ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(29 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,043

119,470

Yesterday at 5:23:45 PM
in ALS neuron damage reversed with new compound
by shueydj

Living with ALS

(4 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,886

15,888

Today at 7:27:44 AM
in Anger
by Rlschafferrr

ALS Advocacy

(5 Viewing)

Discuss strategies for increasing public funding and attention

514

3,239

4/15/2021 4:49:06 AM
in Drones
by DeeBee

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Forum’s Choice Program at ALS TDI

(2 Viewing)

Nominate and discuss for advancement therapeutics to test in the mouse model

100

1,137

Yesterday at 2:54:18 AM
in Connecting the ALS dots
by JPLeRouzic

Philosophy and Feedback

(2 Viewing)

Discusses forum philosophy and any comments or suggestions.

160

1,277

4/18/2021 11:44:30 AM
in Concrete
by DeeBee

Irrelevant to ALS

Postings deemed irrelevant to ALS by the ALS TDI Research Team

286

3,555

4/8/2021 6:36:24 PM
in Strange onset?!! Or not so strange :(
by John1980

Forum
ALS Topics
ALS Research & Treatments (29 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,043 Posts: 119,470
Latest Post: Yesterday at 5:23:45 PM in ALS neuron damage reversed with new compound by shueydj
Living with ALS (4 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,886 Posts: 15,888
Latest Post: Today at 7:27:44 AM in Anger by Rlschafferrr
ALS Advocacy (5 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 514 Posts: 3,239
Latest Post: 4/15/2021 4:49:06 AM in Drones by DeeBee
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Forum’s Choice Program at ALS TDI (2 Viewing)
Nominate and discuss for advancement therapeutics to test in the mouse model
Topics: 100 Posts: 1,137
Latest Post: Yesterday at 2:54:18 AM in Connecting the ALS dots by JPLeRouzic
Philosophy and Feedback (2 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 160 Posts: 1,277
Latest Post: 4/18/2021 11:44:30 AM in Concrete by DeeBee
Irrelevant to ALS
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 286 Posts: 3,555
Latest Post: 4/8/2021 6:36:24 PM in Strange onset?!! Or not so strange :( by John1980

Latest Posts
Anger by Rlschafferrr (Living with ALS)	Today at 7:27:44 AM
ALS neuron damage reversed with new compound by shueydj (ALS Research & Treatments)	Yesterday at 5:23:45 PM
Tankyrase Inhibitors inhibit TDP-53 aggregation by Barbarawanda61 (ALS Research & Treatments)	Yesterday at 11:57:34 AM
Are Fasciculations Good or Bad? by Barbarawanda61 (ALS Research & Treatments)	Yesterday at 11:53:30 AM
dihydrotestostetone in ALS by Rusknight (ALS Research & Treatments)	Yesterday at 6:01:56 AM
Connecting the ALS dots by JPLeRouzic (Forum’s Choice Program at ALS TDI)	Yesterday at 2:54:18 AM
Healey Platform trial - faster enrollment = faster results by par220 (ALS Research & Treatments)	4/20/2021 8:45:48 PM
Quality control of mitochondria in neurons by Barbarawanda61 (ALS Research & Treatments)	4/20/2021 11:59:18 AM
Lifevac as cough assist to clear mucus plugs? by jjbrennan76 (Living with ALS)	4/20/2021 2:48:25 AM
Autonomic dysfuntion with intestines by JPLeRouzic (Living with ALS)	4/19/2021 4:48:25 PM
Please pray or send good thoughts for nancy by Cure92951 (Living with ALS)	4/18/2021 5:41:06 PM
Concrete by DeeBee (Philosophy and Feedback)	4/18/2021 11:44:30 AM
Hypermetabolism among slow-progressors? by KimB (Living with ALS)	4/16/2021 9:22:23 PM
Q & A by JPLeRouzic (ALS Research & Treatments)	4/15/2021 3:09:11 PM
Drones by DeeBee (ALS Advocacy)	4/15/2021 4:49:06 AM

Active Users
	46 active users - 1 member, 45 guests. Most users ever online was 1084, 2/17/2017 10:46:25 PM. Grounded
Statistics
	There are 144,907 posts in 12,073 topics in 7 forums. Last post Today at 7:27:44 AM by Rlschafferrr. We have 37,385 registered members. The newest member is batwomn59.

ALS Forum

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (29 Viewing) Discuss the latest ALS-related scientific and medical findings	9,043	119,470	Yesterday at 5:23:45 PM in ALS neuron damage reversed with new compound by shueydj
	Living with ALS (4 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,886	15,888	Today at 7:27:44 AM in Anger by Rlschafferrr
	ALS Advocacy (5 Viewing) Discuss strategies for increasing public funding and attention	514	3,239	4/15/2021 4:49:06 AM in Drones by DeeBee
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Forum’s Choice Program at ALS TDI (2 Viewing) Nominate and discuss for advancement therapeutics to test in the mouse model	100	1,137	Yesterday at 2:54:18 AM in Connecting the ALS dots by JPLeRouzic
	Philosophy and Feedback (2 Viewing) Discusses forum philosophy and any comments or suggestions.	160	1,277	4/18/2021 11:44:30 AM in Concrete by DeeBee
	Irrelevant to ALS Postings deemed irrelevant to ALS by the ALS TDI Research Team	286	3,555	4/8/2021 6:36:24 PM in Strange onset?!! Or not so strange :( by John1980