Both have family members with ALS and bring decades of leadership experience to the Institute's board of directors.
The ALS Therapy Development
Institute (ALS.net) announced the appointment of two new additions to its
board of directors; Julie Swan of Bradenton, Florida, and Paul
Sallaberry of Palo Alto, California. The current board of directors voted to accept the two nominations during its regular meeting on January 27, 2016.
“We are thrilled to have Julie and Paul join
the board of the ALS Therapy Development Institute. Both know what it is like
to have ALS in your home. Both know what needs to be done. They have each been
at the top of their fields and industries and are going to bring great energy to the board and support to the team at the ALS Therapy Development
Institute,” said Augie Nieto, chairman of the board of the ALS Therapy
Development Institute. Nieto was diagnosed with ALS in 2005.
Julie Swan spent 34
years in the food service industry, retiring from Sysco Corporation as
corporate vice president of finance in 2012. At Sysco, she helped form that
company’s Strategic Management department and worked extensively across
multiple non-traditional foodservice divisions and international acquisitions.
Julie has served on the corporate boards of many nonprofits, including the United
Way, YMCA, Boys and Girls Club of Manatee County and the Women’s Foodservice
Forum. Swan is married and has two sons.
Her son, Kevin Swan, was diagnosed with ALS in 2012. Soon after his diagnosis,
Kevin created A Life Story Foundation, of which Julie assumed the role of Chief
Financial Officer. Their foundation has raised more than $500,000 and named the
ALS Therapy Development Institute as its research partner.
was finally diagnosed on February 15, 2012, he looked at me and said, 'It's got
a name, we know what we need to attack' – and that's what we have been doing
ever since," said Julie Swan upon her appointment to the Institute's board.
Paul Sallaberry is
a software industry veteran with a career encompassing the build and
operational management of Enterprise-class worldwide sales, marketing,
technology and consultative services organizations. He has held sales and
marketing leadership positions at VERITAS Software, OpenVision and Oracle. He
is a member of the U.C. Davis Foundation Board of Trustees and on the Board of
Trustees of Sacred Heart Schools. He also advises several young Silicon Valley
companies and serves on the boards of Acquia, Calypso Technologies, Moovweb,
Quorum Labs, Dataguise, Livemagic and is Chairman of the Board of Seal Software.
Sallaberry earned a Bachelor of Science degree from the University of
“It was an absolute
shock to have my dear friend Augie Nieto and my loving wife Nancy both
diagnosed with ALS! There was no doubt in my mind that I was fully committed to
making a difference in the fight against this horrific disease. I am thrilled
to be joining the ALS Therapy Development Institute’s board and I look forward
to working with my fellow board members and the leadership team to assist in
the delivery of impactful results,” said Sallaberry following his appointment to
the Institute's board.
For a complete list and bios of all 19 members of the board
of directors of the ALS Therapy Development Institute, visit https://www.alstdi.org/about-als-tdi/als-tdi-team.aspx.
About the ALS Therapy
The ALS Therapy Development
Institute and its scientists actively discover and develop treatments for ALS.
The Institute is the world’s first and largest nonprofit biotech focused 100
percent on ALS research. Led by people with ALS and their families, the charity
understands the urgent need to slow and stop this horrible disease. Based in
Cambridge, MA, the Institute has served as one of the leaders in sharing data
and information with academic and ALS research organizations, patients and
their families. For more information, visit www.alstdi.org.