May is ALS Awareness Month
May is ALS Awareness Month and this year ALS TDI is spreading awareness by sharing your stories, facts about ALS, and how our ALS research aims to end ALS.
Sharing the Realities of ALS
May is ALS Awareness Month and this year ALS TDI is getting the community involved in helping us share the realities of living with ALS and showing how everyone experiences ALS differently.
This year we are partnering with people living with ALS and their caregivers to share real experiences through our facts beyond the facts. To do this, we have partnered with
Her ALS Story
and the Young Faces of ALS
to collect a series of quotes which we will share each day of ALS Awareness Month.
In addition, we will be inviting all people with ALS and caregivers to share your experience by filling out a new social media badge,
“ALS Looks Like Me,” that you can share during the month.
How You Can Participate:
Use our badge generator here to share stats and facts about
your ALS journey on social media. See the example below!
- Share a video, photo, or text on social media, sharing your ALS story. If you would like to share a blog about your ALS journey, please email
- Share the quotes about the realities of living with ALS that will be shared all month long on the social media accounts of ALS TDI, Her ALS Story and the Young Faces of ALS.
- Be sure to tag @ALSTDI when posting on different social sites so we can share your photos/videos/blogs.
- You can use hashtag #EndALS, #ALSAwarenessMonth, #AskMeAboutALS in your posts to spread awareness.
"Follow Us to See All of Our Awareness Month Posts!"
About ALS TDI
As the ALS drug discovery engine, the ALS Therapy Development Institute (ALS TDI) discovers and invents ALS treatments and partners to advance them into clinical trials. It is the first and largest nonprofit biotech focused 100% on ALS research. ALS TDI incorporates all aspects of drug discovery under one roof to find treatments as quickly as possible.
About Her ALS Story
Her ALS Story is a group of women diagnosed with ALS before our 35th birthdays. To challenge the stereotype that ALS is an older white man’s disease, we foster an open dialogue about our declining health in female-centric media outlets. They cultivate relationships with female lawmakers to improve current insurance and Medicare standards and introduce legislation to speed up the drug pipeline. They also raise money for the pursuit of unbiased, supercharged ALS research to ultimately end this devastating disease.
About the Young Faces of ALS
The Young Faces of ALS is a group of people whose lives have been impacted by ALS at a young age. People with ALS, children, friends, and caregivers. The Young Faces are uniting to share stories, promote awareness of ALS, and emphasize the need to support ALS research at ALS TDI. The Young Faces of ALS will work together to spread awareness until there are treatments for everyone with ALS.
Other Ways to Get Involved
May 1-31, 2022
Lou Gehrig Day
June 2, 2022
Now more than ever, we need to educate more people about ALS and
the need for treatment. We hope that you’ll join us in spreading
awareness and helping to raise funds for research at ALS TDI.
Donate now to fund ALS research.