campaign for Augie’s Quest. The #IBurnForALS campaign was a simple program that asked members to make donations and participate in a campaign-specific 90-minute class. This year, they are determined to beat $2 million! Orangetheory Fitness members can participate in classes between February 15th and March 8th, and non-members are invited to participate in the March 3rd Augiethons! Click here to learn more!

3/20: Augie Comes to iTunes, Amazon

The award-winning documentary film Augie follows Augie and Lynne, and tells their hopeful, and often humorous love story and enduring quest to cure ALS. Augie was created by James Keach, the award-winning director of Walk The Line and Glen Campbell…I’ll Be Me, and produced by Eric Carlson. The movie was very popular in the 2017 Film Festival circuit, making appearances at Austin, Greenwich, Heartland, Hot Springs and Newport Beach and garnering awards at the Nashville and Boston Film Festivals. Augie will be in select theaters in New York and Los Angeles on March 16 and you can buy or rent Augie on iTunes and Amazon beginning March 20! In the meantime, you can watch the trailer here.

3/23: 13th Annual BASH for Augie's Quest

The BASH for Augie's Quest is a lively and hugely successful fundraising benefit that also recognizes a generous group of individuals and organizations within the fitness industry. Join us for the 13th Annual BASH for Augie's Quest on March 23 in San Diego!

A Quick Pepper Plug!

The #ALSPepperChallenge created by the Haberstroh family in honor of their mom, Patty, is sweeping the globe! In just six weeks, it has raised over $473K for research at ALS TDI! Those who have participated include Shaquille O'Neal, Andy Cohen, Sharon Osbourne, Garth Brooks, Trisha Yearwood, Jake Tapper, Wolf Blitzer, Sarah Silverman and Jimmy Kimmel to name a few. Now it’s your turn to take the #ALSPepperChallenge, challenge others, and donate today! Let's see how quickly we can get halfway to our goal of $1 million! Your donation helps advance potential treatment options for people living with ALS. View the highlight reel here!

Precision Medicine Program

We are continuing to enroll people in the Precision Medicine Program at ALS TDI; we aim to enroll an additional 300 people this year. Please share this opportunity with those in your community. The link to sign up is here.
At the ALS Therapy Development Institute, we always strive to ensure that we have the most updated information for each of our valued stakeholders, and that includes you. If this message has been received in error or if personal/professional circumstances have changed without our prior knowledge, please accept our sincere apologies. We would greatly appreciate it if you would notify us immediately of corrections or changes to the record we have on file for you, by sending an email to notify@als.net. With genuine thanks for all of your support. - The ALS Therapy Development Institute team.