ALS News & Stories
Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.
ALS Research News
Wednesday, June 25, 2025
ALS TDI is working with several industry and academic partners to discover new biomarkers for ALS through the ALS Research Collaborative (ARC). Currently, these efforts have led to the development of five prototype digital biomarkers.
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Wednesday, June 25, 2025
Organized by Challenge Works, the Longitude Prize on ALS is a global challenge to develop AI-driven tools that accelerate ALS research. ALS TDI is a data partner, contributing over a decade of clinical and digital data from the ALS Research Collaborative (ARC) Study.
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Tuesday, June 24, 2025
The ALS Therapy Development Institute (ALS TDI) is proud to announce that a collection of cells derived from ALS patient-derived induced pluripotent stem cell (iPSC) lines will now be made widely available to researchers around the world.
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From trial readouts to news from our lab, you can find all of the latest ALS research news here.
ALS TDI Community Blog
Friday, June 27, 2025
At first, Her ALS Story came together and connected with each other primarily online. However, after a small group of HAS members got together at a beer festival in 2021, Kate says that they quickly recognized the uplifting power of meeting in person. Soon, they were discussing the possibility of a larger, multi-day gathering.
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Friday, June 13, 2025
Each year, the Trek team recognizes exemplary participants and volunteers with the Tri-State Trek Awards. These awards recognize the #TrekFamily members who, year after year, go above and beyond to make the Trek a success.
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Wednesday, June 11, 2025
On October 18, 2025, ALS TDI and Hop On A Cure are partnering to ensure a shared spirit of community and collaboration in the fight against ALS is felt at both the White Coat Affair and Harmony for Hope galas.
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Blog posts and commentary pieces from ALS TDI and community members with topics ranging from funding ALS research to how ALS impacts the lives of community members.
ALS TDI Press Releases
Tuesday, June 24, 2025
The ALS Therapy Development Institute (ALS TDI) is proud to announce that a collection of cells derived from ALS patient-derived induced pluripotent stem cell (iPSC) lines will now be made widely available to researchers around the world.
read more
Tuesday, March 18, 2025
The ALS Therapy Development Institute (ALS TDI) is pleased to announce its acceptance as a member of DataCite, a leading global organization dedicated to ensuring research is openly available and accessible across scientific disciplines. This partnership will significantly enhance the discoverability, accessibility, and citability of the ALS Research Collaborative (ARC) dataset, a vital resource in the global search for effective ALS treatments.
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Friday, December 13, 2024
he ALS Therapy Development Institute (ALS TDI) is proud to announce that Augie’s Quest to Cure ALS has fulfilled its $5.8 million commitment, pledged in 2021, to advance ALS research. This transformative funding has directly supported the Augie’s Quest Translational Research Center (AQTRC), a cutting-edge laboratory dedicated to developing treatments for ALS.
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A complete list of press releases from the ALS Therapy Development Institute.
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