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ALS News & Stories
Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room
here
.
ALS News & Stories
Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room
here
.
Filter by Category
ALS Research
Research at ALS TDI
ALS Community Stories
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ALS Research News
Wednesday, August 13, 2025
United for Answers: Leading ALS Organizations Announce ‘Champion Insights’ to Unlock Why Athletes and Military Members Face Higher ALS Risk
The ALS Therapy Development Institute (ALS TDI) is proud to announce that it will lead all research operations for Champion Insights—a new study planned to launch this fall in partnership with Answer ALS and Augie’s Quest to Cure ALS. This effort aims to uncover critical genetic and metabolic factors that may help explain the significantly higher incidence of amyotrophic lateral sclerosis (ALS) among endurance athletes, military service members, and other potentially high-risk groups.
read more
Tuesday, July 22, 2025
What is a Natural History Study and How Can They Help Us Understand ALS?
A natural history study is an effort to gather as much data about a disease in as wide a population as possible.
read more
Wednesday, July 2, 2025
ALS TDI Researchers Validate a Profilin1 Mouse Model of ALS, Results Published in Neurobiology of Disease
This paper demonstrates that the profilin1 model recapitulates key ALS features and can be used as an effective tool for testing ALS treatments.
read more
From trial readouts to news from our lab, you can find all of the latest ALS research news here.
More ALS Research News
ALS TDI Community Blog
Thursday, July 3, 2025
Pedals vs. ALS: Timm Fenton Checks in from the Final Miles of a Cross-Country Ride for ALS
In early June 2025, Timm Fenton set out to cross the country by bike while raising funds for the ALS Therapy Development Institute (ALS TDI) in an effort he is calling Pedals vs. ALS.
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Tuesday, July 1, 2025
Teams of the 2025 ALS Walk for Research: Chip Fanelli Fan Club
In anticipation of this year’s ALS Walk for Research, we’re interviewing the leaders of some of the event’s biggest and most successful teams. Today, we’re joined by Cory Fanelli of the team Chip Fanelli Fan Club.
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Friday, June 27, 2025
More than a Vacation: The Her ALS Story Retreat
At first, Her ALS Story came together and connected with each other primarily online. However, after a small group of HAS members got together at a beer festival in 2021, Kate says that they quickly recognized the uplifting power of meeting in person. Soon, they were discussing the possibility of a larger, multi-day gathering.
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Blog posts and commentary pieces from ALS TDI and community members with topics ranging from funding ALS research to how ALS impacts the lives of community members.
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ALS TDI Press Releases
Wednesday, August 13, 2025
United for Answers: Leading ALS Organizations Announce ‘Champion Insights’ to Unlock Why Athletes and Military Members Face Higher ALS Risk
The ALS Therapy Development Institute (ALS TDI) is proud to announce that it will lead all research operations for Champion Insights—a new study planned to launch this fall in partnership with Answer ALS and Augie’s Quest to Cure ALS. This effort aims to uncover critical genetic and metabolic factors that may help explain the significantly higher incidence of amyotrophic lateral sclerosis (ALS) among endurance athletes, military service members, and other potentially high-risk groups.
read more
Tuesday, June 24, 2025
ALS TDI Announces New Agreement with Axol Bioscience to Expand Access to ALS Patient iPSC-Derived Cells for Global Research
The ALS Therapy Development Institute (ALS TDI) is proud to announce that a collection of cells derived from ALS patient-derived induced pluripotent stem cell (iPSC) lines will now be made widely available to researchers around the world.
read more
Tuesday, March 18, 2025
ALS TDI Joins DataCite to Expand Access and Impact of ARC Dataset
The ALS Therapy Development Institute (ALS TDI) is pleased to announce its acceptance as a member of DataCite, a leading global organization dedicated to ensuring research is openly available and accessible across scientific disciplines. This partnership will significantly enhance the discoverability, accessibility, and citability of the ALS Research Collaborative (ARC) dataset, a vital resource in the global search for effective ALS treatments.
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A complete list of press releases from the ALS Therapy Development Institute.
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