ALS News & Stories
Welcome to the ALS TDI news page. View our research news, press releases and blogs below. To find out more about our organization or to contact our team, visit our press room here.
ALS Research News
Wednesday, December 31, 2025
A letter about ALS TDI's 2026 research priorities from ALS TDI's CEO and Chief Scientific Officer, Fernando Vieira.
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Monday, December 29, 2025
A letter about the progress of AP-101 from ALS TDI's CEO and Chief Scientific Officer, Fernando Vieira.
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Thursday, December 11, 2025
The ARC study is now enrolling a new, crucially important group – asymptomatic carriers of ALS-related genetic mutations.
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From trial readouts to news from our lab, you can find all of the latest ALS research news here.
ALS TDI Community Blog
Tuesday, January 13, 2026
In the months leading up to the 2026 Tri-State Trek, we will be publishing perspectives some of the event's most dedicated supporters about why they ride and what the Trek means to them. Today, we're featuring a letter from Liz Coccio of the team HAS Mamas.
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Tuesday, January 6, 2026
Running the TCS New York City Marathon was, by far, the most important race of Connor’s running career — but not just because of the event’s prestigious status. This time, he was running to support research to find effective treatments for ALS at the ALS Therapy Development Institute (ALS TDI).
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Tuesday, November 25, 2025
Tuesday, December 2nd, is Giving Tuesday – a Global Day of Generosity! On this day, your support helps ALS TDI reach more people with our mission and raise critical funds to accelerate ALS research. Together, we are all part of the story of ending ALS. Here’s how you can get involved
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Blog posts and commentary pieces from ALS TDI and community members with topics ranging from funding ALS research to how ALS impacts the lives of community members.
ALS TDI Press Releases
Wednesday, August 13, 2025
The ALS Therapy Development Institute (ALS TDI) is proud to announce that it will lead all research operations for Champion Insights—a new study planned to launch this fall in partnership with Answer ALS and Augie’s Quest to Cure ALS. This effort aims to uncover critical genetic and metabolic factors that may help explain the significantly higher incidence of amyotrophic lateral sclerosis (ALS) among endurance athletes, military service members, and other potentially high-risk groups.
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Tuesday, June 24, 2025
The ALS Therapy Development Institute (ALS TDI) is proud to announce that a collection of cells derived from ALS patient-derived induced pluripotent stem cell (iPSC) lines will now be made widely available to researchers around the world.
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Tuesday, March 18, 2025
The ALS Therapy Development Institute (ALS TDI) is pleased to announce its acceptance as a member of DataCite, a leading global organization dedicated to ensuring research is openly available and accessible across scientific disciplines. This partnership will significantly enhance the discoverability, accessibility, and citability of the ALS Research Collaborative (ARC) dataset, a vital resource in the global search for effective ALS treatments.
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A complete list of press releases from the ALS Therapy Development Institute.
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