News from the ALS Therapy Development Institute
Volume 19 Issue 6 | June 11, 2018
 

More Awareness, Continued Loss.

May was a month of heightened awareness of ALS: stories were shared, disease statistics were commented on, and facts about ALS were designed as engaging infographics. However, the ultimate, devastating reality of ALS remained the same. Read more on our blog here.
 

Can a Cookie Change the World?

Tessa is a 14-year-old girl, who has organized local fundraisers in Alaska for various causes over the past several years. Because her grandmother Sandy was living with ALS, Tessa's first fundraiser was a cookie bake sale to support research. Can a Cookie Change the World? by Rhonda Bolling shares Tessa's story of how she took a small idea and made great things happen! The book is available on Amazon and 35% of proceeds go to ALS TDI!
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Sadly, Sandy passed from ALS just a few weeks ago. She is pictured above with Tessa. Tessa is also pictured above with a copy of the brand new book, through which her grandmother's legacy continues.
 

Why is it So Hard to Cure ALS? TED-Ed

Check out the newest TED-Ed video with our very own Fernando G. Vieira, M.D. as the Educator! This video is a great introduction for those who may not know much about ALS, but want to learn more. You can view the whole video and "dig deeper" sections here.
 

Two Weeks Until Tri-State Trek 2018!

There are only ELEVEN days left until the 16th Annual Tri-State Trek! Join us for an amazing three-day, 270-mile ride from Boston to Greenwich, CT! If you haven't already, register here by June 13 and join our Trek family!
 

Research Update Webinar from Steve Perrin

During last month's webinar, Steve Perrin, PhD, spoke about several topics, including early results from the Precision Medicine Program, and an update on the clinical development plans for AT-1501. He provided a large amount of data from preclinical studies on several different potential treatments for ALS around an aspect of biology called the Unfolded Protein Response (UPR). In doing so, he explained how ALS TDI is looking at all aspects of ALS biology, from immunomodulation to UPR and beyond. You can hear his entire presentation, as well as his response to listeners' questions by clicking here.